Carleen Posted December 8, 2003 Share Posted December 8, 2003 I have been off the board for so long, and am trying to catch up on all the news and posts. So much has happened in the past two months that I just don't know where to begin. There is so much good news, but also some news that is just breaking my heart. I feel terrible that I wasn't here to offer support to some people I've truly come to love, who are no longer with us. I just hope they know how much they have meant to me, and changed my life forever. I have missed everyone so much. I wound up taking an unexpected leave of absense from work for the past two months just because there was so much going on with Keith. In the past two months, we've gone from being told that there was no more options, to searching for a new doctor all over the midwest, going through liver surgery, investigating a trial in Amsterdam, a few set backs and illnesses (mostly dehydration and flu bugs) and now we are working on renewing hope and strength. The unfortunate thing is that work is the only place I have access to a computer (that is going to change for Christmas, I am buying my husband a laptop). So, I wasn't able to get on board, or even receive my e-mails. I wasn't even expecting to take the leave, so I couldn't give anyone a heads up. I just vanished one day. I can't tell you how much it meant to me to come back and read all the e-mails and posts from you, all the caring and love that still ties me to you, and always will. I feel so much love, it is hard to express how grateful I am for it all. Keith is doing really well now. We found a new doctor who is actively trying to find something to treat him with. Instead of just working on assumptions, we decided to get a liver biopsy done, which was very hard on Keith because they tried to go in through laproscopy but couldn't find the original lesion and had to open him up to find a deeper set one. But, he is healing and almost back to normal now. The biopsy confirmed the cancer type as A-typical carciniod, which is what we thought it was from the Mayo Clinic, and sort of justifies his lack of response from the chemo, as Atypical doesn't fair well from chemo. We also found out that the three lesions in his liver turned out to be 1. nothing there, 2. a benign cyst, and 3. atypical carcinoid tumor, which was completely removed in the biopsy process. So, at this time his liver looks to be cancer free. That was the best news we've received in so long. I cried, and for once they were tears of joy. They still haven't started treating him yet, it's been two 1/2 months, but at least this doctor is entertaining the idea and is looking into clinical trials. We should know by Dec. 23rd what our options are. Keith is starting to get his hair back and is looking so handsome (as always), and really is starting to feel good again (praise God). He is still relying on a lot of pain meds, but I think that is because he's built up such a large tolerance to them. We are planning on celebrating Christmas at our house this year with both sides of our families all together, so we have our hands full again, but this time with celebrating and joyous gatherings. Mostly it is my family that is the handful, I have two sisters and a brother, all married and 10 neices (no nephews). When we all get together, it is loud and it is chaos, but I love every second of it. I've been so busy lately that I haven't even started my Christmas decorating or shopping yet. I have a lot of catching up to do. It just feels so nice to be doing things that feel normal again. Although I hate my job, it feels good to be getting up and going to work again. It is nice having something other than Cancer to think about. I love Christmas and love having that as a new diversion for my mind. I have missed you all so much, and hopefully after a couple of days of catching up, I will be able to be back in full force. Thank you, everyone. Sorry this is so long, but I know you all understand. God Bless, Carleen Quote Link to comment Share on other sites More sharing options...
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