bunny Posted December 23, 2008 Share Posted December 23, 2008 Hi everyone. I hope your holiday preparations are joyful. I'm not feeling the Christmas spirit today but hope to have regained it by tomorrow. We spent a 9 hour day at Sloan yesterday, meeting with mom's oncologist and new radiation oncologist. At the early appointment, Dr. Kris thought she might have a blood clot in her leg and sent her for a doppler (negative) which is is why the day turned into a marathon. To recap, she has a cluster of small lesions on her cerebellum and one 'spot' on her spine. New information she recieved yesterday is that there is another area of concern on her spine and a another small lesion near her right temple. The plan is 14 treatments of whole brain radiation over a 3 week period starting next week. They will do SRS on any remaining lesions after the WBR is complete, and will decide what, if anything, to do for the lesions on her spine as her treatment proceeds because right now they can't tell if her left-side weakness is part of her post-op deficits or related to the lesions on her thoracic spine. Some of the treatment plan regarding her spine is also contingent on what they find in a lung CT scheduled for January 12. Assuming she has no disease in other parts of her body, the doctors seem confident that the WBR will serve her well. In order to make decisions about treatment, Suki pressed for a prognosis. I know how many of us feel about that here, but for her it was important to get an answer to the question, as she puts it, "what will this get me?" In other words, she wanted to know what they hoped to achieve with this treatment plan. I think we were all a little surprised to hear that 6 months to a year of survival is their best hope for her, based on the average response they observe. We all expected something more like 1-2 years. I'm sorry if my posting this upsets anyone here, but I have never kept anything from you guys. Anyway, we know it's just an average and we have every expectation that Suki will, as usual, surprise everyone. So she's going ahead with the WBR and will make additional decisions as they come. Still, it's not an easy thing to hear. So today I am sad and grumpy. And tired. And weak. Tomorrow I will have a great day doing my very last minute Christmas shopping and giving Suki a beautiful Christmas. We're all bouyed by Levi -- he is joy in a little living, breathing, talking, running and Christmas-tree worshipping package and easily the best thing that ever happened to any of us. Whatever ultimately happens, I derive immeasurable gratitude from the fact that my mother has survived this disease long enough to meet her first grandson. But today I hate everything, especially lung cancer. I do love all of you, though, and know that your prayers and thoughs have sustained us all these years and continue to do so. Amie Quote Link to comment Share on other sites More sharing options...
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