KatieB Posted March 7, 2009 Share Posted March 7, 2009 Amie's mom, Suki, started declining mentally over the past two weeks and on Thursday started having bowel and bladder incompetance. Yesterday the docs at MSK got together and came in and told her there was nothing more they can do for her. All of her symptoms are due to advancing leptomeningeal mets that don't show on an MRI and haven't responded to RT or Tarceva. Because of the incontinence, Suki is not a candidate for home hospice but they're working to get her into Calvary, a palliative care hospital in the Bronx that they've heard universally wonderful things about. She should be transferred Mon or Tues. She will post an update when she can. Please keep Suki and Amie in your prayers. Quote Link to comment Share on other sites More sharing options...
fillise Posted March 7, 2009 Share Posted March 7, 2009 I will keep Aminee and Suki in my prayers. Thanks for the update Katie. This is devestating news. Susan Quote Link to comment Share on other sites More sharing options...
ginnyde Posted March 7, 2009 Share Posted March 7, 2009 Amie, I am sorry. Quote Link to comment Share on other sites More sharing options...
RandyW Posted March 7, 2009 Share Posted March 7, 2009 thoughts and Prayers !! Quote Link to comment Share on other sites More sharing options...
shineladysue Posted March 7, 2009 Share Posted March 7, 2009 Thank you for the update , Katie. I'm so sorry to learn of Suki's decline. My heart is breaking for Amie and her family. My thoughts and prayers continue. Sue Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted March 7, 2009 Share Posted March 7, 2009 Amie, I am so sorry. You are all in my prayers. Quote Link to comment Share on other sites More sharing options...
Kasey Posted March 7, 2009 Share Posted March 7, 2009 Oh Amie ~ you know I've always felt a kindred spirit with Suki. I'm so sorry to hear your update. My hopes are for a swift transferral to Calvary and great palliative care. Kasey Quote Link to comment Share on other sites More sharing options...
Ry Posted March 7, 2009 Share Posted March 7, 2009 Amie- I am so sorry. Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted March 8, 2009 Share Posted March 8, 2009 Aimee, So sorry to read this update. My thoughts and prayers are with you and your mom. Quote Link to comment Share on other sites More sharing options...
jaminkw Posted March 8, 2009 Share Posted March 8, 2009 Aimee, what tragic news. Sending positive energy to help give you the strength to weather this storm. Hoping for peace and comfort for your mother at Calvary. Judy in Key West Quote Link to comment Share on other sites More sharing options...
Patkid Posted March 8, 2009 Share Posted March 8, 2009 Thank you, Katie. Oh, Aimee honey I care Quote Link to comment Share on other sites More sharing options...
bunny Posted March 9, 2009 Share Posted March 9, 2009 Thanks everyone. I have so much to say but I get here and it leaves my mind. I guess that's the message, then -- be quiet and still and let people love me through this. Tomorrow my brother (who I have never been closer to than this moment in time) and I are going to tour Calvary at Suki's request (she's still a pisser! "I am not going anywhere I've never seen before!") and she should be approved and transferred tomorrow or Tuesday. Today was full of visitors for her which made her happy and tired. She's sad, mad, and doesn't like people helping her put her pants on (apparently) but otherwise, she's just the same old brave mama I've been blessed to know for 37 years. And she's funny, too. When reminding us of her wish to be cremated and "sprinkled over Paris" she noted she'd never made it to Italy, so maybe we could bring her ashes there, instead. In our weird family, that's humor. I am searching for the grace in the corners of this awful experience, and finding moments of joy there. Not the least of which is knowing I have, and have always had, this Board by my side. Love and gratitude, Amie Quote Link to comment Share on other sites More sharing options...
Flyman35 Posted March 9, 2009 Share Posted March 9, 2009 My thoughts and prayers go out to you and Suki Aimee. Denise Quote Link to comment Share on other sites More sharing options...
LovesLife Posted March 9, 2009 Share Posted March 9, 2009 Many prayers sent up for you all. I love her humor ... sounds like how our family talks! Hope the transfer goes smoothly and that the atmosphere is just perfect. Linda Quote Link to comment Share on other sites More sharing options...
fillise Posted March 9, 2009 Share Posted March 9, 2009 Aime, We are standing right here with you and Suki. Don't you doubt that for a minute. We aren't going any where, so lean on us when you need to. ((((Aime)))) Susan Quote Link to comment Share on other sites More sharing options...
SandraL Posted March 11, 2009 Share Posted March 11, 2009 Lots of prayers for Amie and Sukie. I am saddened by the update but hope that the best care can be found for her. Sandra Quote Link to comment Share on other sites More sharing options...
carolhg Posted March 11, 2009 Share Posted March 11, 2009 I am very sorry to hear this news. My thoughts and prayers are with Suki and her family. Carol Quote Link to comment Share on other sites More sharing options...
dchurchi Posted March 11, 2009 Share Posted March 11, 2009 Amie, I hate reading this about your beautiful Suki. Such a fighter she continues to be. I will keep you, Suki and the rest of your family close in my heart and prayers. Quote Link to comment Share on other sites More sharing options...
SBeth Posted March 13, 2009 Share Posted March 13, 2009 I'm so very sorry Aimee, please know that we are all here for you. I will be praying for Suki to find peace and be free of her pain. Much love to you. Quote Link to comment Share on other sites More sharing options...
Ann Posted March 17, 2009 Share Posted March 17, 2009 ((((((((((((((Amie)))))))))))))))) So sorry to hear that your dear Suki is not doing well. My thoughts and prayers are with both of you. Hang tough, my friend. Quote Link to comment Share on other sites More sharing options...
Maryanne Posted March 19, 2009 Share Posted March 19, 2009 Just to let you know Aimee that I'm thinking of you and your mom. I am so sorry it has come to this. This crazy disease, you think you are doing great with great results than bang.... Prayers sent for you Suki. Maryanne Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted March 19, 2009 Share Posted March 19, 2009 (((Amie))) Continued prayers for dear Suki! God Bless! Jamie Quote Link to comment Share on other sites More sharing options...
shineladysue Posted March 20, 2009 Share Posted March 20, 2009 Amie, I want you to know that Suki and your family remain in my prayers. God Bless, Sue Quote Link to comment Share on other sites More sharing options...
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