TracyD Posted March 30, 2009 Share Posted March 30, 2009 Just a quick note to say I'm STILL HERE! I know I haven't been around much lately, but my life has taken some twists and turns in the past six months that have put cancer at the bottom of my "things to worry about" list. Perhaps when I'm in a better place I will be able to share with you all, right now it is just too painful to think about where my life is at. As for my cancer, things are going okay. I finished six rounds of Taxotere in December. In the end, my scans showed a small lesion on my spine, some progression in the primary mass, and some improvement in numerous nodules. My doc felt that we could do better so we came up wth a new plan. Radiation to the spine to take care of the met, followed by a clinical trial, IPI 504. Ten rounds of radiation showed no improvement to the met, but it didn't grow either. Scans done prior to getting into the trial showed more progression in my right lung, and a new lesion on my kidney. The trial drug is given by infusion. I get infusions on days one, four, eight and eleven, followed by ten days off, then repeat. I completed two full cycles and have scans tomorrow. If there is stability or improvement I continue on the trial, if there's progression, I'm out. To date my symptoms have been good. I was fortunate that for more than two years I had no symptoms other than some mild discomfort on my right side where the tumor was growing. Lately I have been experiencing SOB which comes and goes, but it never goes away completely. I also have back pain for which there doesn't appear to be any explanation for. I take painkillers and see a chiropractor, the pain is manageable, but it never seems to go away. When it comes on it is debilitating to the point where I cannot walk, or stand for any length of time. I want everyone to know that I am so happy to be here, my kids are my joy, and I will do everything in power to be here for them as long as I can. Thank you all my LCSC friends for being here. Tracy Quote Link to comment Share on other sites More sharing options...
SandraL Posted March 30, 2009 Share Posted March 30, 2009 Hi Tracy. Thanks for letting us know you are still here. As I am sure you know, we will always be here for you. I am sorry about whatever else has gone on in your life. Thanks for the update on how you are doing cancer wise...I will keep my fingers crossed that the trial you are on does some good. I can empathize with you about your back pain. I have suffered from it since last May and it is just purely awful...slows you right down. So hopefully something can be done about that as well. Take care and stay well Sandra Quote Link to comment Share on other sites More sharing options...
beatlemike Posted March 30, 2009 Share Posted March 30, 2009 Hi Tracy,Im sorry about the rough times you have been going thru. Cancer is hard enough to deal with besides the other problems that come along.I hope your trial works well for you and you and your family are in my prayers! Quote Link to comment Share on other sites More sharing options...
recce101 Posted March 30, 2009 Share Posted March 30, 2009 Hi, Tracy, it's good hearing from you. I hope you get encouraging news about your scans and that the other parts of your life click back into place very soon. As another member of the Class of '06 you'll always have my very best wishes. Much Aloha, Ned Quote Link to comment Share on other sites More sharing options...
Donna G Posted March 30, 2009 Share Posted March 30, 2009 Thanks for the update. Prayers going up for you and your beautiful family that you will have many happy days together and many laughs. Donna G Quote Link to comment Share on other sites More sharing options...
Patti B Posted March 30, 2009 Share Posted March 30, 2009 (((Tracy)))) Sorry there are some not so pleasant things going on in your life but happy to learn that cancer-wise you are doing pretty good. Here's hoping that the trial is your silver bullet!!! Hey, I am one of the Class of '06, too, and you can't keep us down!!! Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
Kasey Posted March 30, 2009 Share Posted March 30, 2009 (((Tracy))) ~ you know our thougts and prayers are with you always. Missed you the other week and got to chat with the man of the house. Hope he told you. Who knew 3 years ago where you would be today, huh? Here's to the post you'll be making 3 years from today. And I'm holding onto hope that your scans tomorrow will bring good news. We love you, Aunt Kasey (and Uncle Fred too, of course) Quote Link to comment Share on other sites More sharing options...
fillise Posted March 30, 2009 Share Posted March 30, 2009 Tracy, You have my prayers for the treatment you are on now and for everything else going on in your life. As if the cancer isn't bad enough! You know we will always be here for you. Susan Quote Link to comment Share on other sites More sharing options...
ginnyde Posted March 30, 2009 Share Posted March 30, 2009 Tracy I have all things crossed for only good news, it is your time for this. A summer of only fun and happiness is my wish for you and your family. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted March 30, 2009 Share Posted March 30, 2009 Tracy, I just want you to know that I will be praying for the trial to work for you and for all things in your life to improve. Remember, there are many here who keep you in our prayers and we care about you. God Bless, Sue Quote Link to comment Share on other sites More sharing options...
carolhg Posted March 30, 2009 Share Posted March 30, 2009 Good to hear from you Tracy. Wishing the best for you, sending positive thoughts your way and keeping you and your family in my prayers. Carol Quote Link to comment Share on other sites More sharing options...
jaminkw Posted March 30, 2009 Share Posted March 30, 2009 Tracy, I'd been following your progress on care pages for awhile and am glad to hear a progress report. I agree with others who think cancer is just about enough for anyone to have to deal with. I admire your courage in dealing with the bad stuff and maintaining your positive attitude in your cancer fight. Children are positive motivators aren't they! Judy in Key West Quote Link to comment Share on other sites More sharing options...
Sis Posted March 31, 2009 Share Posted March 31, 2009 Tracy, So good to see you posting. I'm sorry things are so rough for you right now. Let's hope that good news from your recent scans will help to brighten your spirits. Know you are in my prayers every day. Will light a candle for your tomorrow at Holy Angeles. You are a fighter, and we will always be here for you. Ellie Quote Link to comment Share on other sites More sharing options...
ursol Posted April 10, 2009 Share Posted April 10, 2009 Tracy, I'm so glad you checked in, I have been thinking about you. I'm sorry you are going through rough times besides having to deal with this crappy cancer but as a fellow class of "06, I know you are tough and can continue to beat this thing. Stay strong, stay well and call me if you ever want to talk, I'm not far. Lilly Quote Link to comment Share on other sites More sharing options...
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