dahknee Posted April 24, 2009 Share Posted April 24, 2009 Hi my name is Donny, diagnosed 1/08 right upper lobectomy 3/31/08 CT scan 4/11/08, clear CT scan, 10/ 08, esophageal lymph nodes enlarged Film at 11 of esophogas PET scan Cisplaten begins 12/3/08 with 37 radiation treatments CT scan 4/6/09, clear but pneumonitis from the radiation and anemia which prevent my next rounds of preventive chemo. 5/09 Bronchoscopy shows inflammation from radiation but clear otherwise. 6/4/09 Will start Carboplatin / Alimta, hopefully eradicate any molecular level Squamus. Glad I found you all. Quote Link to comment Share on other sites More sharing options...
SandraL Posted April 24, 2009 Share Posted April 24, 2009 Hi Donny. So sorry for your need to be here but glad you found us. There are many of us here who have walked in your shoes and have lots of information to share and support to give. Prayers that you get the pneumonitis looked after and can resume treatments. Please keep us posted on how you are doing. I look forward to seeing you on the boards. Sanra Quote Link to comment Share on other sites More sharing options...
recce101 Posted April 24, 2009 Share Posted April 24, 2009 Hi, Donny, welcome to the group! I didn't have radiation since my cancer story began with a malignant pleural effusion, but I know that many, many people have experienced radiation pneumonitis. If you haven't already, may I suggest that you also visit cancergrace.org (GRACE — Global Resource for Advancing Cancer Education). GRACE is led by Dr. Howard "Jack" West, a Seattle oncologist who is an internationally-recognized expert on lung cancer and who gives high priority to promptly answering questions online. A lot of us are "dual citizens" and have the same usernames there as here. Best wishes and Aloha, Ned Quote Link to comment Share on other sites More sharing options...
Patti B Posted April 24, 2009 Share Posted April 24, 2009 Hi Donny Welcome. You will find a great bunch of folks here with lots of knowledge and support. Feel free to ask any question, or just vent if you need to. Looking forward to getting to know you better. Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
jaminkw Posted April 25, 2009 Share Posted April 25, 2009 Donny, welcome to the boards. This is the place to be when you're travelling this road. Lots of caring informative people here. I agree with Ned. Dr West and his site was an important resource for me during my first year battling this dread disease. Ask questions, vent or just share what you are feeling. It's all good here. Judy in Key West Quote Link to comment Share on other sites More sharing options...
beatlemike Posted April 25, 2009 Share Posted April 25, 2009 Welcome Donny, I hope you find as much support and information here as I have. Quote Link to comment Share on other sites More sharing options...
dahknee Posted April 26, 2009 Author Share Posted April 26, 2009 I am so grateful for the warm welcome and the caring here. No matter how tough or funny or cool I may want to appear this journey still scares the heck out of me. Having such a history of LC in my family and having smoked for 30+ yrs made me sure that this was the end for me. Heck this is just another beginning. TG i got off the ciggys when I did tho. Thanks everyone and I plan to be here. GOD loves you all and so do I. Donny Quote Link to comment Share on other sites More sharing options...
Connie B Posted April 26, 2009 Share Posted April 26, 2009 Welcome Donny, Sorry you needed to find us, but I'm glad you did. You'll find alot of good info here and ton's of support from some great people. Take a minute and read over my story below my signiture. I know all to well about family history. But I have also learned this disease is beatable and treatable, which is something I never thought to be true. Look forward to getting to know you. Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted April 26, 2009 Share Posted April 26, 2009 Welcome Donny-- I'm glad you found us. All of us are scared and we would not be human if we weren't. As mentioned read other members profiles/stories and you will find that there is hope. Lots of information here so ask away, changes are someone has been there done that. Stay with us and keep us posted on how you are doing. Rich Quote Link to comment Share on other sites More sharing options...
Donna G Posted April 26, 2009 Share Posted April 26, 2009 Wecome Donny. Glad you found us! I can attest this is really a rough road to travel. During my treatment I took Cisplatin and daily radiation ( plus Etopiside) You notice I am over 11 years since diagnosis and no evidence of disease (NED). You can read my story clicky on the link below. Keep us posted on how you are doing. Donna G Quote Link to comment Share on other sites More sharing options...
jstdzy Posted April 27, 2009 Share Posted April 27, 2009 Welcome Donny. Dana Quote Link to comment Share on other sites More sharing options...
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