tkelley Posted June 15, 2009 Share Posted June 15, 2009 Hi Guys, Well the 11th was a year for dad. As I am sure others understand, I can't believe it has been that long and in other ways it feel like an eternity....My mom, myself and the kids trekked up to NY to the cemetery and a mass in my dad's name. It was nice, most of his family was able to be there. I was finally able to have some alone time at the cemetery which was hard but I was able to grieve without my kids watching me and that was cathartic. Right before I left, I went in for a routine gyn exam and they thought my uterus was enlarged and had me come back for an ultrasound. The tech wasn't looking more than a minute when she left and got the nurse practicioner who then left and got the doctor.....I knew from experience that it wasn't a good thing They found a very large cyst (12 cm x 12 cm) that was obstructing their view of my ovaries and is apparently pushing up my uterus. They did say it is mainly fluid filled from what they can see (maybe a small solid piece of about 3 cm) and that it is smooth which is supposedly a good thing. They ran a CA-125 to check cancer counts and called while I was in NY to say it was elevated.....so, now they want a CAT scan this week. I have an appointment with my gyn office this afternoon for a surgery consult and an appointment for a second opinion on Weds. As of right now, not sure when the scan will be. Apparently the CA-125 is not a reliable indicator so I am hanging on to that hope but know not to get too excited until I have more info.... if there is any hint that this is cancer I am going to consult a gyn/onc...... Sorry this was so long but needed a place to get this off my chest without making my mom too crazy....and I thought those "scanxiety" days were behind me Quote Link to comment Share on other sites More sharing options...
Patti B Posted June 15, 2009 Share Posted June 15, 2009 Sending tons of prayers your way. We all know about these false alarms (which I am holding out for) and the anxiety associated with them. PLEASE keep us posted. ((((((((((((((((((((((((((((((HUG)))))))))))))))))))))))))))))))) Patti B. Quote Link to comment Share on other sites More sharing options...
Calintay Posted June 15, 2009 Share Posted June 15, 2009 Many prayers coming your way. Quote Link to comment Share on other sites More sharing options...
dahknee Posted June 15, 2009 Share Posted June 15, 2009 Sorry you are having to deal with this but I am an uncurable optimist so include me in your corner, pulling, praying for you. I love that word, "scanxiety" it says so much. Donny Quote Link to comment Share on other sites More sharing options...
fillise Posted June 15, 2009 Share Posted June 15, 2009 False alarm. Yup, I'm sure of it so no need for scananxiety! What? You are still worried? Yeah, stupid scans make us all nervous. How about we wait here with you? It's not quite so scary if you have some friends to wait with you. ((((Hugs)))) Susan Quote Link to comment Share on other sites More sharing options...
SandraL Posted June 15, 2009 Share Posted June 15, 2009 Oh my...how scary. I am sending prayers your way. Sandra Quote Link to comment Share on other sites More sharing options...
jaminkw Posted June 15, 2009 Share Posted June 15, 2009 As I always say, waiting is the worst. We'll all wait with you. Sending many positive healing thoughts your way that it is a false alarm. Keep us posted. Judy in Key West Quote Link to comment Share on other sites More sharing options...
shineladysue Posted June 18, 2009 Share Posted June 18, 2009 (((Tammy))), I missed this before, but I'm here now . I'm praying hard that when all the facts are in you will find out it's just a benign cyst. Please , please keep us updated. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
beatlemike Posted June 18, 2009 Share Posted June 18, 2009 Tammy,Im sure you are worried but hopefully it is nothing more than a cyst! My prayers are with you. I know this may sound kind of silly but once in awhile I ask my folks(who have both passed away) to say a prayer for me. Quote Link to comment Share on other sites More sharing options...
Caren Posted June 18, 2009 Share Posted June 18, 2009 Thinking of you and hoping that it is all just a Cyst. Quote Link to comment Share on other sites More sharing options...
tkelley Posted June 19, 2009 Author Share Posted June 19, 2009 Hi Everyone! Thanks for the well wishes. Met with the gyn on Monday and he said my counts were 294 and they like to see under 20 Needless to say I almost fainted. He did say that the test is unreliable in premenopausal woment but he said that he wanted to refer me to an oncologist. My mom called my dad's old oncology nurse and she recommended one out of that office and was able to get me an appointment a week earlier which was great. (Sue, she is in the Virginia Oncology group) Had a CAT scan yesterday. My hats go off to all of you who drink that barium everytime. That stuff is horrible! I don't know how my dad did it all of the time. Anyway, even the technician commented on how "huge" my cyst was( I didn't think they were supposed to say anything)..... Met with the Oncologist today and she truly feels that it is benign but said there still is a chance it could be cancerous and they won't know until they remove it. It is much bigger than originally thought. It is 18cmx18cmx15cm. Apparently the size of a 6 month pregnancy! She feels the solid piece could very well be my ovary. The only way to test it is to take it out so I will be getting a call tomorrow to schedule surgery. It will be a full laparotomy and I will be on my butt for at least 2 weeks. I keep trying to think of it as a mini vacation. They are hoping to only take the cyst and whatever ovary is attached to it, test it and if no sign of cancer, finish up. They will test it while I'm under and if it is malignant I will have a full hysterectomy. I am feeling much better about it today because the doctor was so calm and matter of fact. I think I am in good hands. Thank you so much for all of your thoughts and prayers. It truly means so much! I was convinced the fly that wouldn't get out of my car the other day was my dad and had a long talk with him (Hope no one was looking at the crazy later talking to the fly in her car) By the way, mom and I got the local ice hockey farm team down here (Norfolk Admirals) to tentatively agree to a "lung cancer awareness night in November" still working out the specifics and hoping that Lungevity will be the benficiary of whatever is decided! Quote Link to comment Share on other sites More sharing options...
Flyman35 Posted June 19, 2009 Share Posted June 19, 2009 Wow Tammy. That is a lot to take in. I will continue to keep you in my thoughts and prayers. Denise Quote Link to comment Share on other sites More sharing options...
Kasey Posted June 19, 2009 Share Posted June 19, 2009 Somehow I missed this the other day, Tammy. The update sounds good to me, but that cyst is huge. Bet you'll be feeling great once it's out. All my best wishes, vibes, and anything else I got that's positive is going out to you. And great news about the LC awareness night. Way to go. Tell your mom Fred and I are asking for her. Kasey Quote Link to comment Share on other sites More sharing options...
Caren Posted June 19, 2009 Share Posted June 19, 2009 You will remain in my thoughts!! Well done for the Lung Cancer Awareness night!! I am holding one here in November too. Quote Link to comment Share on other sites More sharing options...
Barb73 Posted June 19, 2009 Share Posted June 19, 2009 Sorry to have not replied earlier. Missed this one . We are all here waiting in the hallway to know that everything turned out beautifully for you, (((Tammy))). Sending you my best thoughts, prayers, and all good vibes in your direction for a successful outcome. Barbara Quote Link to comment Share on other sites More sharing options...
fillise Posted June 19, 2009 Share Posted June 19, 2009 Tammy, Let us know when you are scheduled for surgery. The reports sound positive, but they are right to want to get everything out of there just to make sure. I went through a similar situation a few years ago. So much endometriosis growing to my female organs that they were afraid there were tumors in there as well. Fortunately it turned out to be just lots and lots of "junk." I'm hoping that's what they find for you too! Susan Quote Link to comment Share on other sites More sharing options...
SandraL Posted June 19, 2009 Share Posted June 19, 2009 Hi Tammy. My thoughts and prayers are with you for a cancer free surgery. And a quick recovery. Please keep us posted. Kudos on the lung cancer awareness night at the rink. That must have been a lot of hard work. Take care Sandra Quote Link to comment Share on other sites More sharing options...
shineladysue Posted June 19, 2009 Share Posted June 19, 2009 (((Tammy))), More hugs!!! You hang in there girl. Sounds like you have a good doctor. Let us know when surgery is scheduled and, of course, let us know your results. I'm praying for benign . And.. that's great news about the "lung cancer awareness night", such a wonderful thing to do. Will be praying and waiting for further news. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted June 21, 2009 Share Posted June 21, 2009 Missed this one too. I had a similar scare with a large ovarian cyst...and a few others, too. My C125 was not elevated though and BC pills made it go completely away. I went to an gyn onc too and was glad that I did. The first gyn was ready to rip everything out...that wouldn't have been cool. Hot flash, hot flash!! Praying that this turns out to be benign for you too. Take care and keep us posted. Quote Link to comment Share on other sites More sharing options...
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