fillise Posted September 9, 2009 Share Posted September 9, 2009 I am visiting my mom and dad in NC this week. She had an onc. appointment today. Her blood counts were good so she went ahead and had her second Alimta treatment today. He reduced her dose by 20% because of the toxicity of the last dose. So far today she seems to be doing well. Her Neulasta shot is tomorrow and that is usually what brings on the aches and then the fatigue kicks in a day or so later. I hope I can stay here with her through the worst of it. Susan Quote Link to comment Share on other sites More sharing options...
jaminkw Posted September 9, 2009 Share Posted September 9, 2009 Susan, just to let you know I'm hanging in here with good wishes for you and your Mom. Have a great visit and hope she feels well and can really enjoy it. Judy in Key West Quote Link to comment Share on other sites More sharing options...
Patti B Posted September 9, 2009 Share Posted September 9, 2009 Susan- Hoping this time is easier for her. Its interesting that she gets a Neulasta shot after Alimta - I never did. Maybe something to ask doc about if thats what causing her the majority of problems. Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
jstdzy Posted September 9, 2009 Share Posted September 9, 2009 Prayers for easy treatments on Mom! Dana Quote Link to comment Share on other sites More sharing options...
recce101 Posted September 9, 2009 Share Posted September 9, 2009 "Patti B"] It's interesting that she gets a Neulasta shot after Alimta - I never did. No Neulasta for me either. White counts haven't been a problem, just the reds. Ned Quote Link to comment Share on other sites More sharing options...
Maryanne Posted September 9, 2009 Share Posted September 9, 2009 Susan, I am so glad you could be there for your mom. Very glad to hear the treaments are going good so far. I know that nasty Neulasta shot could be trouble for some people. It was horrible for Joel, much worse then the chemo. They used to give him the shot the day after his treatment. They changed it to two days after and that seem to have made a difference. Will be thinking of her.. Maryanne Quote Link to comment Share on other sites More sharing options...
michellep Posted September 9, 2009 Share Posted September 9, 2009 Susan.....you're a wonderful loving daughter! I bet your mom is so very proud of you. I hope the fatigue just passes her by this time! Quote Link to comment Share on other sites More sharing options...
shineladysue Posted September 10, 2009 Share Posted September 10, 2009 Susan, I am keeping my eye on this space. Hope your mom will do better with the new adjustments in her treatment. Prayers coming your way , always. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
fillise Posted September 14, 2009 Author Share Posted September 14, 2009 Today is the 7th day since mom's last Alimta treatmant and I'm sad to say that she seems to be responding the same way she did to the first treatment. Tuesday and Wednesday she was fine. Thursday she spent most of the day in bed, but was able to go out to dinner that night. She ate well and seemed to be in good spirits. Friday she got weaker and started experiencing SOB and nausea. She has been worsening each day since. Today she was supposed to go to the oncologist for a follow-up, but had diarrhea so bad she couldn't leave the house. She is trying to drink a sports drink to combat dehydration so she won't end up back in the hospital. It's hard not to be discouraged at this point. Susan Quote Link to comment Share on other sites More sharing options...
Maryanne Posted September 16, 2009 Share Posted September 16, 2009 Oh Susan, I am so sorry to hear what your mom is going through and what the treatment is doing to her. Poor lady.... I will pray that she starts to feel better and those nasty symptoms leaves her. I really am at a loss for words but please know I hold her tight in my thoughts. Hang in there... Maryanne Quote Link to comment Share on other sites More sharing options...
shineladysue Posted September 16, 2009 Share Posted September 16, 2009 Susan, I am so sorry to read that your mom is having such a bad reaction to Alimta. I can tell you that Alimta is NOT for everyone and the side effects can be severe to life threatening in some people. My husband could not tolerate it and went into pneumonitis because of it. Some people only have mild shortness of breath , but be sure to read the side effects of Alimta... they can be very severe.. Your poor mom is having a really rough time. Hope there is possibly another option out there for her. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Barb73 Posted September 16, 2009 Share Posted September 16, 2009 Susan, My heart goes out to you and your Mom. I remember how very, very tired Bill was on Alimta. He would be OK for a couple of days after treatment, but would fall into a very heavy fatigue. It would last four to five days (at times) and he would bounce back, but it was always a concern whether, or not he would rebound. I am saying prayers for a better outcome for your Mom. Barbara Quote Link to comment Share on other sites More sharing options...
fillise Posted September 23, 2009 Author Share Posted September 23, 2009 THanks everyone. Mom did finally bounce back and was feeling pretty good. She went to the onc. yesterday her red bllod cells are down to 8 so she is headed over to the hospital tomorrow to get a couple of units of red blood cells. She was stunned because she has been feeling pretty good fort he last 4-5 days. After tomorrow she ought to have a serious boost in energy. Her onc is giving her an additional 2 weeks to get stronger and then giving her another treatment of Alimta on the 6th. He is going to cut the dosage back again. Right now he plans to scan her in early November to see what kind of response she is having. After that they will make the decision on whether to go forward or try something else. Susan Quote Link to comment Share on other sites More sharing options...
millie's girl Posted September 24, 2009 Share Posted September 24, 2009 I'm sure your presence makes things better for your mom. I pray all goes well Quote Link to comment Share on other sites More sharing options...
tkelley Posted September 24, 2009 Share Posted September 24, 2009 Hope she continues to do well with the lower dose Quote Link to comment Share on other sites More sharing options...
shineladysue Posted September 24, 2009 Share Posted September 24, 2009 Susan, this is really good news. Glad to hear that your mom is bouncing back. Maybe cutting back is the answer for her. Will be keeping her in my prayers. Keep us updated. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
jstdzy Posted September 24, 2009 Share Posted September 24, 2009 Susan, Glad to hear about Mom! Thanks for keeping us posted! Dana Quote Link to comment Share on other sites More sharing options...
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