ts Posted September 9, 2009 Share Posted September 9, 2009 Hi all, Today was the day, one year ago, that the ER folks told me to go see a pulmonary doc. Tomorrow is my second post treatment scan (it's only been 4 months since radiation ended, how'd this get scheduled so early?) - CT with contrast. Not looking forward to drinking that smoothie. Didn't sleep all that well last night, but swam this morning and worked today, including presenting to our board this evening. Well, kept me occupied. I see the onc a couple hours after the test. I'll report back tomorrow night. Fingers crossed. Quote Link to comment Share on other sites More sharing options...
jstdzy Posted September 9, 2009 Share Posted September 9, 2009 Everything crossed and prayers on the way!!! Dana Quote Link to comment Share on other sites More sharing options...
Maryanne Posted September 9, 2009 Share Posted September 9, 2009 Fingers crossed for good results! Maryanne Quote Link to comment Share on other sites More sharing options...
KatieB Posted September 9, 2009 Share Posted September 9, 2009 Everything crossed and I even said a little prayer for you too. Hugs, Quote Link to comment Share on other sites More sharing options...
Calintay Posted September 9, 2009 Share Posted September 9, 2009 My prayers added. Quote Link to comment Share on other sites More sharing options...
michellep Posted September 9, 2009 Share Posted September 9, 2009 You know me....all crossed too! You're strong...it will be good! Quote Link to comment Share on other sites More sharing options...
Patti B Posted September 9, 2009 Share Posted September 9, 2009 Fingers, toes, eyes, everything crossed for you!!! Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
ts Posted September 10, 2009 Author Share Posted September 10, 2009 Well, that was interesting. The doc came in and said my scan looked great - and that the radiologist said next scan 1 year. I asked about the small nodule in my right lung. He pulled up the report and, OOPS!, he had looked at my June scan. Today's show probably metatasic disease in the right lung and liver. 11 mm newbie in the liver and lots of little floaties in the right lung. Scheduling a liver biopsy. He says 99.8% sure right now, let's be 100% before proceeding. Likely Tarceva. Sorry to be the bum news of the day. Quote Link to comment Share on other sites More sharing options...
Patti B Posted September 10, 2009 Share Posted September 10, 2009 ts- I am so sorry. P@sses me off that they told you wrong the first time. Prayers coming your way for a successful biopsy and treatment plan. Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted September 10, 2009 Share Posted September 10, 2009 ts, I'm so sorry to read the news... will be watching for your update after your biopsy. Prayers are coming your way. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
ts Posted September 11, 2009 Author Share Posted September 11, 2009 Biopsy scheduled for next Tuesday morning. 10 day wait to see the doc. Then he goes on sabbatical! I'm sure he has earned it, but I've already had 3 docs leave permanently and now this. Is it me? Maybe I should take a couple of months off too. Quote Link to comment Share on other sites More sharing options...
Barbb Posted September 11, 2009 Share Posted September 11, 2009 You will be in my prayers. Barbb Quote Link to comment Share on other sites More sharing options...
Treebywater Posted September 11, 2009 Share Posted September 11, 2009 ts-- What a roller coaster these last few weeks. And your doc. is going on Sabbatical? Any chance you can get in to Dr. West or someone else affiliated with him since he's in the area? Mostly I wanted you to know that you can add me to the list of people pulling for you and praying for you. Quote Link to comment Share on other sites More sharing options...
ts Posted September 15, 2009 Author Share Posted September 15, 2009 Off to the hospital for liver biopsy. Hungry this a.m. since I can't eat. Think those good thoughts, and thank you. Quote Link to comment Share on other sites More sharing options...
jstdzy Posted September 15, 2009 Share Posted September 15, 2009 Well damn! My prayers are with you! Dana Quote Link to comment Share on other sites More sharing options...
ts Posted September 15, 2009 Author Share Posted September 15, 2009 Home, feeling okay - nice drugs for a few hours. Results and doc talk Friday afternoon. Quote Link to comment Share on other sites More sharing options...
jstdzy Posted September 16, 2009 Share Posted September 16, 2009 Thank Heavens! I'm glad you are doing okay! I'm going to keep praying anyway! (((hugs))) Dana Quote Link to comment Share on other sites More sharing options...
KatieB Posted September 17, 2009 Share Posted September 17, 2009 I'm glad you're ok from the procedure and I'll be keeping you in my prayers.... I'm still reeling over your last post about the Dr. telling you to come back in a year because he was reading the WRONG scan....what the heck is that? Not a little mistake at all...kind of like, let me give you a piece of candy before I punch you in the mouth. Jerk. (ok, just had to get that out there) I'll be praying for you and I hope you a speedy recovery after the biopsy. Keep us posted on what happenes Friday. Quote Link to comment Share on other sites More sharing options...
ts Posted September 19, 2009 Author Share Posted September 19, 2009 Not sure how to flag this as updated, but here we go. As expected, the liver nodule has the same markers as the original lung tumor. It's back. It's small and I don't have symptoms. I guess that is all good. I've got a script for Tarceva - will get the low down from insurance next week to see what is covered. Also getting a sample tested for the HGFR mutation. Never wished to be a mutant before. We went to the movies this evening, but I just kept falling asleep. I do have an appointment for a 2nd opinion, in two weeks. I need to call them Monday and see if starting Tarceva before would create any problems. Not really in a rush, but I guess if they want to scan in 8 weeks, it would be good to start close to the last scan. I have a team started for our Free to Breathe Walk - if you happen to be planning to be in Seattle November 9, I hope you will join us on team "No Jello". Good night all and thank you for all the prayers and good wishes Quote Link to comment Share on other sites More sharing options...
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