marisa Posted September 29, 2009 Share Posted September 29, 2009 Hi everyone. I used to post here but haven't in a long long time. I had surgery for Stage 1 lung cancer in November of 2000. Lately I have been feeling very poorly, headaches, loss of appetite, no energy, the list goes on. Yesterday I went to my doctor.. he ordered an xray, compared it to the one I had done last year which was clear and lo and behold there is a 4 centimetre tumour in the right lung. Off I go today to the lung specialist. I am trying to remain optimistic but in my heart I know it's back. More than likely a new cancer. Please will everyone pray for me. Quote Link to comment Share on other sites More sharing options...
Barbb Posted September 29, 2009 Share Posted September 29, 2009 Of course, my prayers and best wishes are on their way. Keep us updated when you can. Sorry you had to come back with this. Barbb Quote Link to comment Share on other sites More sharing options...
Muriel Posted September 29, 2009 Share Posted September 29, 2009 That happened to me, too. 18 mo. after surgery and chemo for a 1B tumor, another one was found in my other lung. Did the surgery and chemo again and have been fine ever since. My first surgery was in 2003 and the second one in 2004. Sending prayers, Muriel Quote Link to comment Share on other sites More sharing options...
Kasey Posted September 29, 2009 Share Posted September 29, 2009 Hi Marisa, I thnk you were just about making your last posts here as I was just beginning. I did see some of them though and went back and read the rest. So I remember you well. I sure hope this time it's caught early once again and that it's taken care of and you'll be on your way. Lots of new 'stuff' since 2000, Marisa, in the line of tx. Wishing you lots of luck Kasey Quote Link to comment Share on other sites More sharing options...
barbvh Posted September 30, 2009 Share Posted September 30, 2009 Marisa, My prayers are with you. I too hope that this has been caught early. Quote Link to comment Share on other sites More sharing options...
beatlemike Posted September 30, 2009 Share Posted September 30, 2009 That must come as a shock afte that long cancer free.My prayers are with you Marisa. Quote Link to comment Share on other sites More sharing options...
Bud Baker Posted September 30, 2009 Share Posted September 30, 2009 Best wishes, Marisa. Please let us know what you find out. Quote Link to comment Share on other sites More sharing options...
marisa Posted September 30, 2009 Author Share Posted September 30, 2009 thank you everyone for your replies. I went to the lung specialist this morning. I wasn't too fond of his bedside manner but the worst was the man who did the breathing test. He was so unfriendly and abrupt. I have an appointment for next Tuesday and then have to go back to the lung specialist the tuesday after that for the results. So here we go again! Quote Link to comment Share on other sites More sharing options...
millie's girl Posted September 30, 2009 Share Posted September 30, 2009 I am so sorry you are experiencing this uncertainty about whether or not you cancer has reared it's ugly head again. The waiting "to know" is often worse than actually receiving the diagnosis. I pray all goes well and the cancer has not returned. It's bad enough to be going such an ordeal, then to have healthcare professionals not show consideration and concern. THIS JUST BURNS ME UP. My mom experienced the same thing with the pulmonologist...WHAT IS WRONG WITH PEOPLE??? Anyway, I write to encourage you. Think positive because nothing has ever gotten accomplished by thinking negative. I tell myself this often too. Quote Link to comment Share on other sites More sharing options...
carolhg Posted September 30, 2009 Share Posted September 30, 2009 Marissa, I certainly will be praying for you!!! Carol Quote Link to comment Share on other sites More sharing options...
marisa Posted October 13, 2009 Author Share Posted October 13, 2009 Just got back from the lung specialist. He told me that it will be a malignant tumour. He doesn't seem too worried about the other smaller ones in there. On Monday I have to go to Westmead hospital for a biopsy on the big one to determine what type of cancer it is. I guess there are a few different types of lung cancers. He said where it is situated a bronchosophy will not reach it. He feels that it will be a new cancer not a met from the old one. He also said the tumour would have started 6 to 9 months ago. After the biopsy they are arranging a PET scan for the staging of it. He told me the PET scan will determine if it is operatable and if not it can be treated with chemo and radiation. I told him I would not opt for that because to me it is just a means to the end and I don't want my remaining time being sick from the treatment. I haven't fully decided but at this moment that's how I'm feeling. I'm scared to death and numb. Quote Link to comment Share on other sites More sharing options...
ts Posted October 13, 2009 Share Posted October 13, 2009 Marisa, So sorry to hear this news. A friend of mine was told her lung cancer was inoperable two years ago. She found another doctor. She had chemo, then surgery, then more chemo. She is happy with her current life, working, traveling, etc. If you choose to not have chemo and radiation, we are here to support that decision, but give yourself time to make that decision (there is never enough time to know if it is the right decision!) Hugs - and try not to let the week get to you - go do something fun or something. Quote Link to comment Share on other sites More sharing options...
RandyW Posted October 13, 2009 Share Posted October 13, 2009 what about a second opinion!!?? Hang in there MArisa and sayin a prayer for better news!!! Quote Link to comment Share on other sites More sharing options...
Barb73 Posted October 13, 2009 Share Posted October 13, 2009 Marisa, I am sorry that you are going through this. My respect goes out to you on any decision you make, but because of experience, my instincts tell me to encourage a second opinion (most definitely). In the meanwhile, try to keep as positive in thought as you are able. The week will pass before you realize it. Barbara Quote Link to comment Share on other sites More sharing options...
lilyjohn Posted October 29, 2009 Share Posted October 29, 2009 I spoke to Marisa this afternoon. She has been told that she has NSCLC and mets to the brain. This came from her general practisioner. She was due to see her oncologist either today or tomorrow. I am sure once she has all of the updated information she will let us know. She is really having a rough time with this please say extra prayerd for her tonight. Marisa you know that you are in my thoughts. Anytime you want to call again please do. I will be praying that things are better than you feel they are right now. Quote Link to comment Share on other sites More sharing options...
RandyW Posted October 29, 2009 Share Posted October 29, 2009 thoughts and prayers and remember Cyber knife is topic item in this case I should think!!! Quote Link to comment Share on other sites More sharing options...
Flyman35 Posted October 29, 2009 Share Posted October 29, 2009 My thoughts and prayers are with you Marisa. Denise Quote Link to comment Share on other sites More sharing options...
beatlemike Posted October 29, 2009 Share Posted October 29, 2009 Prayer being said for you Marisa! Quote Link to comment Share on other sites More sharing options...
jaminkw Posted October 29, 2009 Share Posted October 29, 2009 Marisa, I'm new here since your first cancer. I wanted to come in and say how devastating I imagine it must be after all these years. I was devastated when my cancer progressed after a year. I agree a second opinion, if possible, just to find more survivior-friendly doctors. Also, believe me, my RN daughter and I were dreading my response to chemo since I'm a real chucker when it comes to anesthesias and pain meds. They have made great improvement with chemo and anti-med drugs. They are not always a cake-walk but usually not the horrow they used to be years ago. Sending much positive healing energy your way. Judy in Key West Quote Link to comment Share on other sites More sharing options...
Patti B Posted October 29, 2009 Share Posted October 29, 2009 (((Marissa))) I am so sorry you are having to deal with this again. My thoughts are with you. I agree a second opinion is ALWAYS a good thing to do. Whatever your decision is, though, we will support you 100%. Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
fillise Posted October 29, 2009 Share Posted October 29, 2009 Marisa, I am also new since your first bough with LC. I'm sorry you have to be back here and sorry the cancer has returned. I agree that a second opinion is essential. And do research on your options. There are many here who are long time survivors of Stage IV LC. The decision to treat or not to treat is always up to you, but you should know that it is not necessarily a complete trade-off between quality and quantity of life. Many undergoing chemo and/or radiation are able to maintain a good quality of life. You can go over the GRACE www.cancergrace.org for the latest information on treatments. You can also ask the oncologists there questions. They are great about responding and while they can't give medical advice, they can talk about the treatment options and what to expect from them. Whatever decision you make, we will support you. Susan Quote Link to comment Share on other sites More sharing options...
lilyjohn Posted October 30, 2009 Share Posted October 30, 2009 I have to tell you that I am very concerned about Mirisa. We spoke for a few minutes the other night. She told me that she had to go lay down because she had a bad headache. I haven't heard from her sense. I have sent her 2 pms voicing my concern and still nothing. She was supposed to see her oncologist either that day or the next. Please everyone keep her in your prayers. Marisa if you read this please let us know how you are doing. We are all waiting to hear. I know she has a husband but not sure if he knows much about the board or would know to post an update if she is unable. Quote Link to comment Share on other sites More sharing options...
marisa Posted November 2, 2009 Author Share Posted November 2, 2009 OfficiAL DIFdnoi today. Sorry can' type uncordinated. Stage 4 with mets to brain. ct scan fridayfor scan of head. then off tp chemotthrrapist and oncologixst nex r week. was told if i cjose no tretmrn i would be ded in 6 monyhd Quote Link to comment Share on other sites More sharing options...
RandyW Posted November 2, 2009 Share Posted November 2, 2009 Marissa Just want Ya t know I am pulling for YA whatsoever decision is and Yes it is YOUR decision!! I know this is a hard time tight now and You are in my thoughts and prayers.. for what it is worth you may want to check out some of Dean Carl thoughts on no treatments!He was the creator f that forum and a wise man to boot with a ton of courage and inspiration to share with us!!! If i can help in any small way please let me know... Hugs and Prayers Randy IN NC!!! Quote Link to comment Share on other sites More sharing options...
michellep Posted November 2, 2009 Share Posted November 2, 2009 Marisa.....my thoughts and prayers are with you. Whether to treat or not is your personal choice and we all respect that. Please come back and let us know how you're doing. ALL OF US CARE! ((((HUGS)))) Quote Link to comment Share on other sites More sharing options...
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