dahknee Posted December 16, 2009 Share Posted December 16, 2009 Oct. 17th my wife took me to the E.R. My O2 sat was down to 47%, I was on 6 liters oxy., I had a fever of 104. The docs sedated me, I guess I was out of control, they did a bronchoscopy and found pneumonia and blood in my good lung. They tried to identify the reason and treatment of the blood but couldn't locally so they sent it to Mayo. I had some form of infection and they put me on an IV antibiotic for 2 weeks. everytime they tried to bring me out of the sedation I was nuts so they would sedate me again. After a couple weeks the doc took my wife aside and told her there wasn't anything more they could do and they were going to take me off the ventilator.Mary called a friend of ours who is a doctor and an addiction specialist and he came and ran some tests and determined I had become addicted to the medications they were using to sedate me and keep me calm he talk to them and they did a trach on me. I stayed alive. then they tried to get me off of the medications and found I had ICU psycosis. So they continued to keep me sedated. Meanwhile they kept trying to get me off the drugs and get me to level off. I guess at some point I pulled out the feeding tube and the trach tube so the nurses came in and called the doc to see if they wanted to retrach me and he said to go ahead but the nurse noticed I was starting to respond nomally so they waited for the doc to get there and they decided to try to unsedate me again. I finally responded more normally and they started getting me back amongst the living. I was in ICU for 31 days of which I remember nothing. I came to the sunday before thanksgiving and was totally clueless. Mary started filling me in on what had been going on. A few days later I was put in a rehab hospital beacuse I couldn't walk, or move my arms and could barely talk. I got out yesterday, my lungs are now both quite damaged and just standing up and sitting back down my O2 sats drop to 75 or 80 % even when I'm on oxygen. I am waliking with a walker I'm learning to write again, I know how it's just that my hands don't work very well so it's barely legible. Other than the lung damage I should make a full recovery. I guess you could say I had a bad fall, Oct. Nov,. Dec. Hopefully I'll spring back soon. Quote Link to comment Share on other sites More sharing options...
jstdzy Posted December 16, 2009 Share Posted December 16, 2009 Well what a mess! Thank God you are okay! I think that was one HECK of a bad fall! Sending prayers for your continued health and may you regain your strength quickly! Dana Quote Link to comment Share on other sites More sharing options...
paulette3 Posted December 16, 2009 Share Posted December 16, 2009 I'm so glad you're okay but what a wild ride you had. Isn't it a blessing that we don't remember some of the bad times? You have my prayers for continuted recovery. Paulette Quote Link to comment Share on other sites More sharing options...
fillise Posted December 16, 2009 Share Posted December 16, 2009 Yes--that was indeed a bad fall. Thank goodness you fought your way through it and are here with us now. Keep us posted on your progress as you continue to heal. Susan Quote Link to comment Share on other sites More sharing options...
Flyman35 Posted December 16, 2009 Share Posted December 16, 2009 I was just thinking about you the other day as I hadn't seen you post in a while. I am so glad you stayed in the land of the living. Prayers for continued improvement. Denise Quote Link to comment Share on other sites More sharing options...
recce101 Posted December 17, 2009 Share Posted December 17, 2009 I can believe it, I really can. Overmedication can be deadly and is more common than we realize. Sure glad Mary called that doctor friend!! Ned Quote Link to comment Share on other sites More sharing options...
Bud Baker Posted December 17, 2009 Share Posted December 17, 2009 Dang, sorry you had to go through all this. We've been wondering where you were. Welcome back, and here's hoping you continue to recover and improve. Quote Link to comment Share on other sites More sharing options...
Patti B Posted December 17, 2009 Share Posted December 17, 2009 Wow!!! What an experience. Thanks God Mary knew someone to call. Hope you continue to get better - what a Christmas gift you and Mary have been given this year - you ae still together!! Hugs -Patti B. Quote Link to comment Share on other sites More sharing options...
beatlemike Posted December 17, 2009 Share Posted December 17, 2009 Welcome back Donnie. I hope things start going better for you. Sounds like that was a rough haul. Quote Link to comment Share on other sites More sharing options...
jaminkw Posted December 17, 2009 Share Posted December 17, 2009 Donny, the subject of your post suggests you came through with your sense of humor and flair for words intact. But what a horrible horrible experience. And poor Mary. She must have been frantic about your recovery. So glad you came back to fill us in on your absence. We did miss you. That you know. And to think I didn't get in all day yesterday and didn't see this until this morning. O.k. two accounted for Donny and Mike. Who else is missing? Marissa I know but who else. Merry Christmas Donny and Mary with many more to come. Judy in Key West Quote Link to comment Share on other sites More sharing options...
Kasey Posted December 17, 2009 Share Posted December 17, 2009 Boy, have you been missed by all of us, Donny. I sure hope your path to recovery doe not take very long. What a time of you've had. Sorry just doesn't cover it, ya know? Let's hope it is now all behind you and little by little you progress and are feeling well. Now........next time you are away so long, how about having somebody let us know so some of us (ME) don't have more hair turn gray worrying!!! But reallly I know your poor wife had no time to worry over us. I'm sending you a great bug hug and give her one from me too. Kasey Quote Link to comment Share on other sites More sharing options...
Calintay Posted January 4, 2010 Share Posted January 4, 2010 Donny, Praying that your doing good and recovering from that horrible "fall". Update us when you can. Many thoughts and prayers Quote Link to comment Share on other sites More sharing options...
Maryanne Posted January 4, 2010 Share Posted January 4, 2010 Wow what a story. Welsome back to the living...So glad you finally pulled out of that drug induced fog. I hope you have a speedy recovery! Maryanne Quote Link to comment Share on other sites More sharing options...
jaminkw Posted January 5, 2010 Share Posted January 5, 2010 Happy New Year Donny. Judy in Key West Quote Link to comment Share on other sites More sharing options...
Nick C Posted January 5, 2010 Share Posted January 5, 2010 Spring is around the corner...spring back you shall. Good luck! Quote Link to comment Share on other sites More sharing options...
dahknee Posted February 26, 2010 Author Share Posted February 26, 2010 I finally looked up what the pulmo doc told me I had when I was in the hospital last fall. This is what I found: Pneumocystis carinii pneumonia Overview Pneumocystis carinii pneumonia (PCP) is a fungal infection of the lungs. Symptoms PCP in those with AIDS usually develops slowly and is less severe. People with PCP who do not have AIDS usually get sick faster and are more acutely ill. Symptoms include: Cough -- often mild and dry Fever Rapid breathing Shortness of breath -- especially with activity (exertion) Treatment The main treatment for PCP is with drugs that kill the bacteria (antimicrobial therapy). Antibiotics can be given by mouth (orally) or through a vein (intravenous), depending on the severity of the illness. People with low oxygen levels and moderate to severe PCP often take corticosteroids as well. Causes PCP is a pneumonia caused by the fungal organism Pneumocystis carinii (now renamed Pneumocystis jiroveci). This organism is common in the environment and does not cause illness in healthy people. However, Pneumocystis carinii can cause a lung infection in in people with a weakened immune system due to any of the following conditions: Cancer Chronic use of corticosteroids or other medications that affect the immune system HIV/AIDS Solid organ or bone marrow transplant PCP was a relatively rare infection before the AIDS epidemic. Before the use of preventive antibiotics for PCP, up to 70% of people in the U.S. with advanced AIDS would develop PCP. Tests & diagnosis Blood gases Bronchoscopy (with lavage) Lung biopsy X-ray of the chest Sputum induction (to detect Pneumocystis carinii) Prognosis Pneumocystis carinii pneumonia can be life-threatening, and respiratory failure can lead to death. People with this condition need early and effective treatment. For moderate to severe PCP in people with AIDS, the use of corticosteroids has decreased mortality. Prevention Preventive therapy is recommended for: AIDS patients with CD4 counts below 200 People on chronic high-dose corticosteroids People who have had previous episodes of PCP Complications Pleural effusion (extremely rare) Pneumothorax Respiratory failure (may require mechanical ventilation) Quote Link to comment Share on other sites More sharing options...
jaminkw Posted February 26, 2010 Share Posted February 26, 2010 I'm curious Donny, did they test for what type of pneumonia you had after complications or is that standard. We just usually hear "you have pneumonia" not a type of pneumonia. My dx started with pneumonia with a pleural effusion and I had been working to eliminate fungus in my orchid room. The same year, we had to have the people who put our AC in back. They'd screwed up the duct work which filled up with water. Sounds like I would have been ripe for this since I live in a humid climate anyway. Even tho the pleural effusion is rare with this pneumonia, the doctors didn't understand why I got better on the antibiotics. If the pe had been from the cancer, they would have expected it to come right back and it didn't. Good info, thanks. Judy Quote Link to comment Share on other sites More sharing options...
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