sueliz61 Posted July 25, 2010 Share Posted July 25, 2010 Hi everyone. The past week has been a hard one. Kurt's fatigue has actually gotten worse and it is breaking my heart. He is beginning to get panic attacks, is sob and is wheezing. His legs are not retaining fluid and the dr says his lungs sound clear, so not sure what it is about. He needs to sleep propped (?) up or he feels like he can't breath. His red blood count is just above the line for a transfusion so that might explain the sob. He did not have his chemo treatment on Thursday because of his blood counts and kidney function but will be getting a petscan on Tuesday. Then we can decide how to proceed. Onc originally was going to have him get a ct scan but wants to see better clarification and he can't have contrast. I did mange to get him out this morning to watch the "wharf to wharf" race. Annual event that we have always watched with SJSU Alumni. He enjoyed himself but is "out for the count" now. I am on pins and needles waiting until we get the results of the scan - either Wednesday or Thursday. Some of his symptoms remind me of how he was last year before dx of NHL. Onc said that he is not too concerned about recurrence because he is on chemo drugs now. But he also said that there was "no way Kurt's lung nodes would be cancer, because no one has such bad luck". At the time I told him that I wasn't superstitious but that he should NOT say that and I was right. I have had a few weepy days, but he is so stoic and even tempered I don't know how he does it. I asked him last night if he ever feels like crying and he said -no. what good would it do. I told him that it helps me. Maybe the anxiety pills help keep him in a somewhat soothing place. I will keep you posted and let you know the results of the scan. Please send positive thought and waves this way. Sue Quote Link to comment Share on other sites More sharing options...
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