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New Member: Frank Clements - Pancoast Tumor Questions


FrankClem50

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Hi Everyone,

I'd like to introduce myself. My name is Frank Clements. I'm a little over two year survivor of lung cancer (Pancoast). While I have been blessed and have been able to have surgery twice, I'm wondering if I should be researching for an oncologist in the Boston area that deals strictly with this type of tumor. I'm also wondering if there's a section on here that deals solely with the type of tumor I have.

I hope to meet and hear from many of you here who are in the same predictament as I am.

Stay healthy,

-Frank

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Hi Frank,

Welcome and congrats on your 2 years! I guess depending on when you start the clock, this is my 2 year anniversary (first ER visit!)

If you are looking for medical discussions on pancoast tumors, I'd like to refer you to http://cancergrace.org/ There is quite a bit of good info there. The site is being overhauled to make it easier to navigate, but there was a recent question on pancoast tumors and links were provided to a series of threads and posts. Here's a start:

http://cancergrace.org/lung/category/lu ... st-tumors/

If you post a question, someone with better skills will likely point you in the right direction. Or you can just look around the site for awhile.

Here, we can provide a lot of support and we share it across the board. You'll get input from other survivors, caregivers, and advocates. I don't think there are really specialist for pancoast tumors - just too few patients to make it a subset? But someone else may have different information.

Stephanie

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Thank you, everyone. I'm having a hard time making my way around this site, such as being able to respond individually. I do appreciate the warm welcome(s) and the responses from you all. Just as soon as I can figure out what I'm doing (hahaha) and get a better grip on this particular site, I'll respond back to your responses.

Kasey, I'm not sure where you responded, as I didn't get anything from you. I'm sorry for that.

Thanks everyone!

-F

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Hi, Frank, welcome!

There are a couple of ways to respond to individuals. One is the way you just posted, using the Post Reply button at the top or bottom of the message group/thread, and putting the person's name or username in the first paragraph of the message. Use that method if you think there's any chance that any others might gain from reading your reply.

The other way to contact an individual is with a PM (Private Message). If you want to respond directly to Kasey, for example, click the PM button at the bottom of her message. No one else will see the message. Aloha,

Ned

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Hello Frank! I finally got to use the computer, missed your post until now because this is a big week for my husband--football drafts!!!!!!!!!! so he' been on the computer a lot.

Not only am I a long term Pancoast Tumor survivor but I was raised in Boston.

I was very fortunate to see my Onocologist who also taught other doctors at the Univ of Minn.

Click below and you can read my story. A while back we had a little group going here of Pancoast Tumor survivors.

What kind of treatment have you had so far besides surgery?

Keep us posted.

Donna G

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  • 4 weeks later...

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