Treebywater Posted February 11, 2011 Share Posted February 11, 2011 Some of you know that partway through my last pregnancy (I have three sweet girlies now!) I was diagnosed with what is known as a carotid paraganglioma or a carotid body tumor. Basically that's a tumor on my carotid artery. Now that baby is here it's time to get that taken care of, so this Saturday we're headed to the NIH to be part of a clinical study and to have the tumor surgically removed. Because this happened to me at a relatively young age there is a good possibility that it was caused by a genetic mutation. If that's the case I may be dealing with a paraganglioma syndrome and possibly recurrence/metastasis further down the line. We'll find out the full story as a result of this study and the tests that I'll have. Our big girls will be staying here with family and our baby girl (2 months old) will be joining us. I would love it if you all would be willing to pray for me. I sure didn't expect this, but I think we've found the right people to help us deal with the issue at NIH. Quote Link to comment Share on other sites More sharing options...
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