Treebywater Posted February 11, 2011 Share Posted February 11, 2011 Some of you know that partway through my last pregnancy (I have three sweet girlies now!) I was diagnosed with what is known as a carotid paraganglioma or a carotid body tumor. Basically that's a tumor on my carotid artery. Now that baby is here it's time to get that taken care of, so this Saturday we're headed to the NIH to be part of a clinical study and to have the tumor surgically removed. Because this happened to me at a relatively young age there is a good possibility that it was caused by a genetic mutation. If that's the case I may be dealing with a paraganglioma syndrome and possibly recurrence/metastasis further down the line. We'll find out the full story as a result of this study and the tests that I'll have. Our big girls will be staying here with family and our baby girl (2 months old) will be joining us. I would love it if you all would be willing to pray for me. I sure didn't expect this, but I think we've found the right people to help us deal with the issue at NIH. Quote Link to comment Share on other sites More sharing options...
Libby Posted February 11, 2011 Share Posted February 11, 2011 So sorry to hear this. I will keep you in my thoughts and prayers. Think positive and keep us posted. Libby Quote Link to comment Share on other sites More sharing options...
ts Posted February 11, 2011 Share Posted February 11, 2011 You take care and let us do the heavy lifting. Quote Link to comment Share on other sites More sharing options...
RandyW Posted February 11, 2011 Share Posted February 11, 2011 you got it!! sounds like you have a top notch crew fixing this !! Quote Link to comment Share on other sites More sharing options...
ginnyde Posted February 11, 2011 Share Posted February 11, 2011 Val, many prayers for good news, please keep us posted we are all thinking of you. Hope it is just a 'visitor' tumor and not genetic. Quote Link to comment Share on other sites More sharing options...
Annette Posted February 11, 2011 Share Posted February 11, 2011 I think we can help - I'll pray - but I'm also very good at worrying - so you can relax a little and I'll do some of the worrying. I'm sure everyone here will be looking forward to hearing how well things turn out! Annette Quote Link to comment Share on other sites More sharing options...
Kasey Posted February 11, 2011 Share Posted February 11, 2011 Prayers have been headed your way ever since Fred and I first heard about Tomas. You ARE headed to the right place. If ANYONE ANYWHERE can do what needs to be done the best it can be done it is NIH. We will wait to hear from you and take it from there. In the meantime - I know you know all about taking deep breaths, right? And you know everyone here is great at carrying each others' worries. Recall the carrying the pork chop? Well, I've got yours, dear girl! Love, Kasey Quote Link to comment Share on other sites More sharing options...
Ry Posted February 11, 2011 Share Posted February 11, 2011 Sending good thoughts and prayers your way. Quote Link to comment Share on other sites More sharing options...
dianew Posted February 11, 2011 Share Posted February 11, 2011 Will definitely be praying for you. Diane Quote Link to comment Share on other sites More sharing options...
jaminkw Posted February 11, 2011 Share Posted February 11, 2011 Sending lots of healing thoughts your way. Please keep us posted. Judy in KW Quote Link to comment Share on other sites More sharing options...
Geri Posted February 12, 2011 Share Posted February 12, 2011 Dear Val, You have every right to ask us to pray for you...........think how many times you've prayed and worried for us. Let us take the load and you concentrate on your recovery, You have my thoughts and prayers. Geri Quote Link to comment Share on other sites More sharing options...
KatieB Posted February 12, 2011 Share Posted February 12, 2011 You know I've had you on my prayer list for a long time now...will be doing some extra ones too....and thinking about you the whole time. Keep us posted if you can...and know that we LOVE you and we are all praying for encouraging news and your swift recovery. ((hugs)) Quote Link to comment Share on other sites More sharing options...
chloesmom Posted February 13, 2011 Share Posted February 13, 2011 Sorry to hear this! Hoping for the very best outcome for you! Cindy Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted February 20, 2011 Share Posted February 20, 2011 More prayers heading up now! Quote Link to comment Share on other sites More sharing options...
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