jaminkw Posted March 16, 2011 Share Posted March 16, 2011 Wish I could be more upbeat but I can't seem to catch a break. It's been over a year since I heard remission and since last May can't even manage a stable. I'd be happy with stable. Anyway, it is what it is, the "p" word. My onc seems as frustrated as I am. She called the radiologist and asked if the progression was slight; he said no. She tried to get me into a study. She said there are a lot of great drugs coming along out there. They won't take me because there is not discrete tumor, making it impossible to definitively measure progress/shrinkage. She said the radiologist took a section of my "thickening" and measured it comparing it to the last scan for her. That was 1.something and this was 3.something. What I heard her say was it doubled. It figures with how I've been feeling bloated even when I'm hungry. And when I try to eat, I eat just a little and am full. She said there is fluid build up too and the fluid and thickening are compressing my stomach so I won't be able to eat as much. But I'm not losing weight, probably because of the fluid. It all sounds awful but it's not that bad. I still look good and feel pretty darn well. She said o.k. to my staying on Tarceva after I told her if she changed my treatment I was taking a break. I had already made up my mind to that. Scan again in 3 mos so I need to get prepared to go back on chemo then, sigh. I'm sad and scared that 3 yrs in, I'm turning bad. Thanks for listening. Judy in KW Quote Link to comment Share on other sites More sharing options...
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