Fay A. Posted January 17, 2004 Posted January 17, 2004 don't have the PET Scan report yet, so still don't know what is what. The surgeon did mention that there is a possibility that the problems I am experiencing now may not be related to the cancer, but rather to the Polycystic Kidney and Liver Disease (PKD). I had hoped that I would not develop the progressively fatal form of the disease, but recent scans have shown that is probably not going to happen. Those organs are filled with cysts and distorted in both size and function. I know that when they become too big they are sometimes removed (the kidneys), and folks go on dialysis, or if they're lucky they receive a transplant. I have no idea what can be done for the liver, though. Darn those renegade nephrons... So I'll wait until Tuesday to learn the results of the PET scan. The good news is that the CT scan did not show any big ugly tumors any place. And I'm holding on to THAT result with both hands. Just a bunch of fluid that may or may not be significant. Waiting for the PET scan results on that one, too. I wonder if RFA on the liver would work if you're dealing with fluid filled cysts and not solid tumors? Quote
Donna G Posted January 17, 2004 Posted January 17, 2004 I have a friend with PKD . He is on a very strick diet, no potasium, very low protein, no salt, etc etc. He will need a transplant , for now following the diet and so far he has gotten away without dialysis. His kids have tested to see if they could be donors , but also found they carry the gene. Keep us posted. Donna G Quote
cathy Posted January 17, 2004 Posted January 17, 2004 Fay, I just want you to know I will be thinking about you and hoping for the best...... Quote
Ry Posted January 17, 2004 Posted January 17, 2004 We're here for you Fay, whatever you need. Keep us posted. Quote
DeanCarl Posted January 17, 2004 Posted January 17, 2004 Fay, Paying that whatever comes down the pike can be delt with. Dean Quote
ginnyde Posted January 17, 2004 Posted January 17, 2004 Boy, Fay, if it is not one thing it is another. Your plate is way too full. You need a break and some very good news. We are all here for you. Love, Ginny Quote
J.C. Posted January 17, 2004 Posted January 17, 2004 Fay, Prayers going for the best resulys possible. Hugs J.C. Quote
MO_Sugar Posted January 17, 2004 Posted January 17, 2004 Prayers for good results coming your way! God Bless, MO Quote
bobmc Posted January 17, 2004 Posted January 17, 2004 Geez Fay, Hang in there!! , You got so much on your plate, Praying real hard for ya. Gods got a plan for us all girl, thanks for being the inspiration that you are!! (((( HUGS )))))) and lots of love to ya, Fay!! God bless and stay well Bobmc- NSCLC- stageIIB- left pneumonectomy- 5/2/01 MRI's taken 12/18/03 - 2 brain mets found- named em Frick & Frack PET taken 1/5 - hot spot in mediastinum May be cancer?? "Absolutely insist on enjoying life today!" Quote
SandyS Posted January 17, 2004 Posted January 17, 2004 "mention" "possibility" "may not be" Those are your words Hon. Don't get ahead of yourself here. Praying and looking for your post on Tuesday.... Hugs and prayers, SandyS Quote
EileenM Posted January 17, 2004 Posted January 17, 2004 Fay My thoughts and prayers are with you. I hope you receive good news on Tuesday. EileenM Quote
Nancy O. Posted January 17, 2004 Posted January 17, 2004 Hi Fay, my thoughts and prayers are with you also. Hope to hear good news from you soon. Nancy O. Quote
Snowflake Posted January 17, 2004 Posted January 17, 2004 Fay, Sure hope the PKD isn't a "for real" thing. I'm all for clear scans and a "gee, that was just a smudge on the camera lens"! Hold on with both hands, but reach if you need a helping hand.. All my best, Becky Quote
Dominic Posted January 17, 2004 Posted January 17, 2004 Fay, Sending you love and best wishes from Toronto. Dominic Quote
gail Posted January 18, 2004 Posted January 18, 2004 Can I say all that sucks!!!! Do something fun for a few days. Root for my EAGLES !!!! gail Quote
Fay Posted January 18, 2004 Posted January 18, 2004 From one "Fay" to another, I'm sending prayers for good news. Faylene Quote
Tiny Posted January 18, 2004 Posted January 18, 2004 Fay- Praying that the tide turns in YOUR favor. Keep us posted and know how much we care what happens with you. Hugs and blessings. Quote
TBone Posted January 18, 2004 Posted January 18, 2004 Hi Fay, I just wanted you to know that you are in a whole bunch of prayers down in Georgia.We are all pulling for you big time.I think I hear good news coming already.TBone and family Quote
-Cheryl- Posted January 18, 2004 Posted January 18, 2004 Fay, What a fighter you are! You have not only met every challenge you've faced with courage and strength, but also with faith and a positive attitude. I will say an extra prayer that all scans are good. Hang on to that determination, you will get through this too my dear! Cheryl Quote
karen335 Posted January 18, 2004 Posted January 18, 2004 Fay, Special prayers for good clean results of the PET scan. You've come a long way and are a survivor, hang in there and we're here for you. Prayers and Blessings for you... Gentle hugs Karen Quote
Lisa O Posted January 18, 2004 Posted January 18, 2004 Enough is enough for you already!!! I am praying you only have to slaughter one beast at a time. Lisa Quote
Connie B Posted January 18, 2004 Posted January 18, 2004 Hey Fay?????? (((((((((((((((((((((((((FAY)))))))))))))))))))) Just wanted to send my friend a HUG and let her know I will be looking for your Tuesday night post in the GOOD NEWS FORUM!! MY PRAYERS GO UP EACH AND EVERY DAY AND NIGHT! I do't want to skip a beat!! OXOXOXOXOXOXOXOXOXOX Con Quote
mhutch1366 Posted January 20, 2004 Posted January 20, 2004 ((((((((((((((((((((((((((Fay)))))))))))))))))))))))))))))) Praying for all good news for you. XOXOX MaryAnn Quote
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