DebbieBetsch Posted September 18, 2012 Share Posted September 18, 2012 Husband was diagnosed with stage 3 laryngeal cancer in Nov 2010. When this was found, they also found 3 nodules in his lungs, but said they were non-cancerous and they would watch them. He underwent chemoradiation therapy for the Laryngeal and it was completely cured. However, by Dec 2011 we were still being told that CT scans still showed the nodules in his lungs but they werent cancer. My husband was drowing in his own fluids, coughing constantly and fatigued. So we were referred to Pulmonologist for bronchoscopy. Bronch results were stage 4 NSCLC, is is squamous cell and by the time the bronch was finally done it was positive in both lungs. We saw a radiologist, no radiation was available because cancer primarily located in bronci and previous radiation made it too risky to repeat. Referred to surgeon, no surgery available. Cancer too advanced. He started chemo with carboplatin & taxol. After 20 treatments, the cancer showed shrinkage, but there are now 4 new spots. Oncologist did not feel they were cancer and wanted to watch these spots too. I went to pulmonologist against Oncologist wishes and another bronchoscopy was done. Low & behold...these 4 new spots are cancer too. And now it is in his lymph nodes & diaphragm too. He is set to start treatment tomorrow with Navelbine. A new PET/CT scan was done yesterday as he is showing symptoms of metastasis to liver & possibly spine. I am concerned about this new treatment starting. In reading about the drug, it is stated that alcohol consumption should stop. My husband has been a heavy beer drinker for over 32 years and his doc knows this. It is nothing for him to drink 12-18 beers a day and is not going to stop. He is still also smoking about 1/2 pack a day. Doc knows this too. His onco has been very evasive when talking to us, so I have done a lot of reading and always have lots of questions regarding his treatments. Doc acts like he is intimidated by my questioning. He has been wrong about diagnoses twice now, and I no longer trust him. Although my husband does and wants to continue working with him. My husbands left lung is almost completely blocked by the cancer and he is having a lot of side effects of previous treatments. It has only been 60 days since he finished the last cycle and I am concerned that this new cycle that starts tomorrow will be too much for him, especially since he is not cooperating with alcohol & cigarettes. His doctor will not be honest about prognosis. Hubby is still working full time and hopes to work thru this treatment also. He won't stop because of health insurance. How do I get this Oncologist to be completely honest with me? I don't expect any miracles, too late for that, but it sure would be nice to know what to expect and to hear it from him instead of reading it on message boards. Quote Link to comment Share on other sites More sharing options...
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