Janet B Posted May 1, 2013 Share Posted May 1, 2013 After several back and forths between Yale and Boston, lots of questions and input from family and friends I chose to give the Clinical Trial by ARIAD - AP26113 a try. The Tarceva which I have been on for 6 years was no longer keeping things at bay, this new drug is considered a "second generation Tarceva", meant to target the mutation of my mutation. The scariest part was going off Tarceva, it has been my "buddy" for over 6 years, and after three weeks off of it, I still wake up in a panic that I haven't taken it! Old habits die hard! I had several false starts with the trial, my Lipase numbers kept being too high, I ended up in the hospital for 2 days with Pericarditis, and finally the Trial company didn't like my CT scan reading from the emergency room, so I had to have another. I finally started last Thursday. The Trial drug is another pill, I take 6 a day. So far the only side effect is diarrhea, which I lived with through Tarceva, so no big deal. Is anyone else on this forum on this trial? Would love to hear from you! Peace Janet Quote Link to comment Share on other sites More sharing options...
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