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Mom was diagnosed 20 months ago with NSCLC Stage IV


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Hi Everyone. My name is Kim. My mom was diagnosed with Stage IV Lung Cancer and on 9/27/11 was her first chemo treatment. The following day I delivered my twins 9/28/11. We had so many plans that we were going to do together and they all came to a halt. Our hearts were broken and I just thought we were in a nightmare that I couldn't wake up from. She did well her first three month of Chemo with carboplaxin. She just had no energy and had some nausea. She went for her PET scan 3 months later to find out the chemo really didn't work, so they gave her an option to take a different kind of chemo that was every other week for 3 months again we kept going through each cycle of the chemo not working. The last time the CHEMO she had made her so weak and sick, that she couldn't get off the couch somedays. It was just horrible watching her like this. She received the worse news after the PET scan in March 2013, that she has multiple tumors in her right and left lung and she has new spots on her lymph nodes and he sees it going into her glands in her kidneys. He told her to go home and decide if she wanted to go further with her treatment, his personal opinion was that she lost too much weight and was way to weak to take any further treatment. Well, she took a month off of chemo and got some strength back, so she decided 2 weeks ago to start with treatment again. I'm not sure of the name of her new chemo, but it's every 2 weeks for 70 minutes long. After the steroids wear off she is so weak and can't do much. If someone doesn't help her get dress she won't get herself up off the recliner. She is now second guessing if she made the right decision. She has been very depressed, because she just wants to be there for me and she can't. I understand and bring my twins to see her, but I'm so sad when I leave her, because she is so weak. I've been trying to see if she will take some sort of clinical treatment or anything to give her a little better quality of life. I want her to enjoy every second, minute, hour and days ahead. The cough has gotten worse and now she has a rattling in her chest. She also is complaining about her mouth being sore. If anyone could give me some advice it would be greatly appreciated. Thank you for listening.

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Gosh it's so sad how much destruction cancer has on people's lives. But it's also positive that your mom has the determination to push on and be there for you.

My mom literally had 6 months after diagnosis and sadly left us two days ago. From what I've learnt, it is vital to be as mentally positive no matter what happens, and then to challenge every odd and eat, drink as much as she can, although she will not at all feel like it.

My mummy would literally throw up the moment any solid food touches her mouth. But she survived on fluids, drips and nutrition supplements all administered IV. Gradually she lost weight and her body went into a spiral of being too weak to eat and thereby shutting down into a very slow mode of tiredness and sleep.

Please do your very best to motivate her regarding her choice and whatever it is, I say never back down until she is personally happy with her efforts.

Most importantly, trust in God and nothing else. You will see results.

Sent from my iPhone using Tapatalk

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I'm so sorry for your loss. I can't imagine the pain you are going through. Thank you so much for responding to my post. My mom keeps pushing herself and wanting to do more treatment, but the treatment makes her so weak. We stand by any decision she makes, even though some decisions are very hard. She is my best friend and can't imagine one day without her, even though I know I will have to face that one day.

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Some people can fly through treatment with no side effects at all and others suffer a lot :( I wish the best for your mom and I think she has a wonderful daughter. Please keep us updated ((hugs))

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That's the best thing to do...stand by her decision even if later you feel it was a bad decision etc. Also relax in the knowledge that praying about every decision is certainly the best way to go about it.

I wish her and her best friend the very best no matter what you decide :) keep well.

Sent from my iPhone using Tapatalk

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I just wanted to welcome you, although I’m very sorry you have reason to be here. I am a patient, not a caregiver, so I can only try to imagine what it must be like to see someone you love go through this. It must be terribly difficult for your mom, wanting to be well and able to enjoy her new grandchildren but having to deal with the side effects of the treatments. I believe outlook is so important to quality of life, and it can be a very tough thing to hang on to when you are struggling with this. I am very glad she has you. I will be keeping you and your mom in my thoughts,

Diane

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  • 1 month later...

Thank you all for your responces. I'm so glad I found such a great support team. My mom took her third round of this different chemo. I'm not sure of the name, but it really knocked her down. She hasn't been able to get out of bed or off her recliner. Her regular doctor gave her an prescription for a wheelchair and walker. She is extremely weak and is complaining when she eats she feels like something is stuck there, like its not going down. Her heart rate is elevated 150-215. She goes to her oncologist tomorrow and we're hoping he has some answers for her. Please keep her in your prayers.

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Thank you for the update. I am sorry your Mom is having a hard time with the chemo, although it is certainly not unusual and I hope the oncologist is able to give her some answers. Sometimes you feel better just knowing what is happening and why. I will for sure keep your Mom and your family in my prayers. Keep us posted.

Diane

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Thank you for the update. I am sorry your Mom is having a hard time with the chemo, although it is certainly not unusual and I hope the oncologist is able to give her some answers. Sometimes you feel better just knowing what is happening and why. I will for sure keep your Mom and your family in my prayers. Keep us posted.

Diane

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Thank you for the update. I too am sorry to hear your mom feels so sick, but sadly that is one of the side effects of treatment. I hope she begins to feel better soon. Keep us posted ((hugs))

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My mom went to her oncologist today and they said she was pretty dehydrated and gave her fluids through an IV. Also, the doctor wants to give her another PET scan before going forward with any further treatment. Thank you all for your continued support and prayers.

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  • 4 weeks later...

I'm glad you/they are watching her closely. Dehydration can come on suddenly and quickly and can knock you down pretty low.

How is she doing now? I can imagine this is a scary time for you both.

Know that we are here for you. Keep posting and please keep us updated,

Hugs,

KatieB

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