Janet B Posted June 3, 2013 Share Posted June 3, 2013 So, I started the new clinical trial and the side effects I was having did not seem to match up with what they expected, then my bone pain and nausea got very bad. Turns out that they were not side effects at all, but new disease. Yuck! My cancer, which has been growing in my spine, lungs and spleen slowly for a while now has also decided to go back to my brain. This time into the brain and spinal fluid (leptomeningeall). Not a great prognosis to say the least, but my doctor and I have no plans to give in at this point - so onward I go! I started whole Brain radiation and radiation to my spine this afternoon. I will have 14 treatments in all and in the meantime we will figure out what the next step will be. I love that my Onc always has another plan, and a fiighting attitude! Oh, and I love OxycOntin! prayers are appreciated! Peace Janet Quote Link to comment Share on other sites More sharing options...
DonS Posted June 3, 2013 Share Posted June 3, 2013 Sending prayers Quote Link to comment Share on other sites More sharing options...
dianew Posted June 3, 2013 Share Posted June 3, 2013 Well I can’t print what I said when I read this – but it was something like #!@#! Prayers always. Your onc sounds wonderful and I’m so glad the Oxy is doing its job and trust that the radiation will as well. Quote Link to comment Share on other sites More sharing options...
eric byrne Posted June 4, 2013 Share Posted June 4, 2013 Hi Janet, I am just so sad to read of your latest news,I am still upbeat on your clinical trial, hoping that you can derive some benefits from it.I will of course keep you in my prayers,I have a friend I call "Jim of the Gym",we meet daily for our exercises,Jim is 80 years old,still has a twinkle in his eye and a great sense of humour,he is a devout RC who reckons I am still here because he often lights a candle for me in his church,I am going to ask him to include you in his task,well Jim is convinced it works,so why not?.Best wishes Janet for success in the treatments your are going through. Quote Link to comment Share on other sites More sharing options...
Alan Posted June 10, 2013 Share Posted June 10, 2013 Best wishes Janet, I pray your oncodoc has a plan that will work for you. Stay calm, there are always options and every reason for hope. We all love you. Quote Link to comment Share on other sites More sharing options...
michellep Posted June 11, 2013 Share Posted June 11, 2013 I too am sending prayers to you dear one. You're a strong wonderful woman and you have a great doc as well. I love the positive attitude you have ((hugs)) Quote Link to comment Share on other sites More sharing options...
Bruce u Posted June 12, 2013 Share Posted June 12, 2013 Just another small bump in the road Janet which you will get over like you have done all the rest. Sending prayers from up north. Take care. Quote Link to comment Share on other sites More sharing options...
carolhg Posted June 13, 2013 Share Posted June 13, 2013 Praying or you and sending positive healing thoughts your way! Love your doctor's doctortude!!! Carol Quote Link to comment Share on other sites More sharing options...
RandyW Posted June 13, 2013 Share Posted June 13, 2013 good to hear everything is in check and they are fighting it aggressively with you.. hugs and prayers to you!! Quote Link to comment Share on other sites More sharing options...
chloesmom Posted June 14, 2013 Share Posted June 14, 2013 Hi Janet, Just wanted to let you know that I'm thinking of you and hoping for good things for you! Cindy Quote Link to comment Share on other sites More sharing options...
MaryTD777 Posted June 19, 2013 Share Posted June 19, 2013 Janet, Sending HUGE hugs & tons of prayers! Glad that you , AND your Docs have such amazing spirit and "Tude"!! xoxox Quote Link to comment Share on other sites More sharing options...
shineladysue Posted June 24, 2013 Share Posted June 24, 2013 (((Janet))), I'm sorry I missed this before, but I'm here now and I want you to know that you have my prayers to go with all the rest. It's good to know that your doctors are aggressively treating you and there is no doubt you are doing your part. Please keep us updated . Hope to hear good results soon. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
nebob5 Posted June 28, 2013 Share Posted June 28, 2013 Sorry for this late reply to your post, my prayers are with you and love the attitude of both yourself and your doctors. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.