Jump to content

Whole Brain Radiation Surviors

Recommended Posts

Hello All,

I am trying to gather information from people who have had Whole Brain Radiation. As you know I also have had SCLC and now NSCLC. I have had gamma knife myself. I talk with many people about SCLC and treatments and I am trying to gather information on side effects and how long since your treatment. I hope you respond but please only those that have had WBR. Thanks so much.

God Bless


Share this post

Link to post
Share on other sites

I was diagnosed with a stage III lung cancer in April 2008. After a summer of radiation and chemo, followed by a lobectomy of my upper right lung, more chemotherapy, and ending with prophylactic whole brain radiation 10 months later.
Over the past year, or probably longer, I have been experiencing situations of being overwhelmed to the point that I must rest; slow processing information; slow to react; too much distance between thought and speech; loosing my train of thought in conversations; memory inconsistencies; easily disoriented, and more.
I see a neurologist, had neuropsych testing, and was prescribed aricept. I do not have Alzheimer's.
In addition to all the chemo, my new concern is progressive side effects from whole brain radiation.
Has anyone else experienced this?


NOW in 2016, I am taking Namzaric which combines memantine and donepezel in one pill as prescribed by neurologist. I take nuvigil on a daily basis to combat fatigue. 

My radiologist said I would not be here without brain radiation. She said we are in uncharted waters in my post treatment because we have so few survivors who had brain radiation.

I am coping with the side effects of brain radiation by stopping or reducing activities that I are difficult and taxing, but also trying to find new things that I can do.

Would I have this treatment again? Yes, absolutely. I knew the side effects going into treatment and was not surprised when they appeared. 

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now