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This is my story of survival.  It tells of an encounter with a disease of death - lung cancer - and significant life after, a very precious and rare thing.  Who I am is unimportant; what I've experience is: eleven plus years of treatment and survival.  These words are set down for but one reason - to raise a call to arms to fund lung cancer research.  Enough have suffered.  It is time for change.

 

I am not a doctor; indeed I possess little medical knowledge.  I am, however, a very experienced and long-tenured lung cancer patient.  That gives me a unique prospective on the disease that kills more, many times more, than any other type of cancer.  I'll avoid statistics.  They are readily available form any number of reputable resources.  But, I have a firm belief that lung cancer research is poorly funded because it is considered a self-induced disease. 

 

I believe my cancer was caused directly by cigarette smoke.  I recall a time when many of my peers smoked but they stopped well before middle age.  I couldn't.  I am addicted to nicotine.  Every time I'd try cessation, the addiction would draw me back.  Of course, people make a choice to take up smoking but that choice is made primarily when we are young and influenced by peer behavior.  Young people do dangerous things.  Consult the ubiquitous YouTube "fail videos" for validation.

 

However, there are other disease that we choose to give ourselves.  Consider Human Immunodeficiency Virus (HIV) as just one example.  Yes, some acquire it from medical transfusion or inadvertent needle sticks, but most are afflicted as a result of a behavior choice.  HIV is described as a world-wide pandemic.  It may be and in the US to address this largely self-induced disease, we invested $3.074 billion (billion with a B in 2012 for research.  Consider further, we spent $1.052 billion on drug abuse funding and that is clearly self-inducted.  Compare these with $314.6 million invested in lung cancer research (NIH Data).  We spend about 10 times more on HIV/AIDS than lung cancer and drug abuse research garners 3.4 times more funding!

 

In 2012, 47,989 people were diagnosed with HIV infection and about 13,834 died.  In that same year, about 226,160 people were diagnosed with lung cancer and 160,340 died!  Lung cancer kills 5 times more than HIV in the US.  Lung cancer should be our pandemic!

 

In 1998, the US and State Attorney's General entered into a Tobacco Master Settlement Agreement to collectively settle filed law suites against tobacco companies.  This yielded $206 billion over a 25-year period.  How much of that is dedicated to lung cancer research?  About 0.065% or just over $1 billion is earmarked for federal research.  Where does the money go?  That is a very good question.

 

We need to SCREAM about this inequity.  If you are reading this, you are likely suffering from lung cancer or have a family member or close friend suffering.  You've read or seen TV news coverage about the horrors of HIV/AIDS but thankfully, it is a problem most American families do not encounter.  Yes there is a stigma of self-affliction for lung cancer but the same stigma should attach to HIV/AIDS.  It does not and I wonder why my disease is so under accommodated!

 

We speak of those who suffer or pass from lung cancer as engaged in battle.  There is no battle for engaging in battle entails a choice.  One can retreat.  When diagnosed with lung cancer there are but two choices:  treatment or death.  Statistically for lung cancer, there is treatment and death!  Treatment borders on barbarism that is repetitively endured, with uncertain outcomes, and with death looming closely.  I was and still am to some degree overwhelmed by fear.  I still get scanned once a year and the time between diagnostic scan and results is a nightmare to endure.  My treatments nearly killed me, several times.  I survived, not knowing why.  My survival is hope for those who suffer, particularly for those 230,000 Americans who will receive a lung cancer diagnosis this year. If I can survive, so can you.

 

But, we ought not rely on hope as an effective treatment method.  We collectively need to speak out to those that decide on allocations of disease research dollars.  Engage your elected officials.  Ask them why they continue to under allocate research funding for our disease.  Remind them that between 15 and 18-percent of lung cancer diagnosis arise from people who never smoke.  Ask them if they are willing to rely on hope if they receive a lung cancer diagnosis.

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Hello.  So happy to hear of your story of survival. 

 

I survived but my father in law and my husband did not.

Did you hear the American Lung Association trying to raise money for research of lung cancer? 

 

 

I bet not.  The news broadcasts every month it seems about events to raise money for Breast Cancer

BUT almost never about lung cancer events.  Most people think that all people with lung cancer smoked.

Do they ever mention that pregnancy and breast feeding decrease your chances for breast cancer?

Do they ever say that using birth control pills etc increase your chance for breast cancer? No they call them "health care".

 

When I was young they encouraged you to smoke and enjoy yourself.  Every one smoked on TV , the news broadcasters, Lucille Ball and Ricky .

Research had  been done at that time that showed it put you at risk but the tobacco companies said it was not good research, you'd be fine.

After all they wanted to make lots of money! 

 

I hope you are serious with wanting to join us few survivors to inform the public and get research on prevention, early diagnosis and cures.

 

 

Donna G

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Hi Tom,

             Thank you for sharing such an insightful post of your cancer journey,I really enjoyed reading every word,we have much in common with regard to funding and research for more effective treatments.Congratulations on surviving 11 years,heres to many,many more.I live in Scotland and spend much of my time banging the drum in raising awareness of lung cancer issues.I have had lots of success,appearing on radio progs,newspapers and magazines,I even got to make a speech on my cancer journey to the MSPs in the Scottish Assembly.The fight goes on,I am confident there is a brighter future for everyone who is effected in some way by the blight of lung cancer.

    Best Wishes.

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