Aaron Y Posted February 7, 2016 Share Posted February 7, 2016 Hi, I thought I would use this forum to let off some steam. After 47 years of great health I found myself battling illness, as yet undiagnosed. When I went to my GP 14 months ago they suggested depression/anxiety. I was anxious as I had suffered weight loss and experiencing fatigue. I found the GP very dismissive and luckily I managed to get to see a private consultant. In April I managed to get a CT scan which was clear. However, I still felt ill. Repeated appointments over the year to my doctors were met with prescriptions of anti-depressants. I still felt weak and had a number of continuing symptoms that felt very much aligned to some of the paraneoplastic endocrine symptoms that can accompany SCLC. The story continued throughout the year and recently I have undergone cognitive bahavioural therapy. The counselling helped convince me that I have a physical problem, not pschycological. To try and get to the bottom of this I elected to take the Early CDT Lung Blood test. This came back positive. The false positive stats are actually quite low, in people without symptoms a positive result is true in 1 out of 9 positive results. As I have symptoms I feel that this puts me a bit closer to the true positive pool. On returning to my GP (on world cancer day) he still wasn't very interested. In the UK, a CT scan requires a GP referral, I've tried every avenue for this and hit a dead end. I spoke to our wonderful people at MacMillan and they said that they could not dismiss the positive test. They also explained that CT scans do have a miss rate, especially for very small tumours (pea sized was their words). Unfortunately they are not in the position to provide medical advice or tests as this sits with your doctor. So currently I am feeling ill, suspect cancer, have a positive result on a cancer blood test (P53 autoantibodies detected) with nowhere to go. I understand that early diagnosis is key but that your doctor also has a responsibility in this. When I looked at some stats I was amazed at how many GPs are missing chances for early detection. When I get to the bottom of this, I really want my Doctors to understand that they are need to be much more alert to patients. Does anyone have any advice on how I could do this? I am not the only person experiencing this at my surgery. Here is one of the latest reviews on their website from last month: I disagree with comments re rude receptionists, I think they may have helped save my partners life but we wont know yet. Severe and worrying symptoms requiring tests were never followed up, urine test for infection results were given by receptionist we were told nothing to report. We asked for follow up with same doctor after symptoms persisted and got much worse but saw a different doctor in spite of asking for the same one, the second one we saw couldnt have appeared more bored and patronising and kept sighing and looking back at the notes on screen, said they would send us to the hospital but couldnt say when we would be seen. Several weeks later hospital had no such request, during which time symptoms got worse, receptionist advised we have telephone consultation with doctor to request fast track, on this phone call four days later, we were told no sorry we cant fast track you. Two weeks later after becoming very concerned I telephoned the surgery and the kind two staff members I spoke to arranged for a doctor to ring me that same morning, they realised I was becoming very desperate I think, anyway a bored and angry sounding doctor gave us an appointment that same day finally a urine test was done, suddenly we qualified for fast tracking. Although doctors and hospital consultants tell patients never to believe google, both doctors blatantly googled the same pages I myself had done, right in front of us, the google search I did immediately led me to believe fast tracking was required and I became convinced my partner had bladder cancer, what happened at the hospital when we finally got that appointment? Bladder cancer. How can we make GPs listen and increase their awareness? I am all for being an advocate in your own health, but if GPs control the tests then you can only do so much. I think having a National Health Service is a great thing, but those choosing to work in this area need to make sure they are willing to accept that they are there for the benefit of the patients. I spent 23 years in the airforce and when I took on that role, the responsibility was made clear and taken seriously in an oath of allegiance. Every time I worked on an aircraft I was really aware that careless work could cost lives. Maybe these are ethics that I miss? Any suggestions from you knowledgeable people would be great. Sorry for the essay, you don't have to read it all, it is a wet and windy day in the UK and I feel very tired, so just passing time away. Aaron Quote Link to comment Share on other sites More sharing options...
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