johnskip Posted March 3, 2016 Share Posted March 3, 2016 First of all I would like to say I have the utmost respect to all fighting this disease I pray everyday so they you all continue to fight my story so far started 5 months ago when I developed a cough I still have the cough today I went to docs about 6 weeks ago and xray was good still did not feel right they did a CT scan which showed a 7 mm pleural based nodule in left upper lung told to rescan in 3 months symptoms of cough debilitating fatigue weight loss no real appetite persisted so I had another scan on Monday only 5 weeks later this scan showed the nodule is more like scar tissue and not to be followed anymore which was great but a new branching of a groundglass ggo that is 3cm is in my right lower lobe ???? I still have all the symptoms feel that something is terribly wrong Doctor says it's infection and I don't think so I have an appt at u of Penn tomorrow Quote Link to comment Share on other sites More sharing options...
Meloni Posted March 3, 2016 Share Posted March 3, 2016 Hi JohnSkip, I'm new to this forum as well. I've discovered in very short time that there are a lot of really great people here, who've experienced similar feelings of fear and uncertainty that I've experienced, and have a lot of great insight. I'm confident they will have something to offer, and am hopeful it brings you comfort. This is a scary time. I know. Who do you see at the U of Penn tomorrow? Is it a specialist, such as a pulmonologist? I hope to hear from you soon! Quote Link to comment Share on other sites More sharing options...
johnskip Posted March 3, 2016 Author Share Posted March 3, 2016 Yes pulmonologist nice to meet you Quote Link to comment Share on other sites More sharing options...
johnskip Posted March 3, 2016 Author Share Posted March 3, 2016 Yes it is a very scary time because I don't feel myself at all I was very fit before this happened and I have a girl 15 and twinboys 8 who I adore Quote Link to comment Share on other sites More sharing options...
tmg4115 Posted March 4, 2016 Share Posted March 4, 2016 Make sure you follow your instincs. You know your body better than anyone else. Hope your pulmonologist finds the problem. If not keep looking! Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted March 4, 2016 Share Posted March 4, 2016 Welcome Johnskip, I note you are a Philly guy. I was born and raised in SE Pennsylvania and the Phillies and Eagles are teams I cheer for. So we have something in common. Hopefully, the symptoms concerning you turn out not to be cancer. Else we'll have two things in common and I'd rather it be rooting for the Phills and Birds! Understand you are seeing your pulmonologist today. I hope it was a productive and instructive consultation. If you have questions, we have lots of experience on the Lungevity forum. Ask away. Stay the course. Tom Quote Link to comment Share on other sites More sharing options...
johnskip Posted March 5, 2016 Author Share Posted March 5, 2016 Thanks Tom I went to Penn and the pulmonologist thinks it is not cancer which is great but with all my symptoms weird cough major fatigue unexplained weight loss and I have been trying to gain no real appetite chest and back pain top of foot pain I'm not so sure I really want a biopsy he said wait 2 months scan again than see Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted March 5, 2016 Share Posted March 5, 2016 Johnskip, No denying the importance of the pulmonologist in our battle with lung cancer. They do important work but the medical oncologist is the discipline who practices with cancer day-in-and-day-out. You might consider an appointment with a medical oncologist and have him or her review all your test results and symptoms. Stay the course. Tom Quote Link to comment Share on other sites More sharing options...
johnskip Posted March 5, 2016 Author Share Posted March 5, 2016 Will do Tom thanks for all the advice appreciate it I'm calling Monday wonder how long for appt???? Quote Link to comment Share on other sites More sharing options...
MaryTD777 Posted April 2, 2016 Share Posted April 2, 2016 Hi John, I spent my first 50 years in central NJ but have been in PA for a few years. I am about 20 minutes east of Lancaster now. Even though I was down near Toms River / Brick NJ when I was Dx at 47, my buddy ~ who had lung cancer 9 years before me, told me that I was going to Fox Chace Cancer Center (FCCC) even if he had to drive from his house (near where I am now) to mine in NJ and toss me in the back seat with the child locks on! It turns out that he had the same type of tumor I had, in a similar spot, plus a node. That made him IIIA and I was IIB. It turned out that I saw his Medical Oncologist and Surgeon. His Radiologist was no long at FCCC so I had her replacement. That was probably more info than anyone needed, but I wanted to show how intensely important it was to him that I saw lung cancer experts. I am now 5 years since Dx and 4.5 years cancer free!!! That said, while Penn is a great hospital and I am sure they have an amazing pulmonologist, I would never tell a friend to go anywhere for a 2nd opinion but a lung cancer specialist. Well a cancer specialist for whatever spot they are worried about. These people eat, sleep and drink cancer 8 days a week. 5 or 6 months seems far too long for an infection to last, especially with such extreme problems to go along with it! Of course, I am no doctor. The closest I come to being a medical person is that I used to work for optometrists ~ The eye Drs. who check your eyes for general eye health and can prescribe glasses and a few topical meds, like for pink eye. I don't know just where you are, but Philly has TWO great cancer centers! FCCC and CTCA are both very well known for being FANTASTIC!! Of course you know which one I love, but I am certain that whichever one you can get to the easiest is the right one for you. I Hope that they send you packing, telling you definitively that there is no way in hades that it could be cancer! But if it does turn out to be cancer, I pray they get rid of it as fast as they did mine!! From a March Dx in NJ to an April consult, May & June chemo with radiation and August surgery! Hopefully, you wouldn't need all of that, but I did and that's what I call getting it DONE asap! God Bless, Mary Quote Link to comment Share on other sites More sharing options...
neophyte Posted April 8, 2016 Share Posted April 8, 2016 Hi, I went to Er for chest pain on january 18, 2016. on 19th I had a mild heart attack. 90% block and put a stent on RCA. They didn't tell me anything about 2cmm mass in my right lung. Week later due to uncomfortably I called 911 and was taken to another hospital. Took care of my stent and told me I have a mass on my lung and suggest me to follow up with pulmonary dr. I had no symptom of lung cancer. Though I was a long time smoker. week later I had my CT scan and found right lung has about 3cm primary mass left lung has also about the same size primary mass. In Pet scan both tumors lit up in different level of SYVmax and also .9cm right lower para tracheal lymph node is present with SUVmax of 2.7cm . Both tumors turned out to be NSCLC Adenocarcinoma in biopsy. My thoracic surgeon first didnot see it anything serious. thought 2nd tumor is cavitary fungal mass . But after 2nd biopsy result she order bronchoscopy for para tracheal lymph node. She still thinks that the cancers are in primary stage. Its been long time since the mass was detected on X ray. I am worried thinking that the cancers might go out of control. TS assured me it wont. In Sloan Kettering web sites say if two lungs have tumors it must me stage 4. I am in this forum for quite a while. Reading lots of posting to find similarity. And came across many survivor, and seems to be expert in this field. Any thought regarding my case would be greatly appreciated Quote Link to comment Share on other sites More sharing options...
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