Gage Posted December 27, 2016 Share Posted December 27, 2016 I was looking for info on Gilotrif side effects and found this wonderful site and decided to stay a while. My father passed away on October 1st. He was nearly 96 years old and I had always assumed that I would have another 20 years left after he passed. But before the week was over a chance CT scan turned up what was described to me as "a mass in your lung that looks malignant". At least that's how I remember the phone call that Friday night. We needed to carry on with the funeral and dealing with Dad's affairs so it was a couple of weeks before returning to Sarasota. My local medical practice was hopeless so I self-referred myself to The Moffitt Cancer Center in Tampa. The commute is hair raising but the facility is top notch. We met an oncologist who said I had stage IV lung cancer and told me to get a brain MRI and a PET scan. He said in passing that even though I hadn't smoked in 40 years, "I had smoked enough". A biopsy was performed but now it had been a month and a half since the original CT scan. The results seemed to take forever but one day they started showing up on my Moffitt Patient Portal. This was the first time I had seen the terms EFGR and the Del 19 mutation. The report also pointed out that this type of situation responded well to a certain type of targeted therapy. Finally back to the oncologist who seemed rather pleased to tell me I'd be treated with Gilotrif - a pill, once a day. Oh, and by the way, my situation is only seen in non-smokers! So two plus months after that CT scan I'm taking Gilotrif and have been for a couple of weeks. The side effects aren't pleasant but still, I consider myself lucky. I don't know what happens next but we'll see the oncologist later this week and maybe get an insight into the future. MaryTD777 1 Quote Link to comment Share on other sites More sharing options...
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