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Marcie

Father, 59, going through NSCLC diagnosis.

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Unfortunately, the Keytruda + Docetaxel did not end up working for my dad. Progression in his lung and liver tumors.

Now he will be getting weekly Gemzar.  Then he will hopefully be entering a trial for Palbociclib. Does anyone have any input/experience with this? Anyone know of other things we should be looking into? Should we be getting a second opinion? I think he's feeling a bit discouraged. :(
 

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Hi Marcie, I'm sorry to hear the treatment hasn't been working for your dad. I don't know anything about the trial. I do know people who have had good result from Gemzar. A second opinion might not be a bad idea. It could provide you with other options or it might reassure you that the course he's on is a good one.

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Merry Christmas to everyone here at Lungevity!

Not much to update, my dad just completed his 6 rounds of Gemzar and will have a scan on the 28th. If things have been stable, I think they'll continue on it, if not, he'll be trying a combo of Opdivo and Yervoy.

I think the Gemzar has been difficult for him. In addition to the usual fatigue, he has really bad shoulder pain (feels like the rotator cuff?) that keeps getting worse and really limits his mobility. It has been happening a while and the last scan showed there was no cancer there, so possibly nerve pain or a side effect of the chemo? We'll see how it looks on the next scan and what can be done.

Glad I'm able to be home and spend the holiday with him and hoping for some good news in 2019.

Happy holidays to everyone!

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Marcie,

Merry Christmas and good news on your dad. He’s had a long course of treatment and am glad you are able to spend the holidays with him. 

Agree with Laurel’s Salon Pas patches. They may help his shoulder pain. 

Stay the course. 

Tom

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Hi everyone!

Just an update - my dad's lung tumor grew 1cm in the 6 weeks he was on Gemzar. So he's stopping that for now and next week he will start on a combo of Opdivo and Yervoy. He did stop responding to Keytruda, but here's hoping this combo works and isn't too harsh on his body. His nurse commented today that he was definitely a fighter and takes every treatment they throw at him pretty well.

Here's hoping he tolerates it well and gets some good results.

Happy New Year, everyone!

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Hi, Marcie,

Thanks for sharing an update. We've been thinking about you and your dad and hope that 2019 brings renewed hope and good results on his new treatment plan. Please continue to keep us posted. We're here for you!

With gratitude,

Lauren
--
Digital Community Manager
LUNGevity Foundation

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Hi everyone,

Another update. My dad went in for his appointment today. They're starting him on Ibrance - hopefully that will slow the progression. There's not really much info about it for NSCLC - primarily a breast cancer drug. They said he isn't eligible for the double immunotherapy they were thinking of. They told him this was the last option they had for him, so I'm hoping he sees some good results.

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Marcie,

I'm glad to hear there is another treatment option for your dad.  As fast as lung cancer treatment options are coming available, I wouldn't be surprised to hear that if this doesn't work, there is a new treatment option available.  I am keeping you and your family in my thoughts and sending my best "cancer crushing" visions his way.  

Take care,

Steff

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We're thinking of you and your dad and hoping for great results! Please check back in soon and let us know how you're both doing.

With gratitude,

Lauren
--
Digital Community Manager
LUNGevity Foundation

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Hi Marcie, 

It sounds like the medical team is being very creative and aggressive in their approach to your Dad's treatment plan.  Those are the kind of docs you want on the team.  Glad to hear there's another option and as Steff indicated above-there seems to be a robust pipeline of therapy heading our way.   You guys are trailblazers.. 

Michelle 

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