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Introducing myself


SandraZ

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I am Sandra. I live in Phoenix,AZ I was diagnosed in January with Stage 4 small cell lung cancer. My x-ray showed my mass is 5".  My oncologist admitted me into the hospital for my first chemo round. I had my first Pet Scan in Feb, it showed my cancer spread to my lymph nodes , liver. I had an MRI and it showed lesions in my brain. She put me on short term disability. I was out of work for 7 weeks. I am still going through Chemo. I have 2 more rounds out of 6 to go, then another pet scan and then I will find out her plan. A few weeks ago I had another pet scan, it showed progress in my lymph nodes and my liver, but not my lung I sill have a mass and an infection on my lung. I am a little scared what the next plan will be after my next pet scan.  For 10 days I took an antibiotic. I still have the darn cough. Months ago I lost my voice, it is coming back slowly.

I have the chemo side effects and the weirdest thing is the weekend before my chemo treatment I get really bad cramps on my butt cheek so horrible I cry for days. I told my Dr, she thinks it could be not enough electrolytes. 

I have been back to work a month now. I am still tired every day, I get  tired walking but I make myself do things  and of course some days are better than others. I had to come back to work, being home was driving me crazy and of course financially. 

I have a great support system, my boyfriend is the best, my family and friends.

Sorry for going on. That's some of my story.

Sandra Z

 

 

 

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Welcome here and im sorry you are going through this and alot of people on here have a load of experience in treatments and the disease so if you have questions then fire away and someone will try to give you answers

Sent from my SM-N920I using Tapatalk

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Sandra,

Welcome here. Indeed you've had a tough row to hoe. I think it is good you are back to work. I worked during my two chemo only treatment cycles (6 infusions every 3 weeks) in 2005 & 2006. It felt good to engage in activity unrelated to cancer. 

I also had and have muscle cramps. Have you doctor check you magnesium levels in your next blood test. I bet they are low. Mine are chronically low and I take 1,000 mg per day. 

Lets us know your scan results and of course if you have questions, fire away!

Stay the course.

Tom

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Thank you for the welcome Mally & Tom. My cramps started last night, this is early for them to start. I barley got any sleep. Since I was going to work today I couldn't take a pain killer so I took some Ibuprofen, as of right now it seems to be helping. Thank goodness. 

My next chemo appointments are next week and they will take more blood work. I will ask about a magnesium blood test.

I will let you all know when I have my pet scan. 

I also get shooting pains after my chemo treatments. Does anyone else get these?

 

Sandra

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Sandra,

I experienced all kinds of pain after infusions. Mostly in my joints, and it was a gnawing persistent pain that overwhelmed even Fentanyl patches. 

Three days of full immersion misery then I was fine. I had Taxol and Carboplatin as my chemo cocktail; a total of 18 infusions!  So pain was a problem and time was the only the only mitigation. 

Stay the course. 

Tom

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Sandra,

It's extremely common to have lower magnesium, calcium and potassium levels after chemotherapy.  Dehydration is also a big concern and can cause severe muscle cramping and pains.  The exhaustion and fatigue are normal- your body is fighting very hard right now and being pumped full of chemicals!  Please be gentle on yourself and give yourself breaks as you need them. Let your great support system take care of you.

Best hopes for your next appointment.

Please keep us posted.  We are here for you.

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  • 2 weeks later...

I had my magnesium level checked, it was good.  I have 1 more chemo round at the end of the month then the Dr. will send me for another pet scan, then we'll see what he plan is. I am a bit nervous for the next step

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I also called many places for financial help, since I keep getting bills. The American Cancer society gave me names of places to call, and the places gave me other places to call. Some of them go by income. I haven't had any luck with anyone to help with small cell lung cancer in Arizona

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Last chemo treatment i had to have a magnesium infusion because i was very low and i was changed to a different recipe of chemo before i started because being t2 diabetic they said the original plan can cause neuropathy sharp pains and it wouldve most likely affected me ..

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