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My name is Ashley, I am 30 years old and my mom (55) was just diagnosed with stage 4 NSCLC in March, it has been a whirlwind to say the least. It's hard to really put into words how I am feeling at this point, I have been one of her main caregivers since her diagnosis. I joined to learn helpful tricks and tips for my mom and for the community support for me.

 

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She immediately did 12 radiation session (adrenal, lung, T5 & rib) she just finished her 2nd infusion of taxol/carbo on Friday, so far so good. She had lost a lot of weight and hair was coming out in gobs about 14 days after her first infusion

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What types of symptoms is your mom having?  I had cisplatin/pemexetred last year, and my doc managed the nausea very well.  There were days that I didn't want to eat, but I tried to always get something down.  I finally bought some Boost and kept those for the days when I couldn't even look at any other food.  I'm currently doing 6-8 rounds of carboplatin/taxol.  The only issues I'm having right now are fatigue and my hair is starting to go.  But my carbo/taxol is being given as a back-up to radiation so I'm likely not getting the same dose as your mom.  

I'm a big fan of www.chemocare.com - lots of great information about treatments and managing side effects.

My first scan following last year's chemo was about 6 weeks after treatment, and then every 90 days thereafter.  Your mom will probably be on a similar schedule.  You will find that you'll both be anxious around scan time.  If you have the opportunity, read Scanziety by Tom Galli.  It's available as an e-book.  Tom is a member on this forum and his book does a wonderful job explaining the highs and lows of this entire process.  

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HI Ashley!

My father lost a lot of weight and had a difficult time with chemotherapy side effects and loss of appetite.

What we found that worked was small snacks though out the day-  all those bites add up- because usually by the time we made or brought a "real" meal he was no longer hungry. Lots of snacks on the coffee table in front of him, cold fruits, sandwiches, etc...   Also he took Megestrol- a liquid prescription that helped to boost appetite.  If you are in a state that allows medical use of cannabis- I have heard of patients using liquid or edible cannabis for appetite enhancement and reduction of nausea.

 

Please keep us posted on your mom-

KatieB

 

 

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My mom is also on megace.. seems to be working...some. Her onc said she would be doing 4-6 infusions of the carbo/taxol. This has all happened so very fast, she has a lot of pain and is on very strong meds for that which makes her fatigued as well on top of the chemo.

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