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Lung cancer stage4 fighter


Margi

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Hi I'm Margi, 53 in PA

Looking to connect with other Stage4 lung cancer patients in hopes of sharing stories, health issues, spiritual

enlightenment and lifting each other up in strength to fight this fight!   posted 3/31/18

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Hi Margi and welcome . These forums are  a good place to connect for all the reasons  you listed. I'm sure you'll hear from stage 4 survivors. There are a lot of them on here and some are long term survivors, which really inspires hope.  Blessings to you.

Bridget O

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Welcome, Margi! 

I’m sure you will find what you are looking for here. There is a lot of support and sharing here. I was diagnosed with stage IV NSCLC adenocarcinoma over three years ago. When were you diagnosed and what treatment(s) have you had or questions, difficulties, etc. you would specifically like to address? 

Cindy

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Hi, Margi. I'm also a stage IV NSCLC adenocarcinoma survivor.  I was diagnosed in early 2016 and have beaten a recurrence since then.  If you are comfortable doing so, let us know where you are in the process (surgery, treatment, etc.).  We've all been there and hopefully our experiences can benefit you.

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On 4/1/2018 at 11:30 AM, CIndy0121 said:

Welcome, Margi! 

I’m sure you will find what you are looking for here. There is a lot of support and sharing here. I was diagnosed with stage IV NSCLC adenocarcinoma over three years ago. When were you diagnosed and what treatment(s) have you had or questions, difficulties, etc. you would specifically like to address? 

Cindy

Hi Cindy, I just had my third chemo treatment today after two treatments my labs said my white blood count was still good and there was some shrinkage. I also found out today that I am a candidate for immunotherapy what a blessing. I was diagnosed Feb 2, 2018  I haven't had any real bad side effects from the chemo except for constipation, Indigestion which are treatable and the dam fatigue I use to be so energetic. My cancer has also spread to my back, ribs and possibly my bladder but their not positive about that yet. So your going on three years thats great to hear! when I was first diagnosed I was just ready to give up but am starting to find some hope. What kind of medication or chemo are you doing have you had to switch many? what are some of your side effects considering you've been on these drugs much longer than me. where has your cancer metastasized to? Thanks for reaching out Cindy looking forward to hearing back from you God Bless you Margi

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On 4/2/2018 at 10:56 AM, Susan Cornett said:

Hi, Margi. I'm also a stage IV NSCLC adenocarcinoma survivor.  I was diagnosed in early 2016 and have beaten a recurrence since then.  If you are comfortable doing so, let us know where you are in the process (surgery, treatment, etc.).  We've all been there and hopefully our experiences can benefit you.

Hi Susan, I'm confused when you said you've beaten a recurrence since then. When you said you'd beaten does that mean like remission? I'm unfamiliar with the ins and outs still pretty new was diagnosed Feb 2, 2018 Not a candidate for surgery. My stage4 lung cancer has metastasized to my back, ribs and possibly my bladder. I have issues with my voice apparently there may be a tumor laying on a nerve causing me to sound like a chip monk, I'm seeing a ENT specialist soon. I've had three chemo treatments and just found out today I'm a candidate for Immunotherapy what a blessing!  Would love to hear your story! Look forward to learning and sharing.  God bless you Margi

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Hi, Margi.  I was 'NED' (no evidence of disease) from July 2016 to February 2017 when my cancer returned in a lymph node.  I scan again next week to see how things look.  My diagnosis was made during surgery but I'm not sure they would have operated if they had known it was cancer when they went in. 

So glad that you are a candidate for immunotherapy; it has been beneficial to so many patients.  Keep us posted on your progress.

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