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bacchus

Dad diagnosed Stage 4 lung cancer

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44 minutes ago, Steff said:

Be careful, it is not uncommon for Keytruda to cause pneumonitis.  It was suspected that my mom had it, she was taken off of Keytruda for 2 sessions and received high dose steroids.  She did not end up having pneumonitis, but we learned that it can be very serious and fatal if not taken care of.  It can also cause permanent damage.  Perhaps his docs want to look into that possibility as well.

Yes, on Thursday 9/13 the onc looked at his chest xray from 9/12 and they could see the inflammation and he said he has about 4 good reasons he could have lung inflammation but they didn't know which one was his issue.  He proceeded with the Keytruda infusion that afternoon.  His cancer is responding very well to it.  My guess is if he gets out of this hole the next infusions will be done with caution.  He is in bad shape.  Whatever caused the inflammation was rather acute.  It came on over a few days.  Praying the steroids work.  This would be crazy to lose him to lung inflammation and not really the cancer but probably a side effects of the treatment :(.

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Well going on day 24 of being in the hospital for the lung inflammation.  No new news really other then he is off the vapotherm and on 3.5 litres of regular o2.  For reference he was on 40 litres on the vapotherm 3 weeks ago.  So the steroids are helping reduce the inflammation.  The chest xrays look somewhat better then when he got admitted.  3 weeks in the bed has done him ZERO favors and now we are getting him up and moving a bit.  This will be a long process however it ends up.  They still don't know what caused the inflammation but the onc said if he wants more keytruda(which works awesome on him but may have caused this inflammation as well) he has to WALK into his office and come and get it.  This is one of the worst spots someone can be in.  Just laying in bed waiting for something to happen either good or bad.  Tough on the family and tough on the patient.  This disease and the corresponding treatments are terrible.  

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Hi, I'm sorry your dad and family are going through this! Let's all pray for and visualize WALKING. Is he getting any physical therapy to help with getting him up and moving? If not, maybe you could ask for this?

 

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