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Candi,

I’m praying for you also. 

Complications — I’ve had more than a few. Same goes for interrupted treatment. 

No doubt you are well acquainted with the concept that chemo has a downside. 

I had a long hospitalization after my pneumonectomy. A high fever prompted an antibiotic assault and steroids and more complications. I’ve concluded that late stage treatment means a wild ride through the medical dictionary of maladies and remedies. But you know that. So...

Stay the course. 

Tom

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Hi Candi,

I'm sorry that youve been through all that!. Being in the hosptital  that long must be espcially hard for a person who's used to being active. And whatever else is going on, a couple of months of inactivity is bound to leave you with shaky muscles. I hope things start looking up for you soon. Hang in there.

Bridget O

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Hi Bridget,

I feel awful in complaining because I know so many out there are going through the same things. I was diagnosed in July (from out of nowhere??!!) and have been weak, nearly reliant on someone for absolutely everything and on oxygen 24/7....I still just cannot wrap my head around all of this? I have pneumonitis (inflammation in my lungs from either the KeyTruda in my chemo or radiation. Either way, it usually is not treatable and eventually fatal, however I have been on antibiotics and steroids for 4 months so my lungs are about half healed but not enough to allow me to walk with a walker or cane. My oxygen bottoms out as soon as I stand so my mobility is pretty limited. Is anyone on this forum at this stage? How on earth do you deal without losing your mind? I’ll get through this I know I will but it is so, so hard. Thank you for listening.

candi

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Hi Candi,

Don't feel bad about complaining! We all need to do it sometimes and right now you have plenty to complain about. i know there are some  on these forums who have had pneumonitis and I hope they'll see your post and respond. Consider starting a new topic titled "Pnrumonitis". Maybe others with it will be more likely to see it. Currently what can you do that you enjoy? Watch movies, listen to music, talk to friends (in person, by phone, email?), draw, color, string beads (one of my favorites)? 

Bridget

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Thank You Tom and Bridget,

Having the pre-existing scarring and pneumonia in my lungs has had me on oxygen 24/7 since June. Not the worst thing I suppose however it’s an adjustment to have it on me at all times. My current issue is elevated liver enzymes, not sure why, 6 different specialists had 6 different guesses from steroids to Tylenol to cancer so waiting for those results. I just wish I knew what I can expect, I feel good otherwise but I keep hearing the end result to lung cancer is not promising or accommodating.

Candi

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Hi Candi, Don't believe all you hear about lung cancer prognosis. In recent years, people are living longer and living good lives with lung cancer whether or not they're "cured" . Lots of new treatments are available and more coming out all the time. Keep up hope!  I' thinking good thoughts about your liver!

Bridget O

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Candi,

After my 3rd thoracic surgery in 4 months, I was on oxygen for 6 weeks. I, like you, had competing complications and time, breathing treatments, and nurse-assisted laps of the ward got me well. 

I’m betting things will resolve and you’ll wean off oxygen as you recover. I hope it is so. 

Stay the course. 

Tom

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I remember that not too long ago, Tom posted the name and email for someone who helps with tricky cases. 

Maybe contacting that person would be a good resource for you?

 

RO

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I’m scheduled for a respiratory therapy treatment evaluation next week. I’m not sure if it’s the same thing as after your surgeries Tom, but my breathing issues are due to the inflammation in my lungs from the reaction I had to either the radiation or chemo, they are not able to biopsy to know which one. Until the inflammation is clear ( and there is a chance it won’t they tell me) my breathing will be compromised. Scarring from another source has also taken place outside of the cancer which complicates things also. I sincerely hope I am not sounding as frustrating as I feel. :(

Candi

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