Jump to content

SCLC Round 2 Post NED Surveillance Test Results


Leo

Recommended Posts

Happy to share that my second round of surveillance testing shows no evidence of disease, no nodules (new or old), no densities (new or old) and no other findings requiring particular short term monitoring. I am now 6 months NED. This result was particularly good news as in mid May, I experienced a period of extreme fatigue, headaches, balance issues and nausea. I was literally fine one day and in a very bad way a day later. I was given a full round of tests and scans ( including check for pulmonary embolisms) and IV infusion of nausea medications.  Consensus was pneumonitis and general inflammation. With the help of prednisone , a lot of sleep and time to heal, this situation resolved over a 4 week period and I have now had the best set of scans since my diagnosis. I’m back to my full gym/exercise regimen and went to a family reunion in Canada (1st time my family (siblings, cousins, nieces and nephews) has seen me since my diagnosis. Now I’m looking forward  to a trip to Disney with my family and a chance to get back to living a bit more. For reference I was diagnosed with Limited Stage SCLC 10/31, 2017 and achieved NED in late January 2018 following Chemoradiotherapy. 

Link to comment
Share on other sites

Leo,

Go NED go!  One caution however, if flying, I'd wear a surgical mask to avoid catching something on the plane to Disney.  We travel a lot and I've picked up many illnesses that end up in my chest.  Then I'm down for the count during vacation.  I just returned from a two week Baltic Sea cruise and wore a surgical mask both legs of the flight to and from the cruise ship.  And, I am fine.  So I'll mask up from now on.

Celebrate NED and stay the course.

Tom

Link to comment
Share on other sites

Congratulations, Leo! That is great news! In addition to Tom's suggestions, here is a link to a Travel Checklist with some recommendations for your trip:

https://lungevity.org/for-patients-caregivers/asking-right-questions/checklists

We hope you have a wonderful time in Disney!

With gratitude,

Lauren
--
Digital Community Manager
LUNGevity Foundation

Link to comment
Share on other sites

Here's another travel suggestion. I tend to catch colds on airline trips. Recently I've started carrying disinfecting wipes and as soon as I get to  my seat i  wipe down the armrests, tray table and the parts of the back of the seat in front of me that I'm likely to touch. Last few flights, no colda!

Bridget O

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.