Tomm Posted April 14, 2019 Share Posted April 14, 2019 Michelle, My Nature doctor agrees so I'll get an IV of c on my off week..I'll post if I have an issue with it. Will I need a ride home from the infusion? Tomm Link to comment Share on other sites More sharing options...
Rower Michelle Posted April 14, 2019 Share Posted April 14, 2019 Hi Tomm Unless you have an unexpected reaction you should be able to drive. Probably not a bad idea to ride with someone for the first time. I pray all goes well for you! Michelle Link to comment Share on other sites More sharing options...
Tomm Posted April 16, 2019 Share Posted April 16, 2019 Hi Michelle .. thanks for the advise.. This is a link from a web Forum Canceractive, THE COMPLEMENTARY CANCER CHARITY https://www.canceractive.com/article/increasing-fibre intake improves immunotherapy outcomes Rower Michelle 1 Link to comment Share on other sites More sharing options...
Charles Posted April 17, 2019 Share Posted April 17, 2019 As I sit here in front of my inside portal to the outside world with eyelids swollen, looking like I just went at least three rounds with Apollo Creed two words come to mind: "Adrian! Adrian!" A little attempted humor there. Steff and Rower Michelle 2 Link to comment Share on other sites More sharing options...
Barb1260 Posted April 17, 2019 Share Posted April 17, 2019 Hi Charles. Sorry about your eyes. Is this a side effect of the Durvalumab? Link to comment Share on other sites More sharing options...
Charles Posted April 17, 2019 Share Posted April 17, 2019 Barb, Couldn't say for sure, isn't one of those well known side effects of imfinzi as far as I can tell. Ibuprofen brings the swelling down a lot so this denotes Inflammation of the eyelids that resembles an allergy. I will probably set an eye appt. to get looked at to find out if there is an effusion or anything serious going on. No pain though and appears to be only eyelid and not eyeball protrusion but I guess better safe than sorry........Charles Link to comment Share on other sites More sharing options...
Barb1260 Posted April 17, 2019 Share Posted April 17, 2019 Hopefully it’s unrelated. I don’t know about Florida but Georgia’s pollen counts have been off the charts for weeks. Allergies are a pain. Hope you get over it quickly. Stay strong Charles 1 Link to comment Share on other sites More sharing options...
Charles Posted April 18, 2019 Share Posted April 18, 2019 Barb, I hope unrelated too, thanx Link to comment Share on other sites More sharing options...
Tomm Posted April 18, 2019 Share Posted April 18, 2019 I just got my 1st Duva infusion with no issues or side effects. My doctor does not want me to take the 50 grams of Vit C in an IV..not enough know about interactions of these. Rower Michelle 1 Link to comment Share on other sites More sharing options...
Barb1260 Posted April 19, 2019 Share Posted April 19, 2019 I should be joining you Durva’s a week from today. I’m hoping for no side effects because I feel really good right now. But-just got to go with it. Charles and Rower Michelle 2 Link to comment Share on other sites More sharing options...
Rower Michelle Posted April 19, 2019 Share Posted April 19, 2019 Barb & Tomm- could be a new set of “Durva twins”! Best to both of you trailblazers... Hope Bob and Cleo are doing well! Barb1260 1 Link to comment Share on other sites More sharing options...
Charles Posted April 19, 2019 Share Posted April 19, 2019 Good luck Barb and Tomm! Barb1260 1 Link to comment Share on other sites More sharing options...
Barb1260 Posted April 19, 2019 Share Posted April 19, 2019 Just at the pulmonologist, putting me on prednisone for the inflammation which he is calling radiation pneumonitis. Can you be on prednisone and take the Durvalumab? Thanks to you knowledgeable gents. Link to comment Share on other sites More sharing options...
Robert Macaulay Posted April 19, 2019 Author Share Posted April 19, 2019 1 hour ago, Barb1260 said: Just at the pulmonologist, putting me on prednisone for the inflammation which he is calling radiation pneumonitis. Can you be on prednisone and take the Durvalumab? Thanks to you knowledgeable gents. Yes but depends on the dosage, The doctor will advise you prior to your infusion? as Durvalumab does cause inflamation i can assure you of that i ended up in ER last December and nearly got Predisone but they decided to hold off. Link to comment Share on other sites More sharing options...
Barb1260 Posted April 19, 2019 Share Posted April 19, 2019 Hi Robert. Thank you. I will discuss on Thursday. How are you doing? Still on it? Link to comment Share on other sites More sharing options...
Robert Macaulay Posted April 19, 2019 Author Share Posted April 19, 2019 4 hours ago, Barb1260 said: Hi Robert. Thank you. I will discuss on Thursday. How are you doing? Still on it? Yes i go for #17 on the 24th and ct scan on the 30th and doctors appt on 3rd then oncologist on May-10, So if i get #18 everything must be ok? Link to comment Share on other sites More sharing options...
Barb1260 Posted April 19, 2019 Share Posted April 19, 2019 With all the testing and scans I’m sure if it wasn’t ok you wouldn’t have gotten to #18. Keep blazing that trail! Link to comment Share on other sites More sharing options...
Robert Macaulay Posted April 19, 2019 Author Share Posted April 19, 2019 You know the saying. Your only as good as the last scan. lol Barb1260 1 Link to comment Share on other sites More sharing options...
Charles Posted April 19, 2019 Share Posted April 19, 2019 Barb, Sorry to hear about the pneumonitis. Charles Barb1260 1 Link to comment Share on other sites More sharing options...
Tomm Posted April 20, 2019 Share Posted April 20, 2019 Quote 4 hours ago, Barb1260 said: Just at the pulmonologist, putting me on prednisone for the inflammation which he is calling radiation pneumonitis. Can you be on prednisone and take the Durvalumab? Thanks to you knowledgeable gents. Hi Barb and fellow Duva's ... this link is to the home page of Duva for patients to get information or sign up for a guide with them https://www.lighthouseprogram.com/about/why-lighthouse they also have information on finance help and should be able to answer your prrednisone question. Barb1260 1 Link to comment Share on other sites More sharing options...
Barb1260 Posted April 20, 2019 Share Posted April 20, 2019 1 hour ago, Charles said: Barb, Sorry to hear about the pneumonitis. Charles Thanks Charles. It’s very minor, asymptomatic. Doing the 2 steps forward one step back dance seems to be the norm with my treatment. Just want to get on with it. Link to comment Share on other sites More sharing options...
Barb1260 Posted April 20, 2019 Share Posted April 20, 2019 Tomm-thanks for the link. I’ll read through it in the morning with my coffee. ☕ Link to comment Share on other sites More sharing options...
Rower Michelle Posted April 20, 2019 Share Posted April 20, 2019 17 hours ago, Barb1260 said: Just at the pulmonologist, putting me on prednisone for the inflammation which he is calling radiation pneumonitis. Can you be on prednisone and take the Durvalumab? Thanks to you knowledgeable gents. Hey Barb- Well that pretty much sucks! Hopefully the prednisone does the job quickly. Jersey Strong! Michelle Barb1260 1 Link to comment Share on other sites More sharing options...
Barb1260 Posted April 20, 2019 Share Posted April 20, 2019 Sucks cause I have no symptoms. Now another setback. Frustrating Link to comment Share on other sites More sharing options...
Rower Michelle Posted April 20, 2019 Share Posted April 20, 2019 At least they caught it before the onset of any symptoms. Should make this more manageable until the next curve ball. I’m seven months into this now & just when I think I’ve got a handle on it- whammy! Learning to be more like Que Sera Bob...🥴 Barb1260 1 Link to comment Share on other sites More sharing options...
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