Rower Michelle Posted September 6, 2020 Share Posted September 6, 2020 Same company that denied my PET, chemo & biomarker studies. They are bottom dwellers. Seriously with a very shady group of founders. I’m sure the DOI has a rather large file on them. File a vendor complaint with the CEO of the Insurance Carrier too. Go to the mattresses! PS my employer fired them in 2019. Barb1260 1 Link to comment Share on other sites More sharing options...
Barb1260 Posted September 30, 2020 Share Posted September 30, 2020 I won the appeal!!! Just got a call from the nurse case manager for the insurance company. PET approved! She’s calling the oncologist to get it scheduled. I already left them a message as well. RonH, Tom Galli and GaryG 3 Link to comment Share on other sites More sharing options...
BridgetO Posted September 30, 2020 Share Posted September 30, 2020 Yay! Persistence pays off, sometimes even with the bottom dwellers. Tom Galli and Barb1260 2 Link to comment Share on other sites More sharing options...
GaryG Posted September 30, 2020 Share Posted September 30, 2020 Congratulations and hopefully that will lead you to a good plan for fighting cancer. Barb1260 1 Link to comment Share on other sites More sharing options...
Rower Michelle Posted September 30, 2020 Share Posted September 30, 2020 Outstanding news!!!! Go Barb!!! Barb1260 and Opal 2 Link to comment Share on other sites More sharing options...
Barb1260 Posted September 30, 2020 Share Posted September 30, 2020 Michelle-it was a great surprise Link to comment Share on other sites More sharing options...
Tomm Posted September 30, 2020 Share Posted September 30, 2020 Barb .. I hope the results show you are cancer free down to the cell level. Good news! There are well over 100 labs in America working on developing a vaccine. Just wait til they get the German shepherds involved! Barb1260 1 Link to comment Share on other sites More sharing options...
Tom Galli Posted September 30, 2020 Share Posted September 30, 2020 Hip-hip-hooray for Barb! Way to... Stay the course. Tom Barb1260 1 Link to comment Share on other sites More sharing options...
LexieCat Posted October 1, 2020 Share Posted October 1, 2020 WTG--great news! Yes, persistence pays off. Barb1260 1 Link to comment Share on other sites More sharing options...
LouT Posted October 2, 2020 Share Posted October 2, 2020 Barb, Let me throw my hat in the ring here with the rest of our family. Hooray for getting the approval. I have faith that your great strength will bring you through this difficult journey. Lou Barb1260 and Tom Galli 1 1 Link to comment Share on other sites More sharing options...
Barb1260 Posted October 2, 2020 Share Posted October 2, 2020 Thanks all for your kind thoughts Link to comment Share on other sites More sharing options...
Sillycat1957 Posted October 3, 2020 Share Posted October 3, 2020 Barb, a little late, but good for you! I hope every cell comes back cancer free! On another note, I finally finished my year long (very long) treatment of Durvalumab! On Aug 24th, Yay me! There were times I thought I would rather die. Don't fret y'all newcomers to the Durva Club 🤪 I can be quite dramatic at times! But all's good. I had a few hic cups along the way. I welcome you all to the club. It has helped me to navigate my journey quite well. I have a CT Scan and Bone Scan schedule at the end of this month, then I see my Oncologist on November 12th for the results. Happy to say I am off all pain meds and Xanax too. However, I am way too squirrely and think maybe I should be on some kind of anxiety med, also I was given Tramadol for pain, I hate it, makes me want to puke. Michelle, even tho I gave my APRN and DR the info on Naltrexone for pain relief, they insist that it is for drug addition. But they are willing to refer me to a pain clinic. Unfortunately, they are missing the point completely. Ugh! My Onc feels my pain is cancer related so I should no longer be in pain WTF! Am I now cancer free? Does she know something I don't? Guess I will just wait for my scans and appointment in November 😁 Have a great weekend everyone Take care Roseann Barb1260, LouT and RonH 3 Link to comment Share on other sites More sharing options...
Barb1260 Posted October 3, 2020 Share Posted October 3, 2020 Hey Roseann. Welcome to the finish line!!! I sometimes think my onc isn’t understanding what I’m saying either. I sometimes go home and call, leave a msg, the nurse calls me back and then she translates to the onc. Then she gets what I’m saying! I don’t know why that works. Let us know how those scans come out. Enjoy your medical freedom! Sillycat1957 and LouT 1 1 Link to comment Share on other sites More sharing options...
Rower Michelle Posted October 3, 2020 Share Posted October 3, 2020 Congrats on joining the Done with Durva group! That’s fantastic, I remember your early posts and girl you’ve come a long way! Keep on the LDN at the pain clinic, they will definitely know about it! Rock and roll!!!! Opal, JamesB, Sillycat1957 and 1 other 3 1 Link to comment Share on other sites More sharing options...
BridgetO Posted October 3, 2020 Share Posted October 3, 2020 Yay, Durva grad! I'm glad you were able to hang in there for the entire course. Bridget O Sillycat1957 1 Link to comment Share on other sites More sharing options...
Tomm Posted October 3, 2020 Share Posted October 3, 2020 Roseann congratulations on joining the Done with Duva club. A year of your life is a big investment and it appears it paid off for you. A link on Naltrexone .. https://khn.org/news/naltrexone-addiction-medication-chronic-pain-treatment-small-doses/ and this link is about it's use for cancer treatment https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6126779/ I get it from my naturopathic oncologist. I was once bitten by a rabid female deer. Now, every time there's a full moon, I turn into a weredoe. Rower Michelle, Sillycat1957 and JamesB 3 Link to comment Share on other sites More sharing options...
Sillycat1957 Posted October 4, 2020 Share Posted October 4, 2020 Thank you everyone, yes I'm a well baked done Durva Queen LOL! Hopefully now on to somewhat of a normal life, not being tethered to a cancer center every other week! Just a port flush every 6 weeks until I can have it out, as long as all goes well after my scans. Question, to others that have finished? Did you have your port removed? Or were you one of them there brave souls who went the straight in the vein route? I shudder when I think of those that have done that! Tomm, yes you are a weredoe lol! Good day all Roseann Tom Galli 1 Link to comment Share on other sites More sharing options...
Tomm Posted October 5, 2020 Share Posted October 5, 2020 Roseann, my last infusion was in March and I still have my port, they use it for my CT with contrast every three months (tomorrow) and the doc said if it isn't a bother to me he will leave it in. Why did the chicken cross the road? Because the chicken behind it didn’t know how to socially distance properly. Tom Galli, JamesB and Sillycat1957 1 2 Link to comment Share on other sites More sharing options...
Eagle13 Posted October 5, 2020 Share Posted October 5, 2020 I had my port removed in Dec 2018. Last Durva infusion was July 2018. I was glad to have it removed and have not needed it since. 🙂 My treatment changed and am fortunate that I have not needed any infusions. I feel very blessed. 🙏🏻 🦅 Tom Galli, Opal, Sillycat1957 and 2 others 5 Link to comment Share on other sites More sharing options...
Opal Posted October 6, 2020 Share Posted October 6, 2020 Sillycat!! Congrats!! Welcome to Done Durva Club. You did it!! I survived the infusions, all 26, no port. Went the vein route but my Onc said I had good veins no reason to give me a port. In a crazy way I got used to it but don't know how because I'm wildly petrified of needles. Nurses were wonderful! Enjoy having a little extra space on your calendar now and Best Wishes for great scans. Opal Tom Galli, LouT, Sillycat1957 and 1 other 4 Link to comment Share on other sites More sharing options...
Barb1260 Posted October 6, 2020 Share Posted October 6, 2020 Silly at-I still have my port. I almost feel like if I take it out I’m tempting fate-as soon as it’s gone I will need it. I’m going to wait a while. Tom Galli, LouT and RonH 3 Link to comment Share on other sites More sharing options...
Sillycat1957 Posted October 6, 2020 Share Posted October 6, 2020 Thank you all for your input, I have some pondering to do, I reckon. Tomm, when I have CT scans they use a vien, guess they are not skilled in using a port. Barb, I kinda feel like you do, why tempt the cancer monsters at rest Opal, you brave woman! You must be Wonder Woman in disguise! You go Girl 💥 Eagle13, hmm, I am happy, you are happy! Continued blessings Namaste 🙏 Michelle, meant to say in my earlier post love your photo, so nice to put a face to a name. You are lovely my dear! Good Day all! Roseann Barb1260, LouT and Tom Galli 3 Link to comment Share on other sites More sharing options...
Opal Posted October 13, 2020 Share Posted October 13, 2020 Sillycat...re the port... No wonder woman here. I watched my husband get stabbed in his port for 2 years before I started chemo then Durva. His stab looked much more painful. I used to get weak in the knees. Just wanted to throw that out there in case anyone gets a port removed and ever (hope and pray not) has need for one. The vein route isn't so bad. Opal LouT, Barb1260 and Sillycat1957 2 1 Link to comment Share on other sites More sharing options...
Lindsay Posted October 14, 2020 Share Posted October 14, 2020 Good Morning Durva Club! It seems we have a lot to celebrate! Congrats SillyCat on completing your Durva, I hope your scans come back excellent, please update us once they are back!!! I just made it to the halfway point, and I'm so excited, it seems to have gone a lot faster than I anticipated. Mind you, I'm only going once a month, so I don't feel my life has been THAT interrupted. (Thanks COVID) I'm also happy to report that I've had very minimal side effects which has also been a blessing, I'm hoping these next 6 months don't change that. I'm curious what the next steps have been for some of you after you've completed treatment. I've talked with my onc about it, and it seems that it depends on how much of the tumor is gone/dead. I'd love to hear some real life stories of what to expect next. LouT, Barb1260, Sillycat1957 and 4 others 7 Link to comment Share on other sites More sharing options...
Tomm Posted October 20, 2020 Share Posted October 20, 2020 Lindsay.. real life after Durva, as Doctors tell us after we find out we have cancer and we ask what to expect they tell us we are all different. I was NED when I started Durva and stayed that way during my entire treatment year. I finished in March and still have some fatigue but am now able to mow my lawn and harvest my garden and go to the grocery for my curbside pickup. My onc tells me non of his Durva patients has had a recurring cancer after Durva is done. So real life after is great, your future is Bright. I got results from my CT last week... still NED Good news! There are well over 100 labs in America working on developing a vaccine. Just wait til they get the German shepherds involved! . Lindsay, BridgetO, Opal and 1 other 3 1 Link to comment Share on other sites More sharing options...
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