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Durvalumab


Robert Macaulay

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Thank you everyone for your very helpful responses. 

I've not had a biomarker. The bronchoscopy was unable to take sufficient sample, I only have one lung, and a needle biopsy was regarded as too risky. 

My oncologist isn't very receptive to complimentary treatments. So I don't feel able to discuss with her. In any event, I have decided to hold fire on THC for the time being.

Kind regards

Mike

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4 hours ago, PMD said:

Thank you everyone for your very helpful responses. 

I've not had a biomarker. The bronchoscopy was unable to take sufficient sample, I only have one lung, and a needle biopsy was regarded as too risky. 

My oncologist isn't very receptive to complimentary treatments. So I don't feel able to discuss with her. In any event, I have decided to hold fire on THC for the time being.

Kind regards

Mike

Hi Mike,

Biomarker test can be done from a blood draw.  Durvalumab did not work for me.  I was not tested for PDL1 prior to the infusions.  I had 8 infusions and ended up with a Pleural Effusion.

I recommend finding an NSCLC specialist to get a second opinion and request the liquid biomarker test. 
 

🦅

 

 

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I am new to this smart and welcoming group of travelers in the lung cancer world.   I have been in the world for two years but haven't gone far in talking to other patients.  I am not an outgoing person but now I know It feels right to talk.

I had had a biomarker test during the biopsy of my tumor and (while I was in the hospital with pneumonia) my doctor started chemo and keytruda.   (They kindly waited until after midnight to start the infusion so that my hastily acquired Medicare supplement was in effect!).  Now I get an infusion every three weeks.

Yesterday I got on this immunotherapy forum and read through.  Now I have a basic question:   I saw a lot of comments about the "Durva Club"  and durvalamab,   I have never heard that word or known anything about that immunotherapy treatment.  Keytruda is all I know.   Are the different immunotherapies used for different tumor compositions?

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I'm not on Durva, but according to the website, it's for unresectable Stage III NSCLC after chemoradiation. So you wouldn't be a candidate (at least according to that) because of your stage and treatment.

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Vicki,

Are different immunotherapies used for different tumor compositions? In a word, yes. There is a concise but complete discussion of immunotherapy treatments and lung cancer here.

Stay the course.

Tom

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Thanks.   I don't know how long I will stay on Keytruda.   At one point it was going to be two years.   I did have an opaque glass (?) nodule that showed on my last two scans.   Since it hadn't changed, the decision had been to just keep monitoring.  I see my oncologist next week so I will ask him again about that.    I read a post about hip pain and other pains and have noticed some in my hip sometimes also.   But I'm aging.  Another thing is a side crampy like pain.   (I used to have that awhile ago and it turned out that I had broken a rib from coughing.).  Anyway, all questions to bring up.   Since I see him alternative times I usually have some.   (I know you are all familiar with the questions drill but I can always use some prompting too.   Sometimes I find myself just  saying "I'm fine." )

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Vicki,

I know of many who are treated with Keytruda and who stay on the medication for about 2 years, then treatment stops. This seems to be an emerging pattern for Keytruda. It seems in these folks, their immune system is trained to recognize and eliminate metastasis. For muscle cramps, there is a little reported chemo side effect of magnesium deficiencies reported by blood tests. I have this problem as a permanent side effect and ward off muscle cramps by taking 1000mg of magnesium per day. Ask your doc about your magnesium blood levels.

Stay the course.

Tom

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