Kleo Posted December 21, 2018 Share Posted December 21, 2018 Upper left lobe. There's 2 new nodules in my upper left lobe and 2 in my right. Only that one registered on the activity scale though. Robert Macaulay 1 Link to comment Share on other sites More sharing options...
Roz Posted December 21, 2018 Share Posted December 21, 2018 Kleo, I was asking because I have been told that the 5 new nodules in my lower right lobe are too small to biopsy. I was curious about the size of yours. Sure wish there was a way to keep these nodules from popping up..How are you doing otherwise? You and Bob certainly have a great sense of humor!! Ro Kleo and Robert Macaulay 2 Link to comment Share on other sites More sharing options...
Eagle13 Posted December 21, 2018 Share Posted December 21, 2018 1 hour ago, Rower Michelle said: Yay for the sample size! Takes a few weeks for the biomarker tests to come back. That testing is a game changer. Stay on top of the insurance coverage for it. I’ve been appealing my Foundation One testing for a month. Wasn’t cheap but totally worth it! Took ~2 weeks for my biomarker test to come back. Absolutely a game changer for me. I take a Tagrisso pill once a day since I am EGFR. No more infusions since Tagrisso started and my port is being removed next week. This is working for me. I pray you get the right treatment to fight your mutation. Biomarker test was done on my fluid from the thoracentisis. It was essentially blood. BTW - I would ask for a bronchoscopy to check to make sure your lymph nodes are normal. Thats what they biopsied the first time for me. They didn’t make it to the small nodule that they were after because the lymph node looked abnormal. Merry Christmas and Happy Holidays! 🌲🎅🏻☃️❄️ 🦅 Kleo, Robert Macaulay and Tom Galli 2 1 Link to comment Share on other sites More sharing options...
Robert Macaulay Posted December 22, 2018 Author Share Posted December 22, 2018 Just got power back on after 36 hour outage that was not fun and another wind storm coming for today Kleo 1 Link to comment Share on other sites More sharing options...
Kleo Posted December 22, 2018 Share Posted December 22, 2018 Roz...that's exactly why I asked the doc about it. They didn't mention the size of this in the pet scan-the active node that they are going to biopsy- so I wondered if it was big enough that they could get a sample from it. I guess it is! 🤨 Sooo...who has had the needle biopsy on a lung? Doesn't that puncture your lung though? Wonder which way they'll go in....front or back? Guess whichever way is closest..? Will they knock me out? Yikes.....this is some freaky stuff. Please let em knock me out... LOL Robert Macaulay 1 Link to comment Share on other sites More sharing options...
Rower Michelle Posted December 22, 2018 Share Posted December 22, 2018 Hey Cleo- I has a needle biopsy it was CT guided by the radiology interventionist. They gave me some wonderful drugs to put me in la la land. Didn’t see or feel a thing. No pain afterward either. Roz 1 Link to comment Share on other sites More sharing options...
Robert Macaulay Posted December 23, 2018 Author Share Posted December 23, 2018 Kleo The big concern after they take the sample is the lung inflates and stays that way and goes back to normal operation as it does in most people case. I watched the whole thing. Bob Link to comment Share on other sites More sharing options...
Eagle13 Posted December 23, 2018 Share Posted December 23, 2018 5 hours ago, Kleo said: Roz...that's exactly why I asked the doc about it. They didn't mention the size of this in the pet scan-the active node that they are going to biopsy- so I wondered if it was big enough that they could get a sample from it. I guess it is! 🤨 Sooo...who has had the needle biopsy on a lung? Doesn't that puncture your lung though? Wonder which way they'll go in....front or back? Guess whichever way is closest..? Will they knock me out? Yikes.....this is some freaky stuff. Please let em knock me out... LOL Kleo- I had 4 thoracentisis procedures that involved a large needle stuck through my back into the pleura around my left lung. They drained over 6 liters of fluid from my left lung through these. They did a local anesthesia each time. I watched the procedure on the sonogram live. The initial stick was similar to the stick for bloodwork. It was surprisingly non-eventful. I suspect the needle biopsy will be similar and actually less of an event. I’m sure they will give you a lidacane shot to numb the area that will actually hurt worse than the procedure. 🙂 🦅 Robert Macaulay 1 Link to comment Share on other sites More sharing options...
Kleo Posted December 23, 2018 Share Posted December 23, 2018 No way man they better knock me completely out! Yeow! Roz and Robert Macaulay 2 Link to comment Share on other sites More sharing options...
Rower Michelle Posted December 23, 2018 Share Posted December 23, 2018 Oh- I just remembered that one of the drugs used for my procedure was fentanyl. Serious constipation followed- so you might want to ask about mixing some Miralax into your egg nog. Tom Galli and Roz 2 Link to comment Share on other sites More sharing options...
Roz Posted December 23, 2018 Share Posted December 23, 2018 Kleo, I had a bunch of different procedures done before my two surgeries. The first was a bronchoscopy, the next was a transthoracic lung biopsy where you are basically awake enough so they can give you directions, but you don't really feel anything, and then and endobronchoscopy where they go in with the navigational type camera..I think they were all considered day surgery procedures..So, I don't think I've experience the needle biopsy yet. I'll be waiting to here from you about what that experience is like.. Take care, Ro Link to comment Share on other sites More sharing options...
Kleo Posted December 23, 2018 Share Posted December 23, 2018 I had the bronchoscopy. They knocked me out for that. I had the fentanyl for the port installation. I was awake... or so I thought...for that. Really I must've passed out because it was like I laid down, the put a blue drape over me.... and the guy said...ok you're done. Huh? But I barely got on the table! LOL Tom Galli and Roz 2 Link to comment Share on other sites More sharing options...
BridgetO Posted December 24, 2018 Share Posted December 24, 2018 Well, Kleo, it sounds like it wasn't too traumatic! I bet you're glad those 2 procedures are over. Link to comment Share on other sites More sharing options...
Opal Posted December 27, 2018 Share Posted December 27, 2018 Kleo, sending you prayers and all good thoughts tomorrow for your procedure. Rower Michelle 1 Link to comment Share on other sites More sharing options...
Rower Michelle Posted December 28, 2018 Share Posted December 28, 2018 Thinking about you Kleo.... Link to comment Share on other sites More sharing options...
Faith&Hope Posted December 28, 2018 Share Posted December 28, 2018 Kleo, Praying for you. Link to comment Share on other sites More sharing options...
Kleo Posted December 28, 2018 Share Posted December 28, 2018 Ok....OWWWWWW! That one hurt! And even though I was on all the drugs...I still said...OWWWWW. LOL Felt like I was in Pulp Fiction where they stab Uma in the chest.😯 Doc just put me on steroids...my whole shoulder and arm are on fire now. Plus my chest where they stabbed me with the needle!! Didn't sleep much last night. Everything hurts. Oh and biopsy results are in...negative. Not cancerous. 😀 Robert Macaulay, Tom Galli and Faith&Hope 3 Link to comment Share on other sites More sharing options...
Rower Michelle Posted December 29, 2018 Share Posted December 29, 2018 Yippee! Kleo 1 Link to comment Share on other sites More sharing options...
BridgetO Posted December 29, 2018 Share Posted December 29, 2018 Yow! That one sounds traumatic enough to make up for the prior not to traumatic ones! I'm thrilled to hear your biopsy results! Kleo 1 Link to comment Share on other sites More sharing options...
Opal Posted December 29, 2018 Share Posted December 29, 2018 Kleo, SO glad to hear negative! And I'm sure you are glad that's over Kleo 1 Link to comment Share on other sites More sharing options...
Tom Galli Posted December 29, 2018 Share Posted December 29, 2018 My oh my. A great way to end the year with a negative biopsy. I feel a special New Year's Eve celebration in the works. Stay the course. Tom Kleo 1 Link to comment Share on other sites More sharing options...
LexieCat Posted December 29, 2018 Share Posted December 29, 2018 Kleo, Great news! Hope you feel better, soon (I'm sure the result helps with the pain!). Kleo 1 Link to comment Share on other sites More sharing options...
Eagle13 Posted December 29, 2018 Share Posted December 29, 2018 Kleo, That is wonderful news! Congratulations! 🦅 Kleo 1 Link to comment Share on other sites More sharing options...
LaurenH Posted December 29, 2018 Share Posted December 29, 2018 That’s great news about your results, Kleo! We’re sorry you had to go through such a traumatic experience though! Thank you for sharing your good news. We hope you have a very Happy New Year! With gratitude, Lauren — Digital Community Manager LUNGevity Foundation Kleo 1 Link to comment Share on other sites More sharing options...
Faith&Hope Posted December 29, 2018 Share Posted December 29, 2018 Kleo, Thank God they are NOT cancerous!!! Praise God!!! I am so happy for you, girl!!! The "negative" is such a beautiful word!!! Kleo and Tom Galli 2 Link to comment Share on other sites More sharing options...
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