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OR Call to Action


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The state of Oregon Health Authority Health Evidence Review Commission (HERC) recently released proposed guidance to not provide coverage for the use of FDA-Approved Next Generation Sequencing (NGS) tests for cancer patients in the state with Medicaid.

LUNGevity Foundation and Caring Ambassadors are seeking volunteers, both lung cancer survivors and health care professionals, who live in the state of Oregon, to provide testimony at a public meeting from 1:00pm-4:00pm on this issue scheduled for September 27, 2018 in Wilsonville, Oregon. Ideal testimony would be provided by survivors who have received NGS, or other comprehensive biomarker testing, to guide their treatment and by health care professionals who order, consult, or care for patients who have received NGS, or other comprehensive biomarker testing.

For those who cannot attend the meeting, Oregon will accept testimony via email up to 2 days prior to the hearing. Click here for more information and instructions.

For more information or to volunteer, please contact Anna Pugh, LUNGevity Foundation Director of Public Policy Initiatives, at agpugh@lungevity.org  or 240-454-3105 or Cindy Langhorne, Caring Ambassadors Lung Cancer Program Director at cindy@caringambassadors.org or 503-632-9032 ext. 1.
A copy of the comments submitted by LUNGevity Foundation to the HERC can be found  https://lungevity.org/sites/default/files/file-uploads/081318_Comment-Letter-OR-HERC-NGS.pdf


Please share!  Thank you!

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Oregon Forum Members,

This is most uncharacteristic of Oregon. Either the Oregon Health Authority doesn't understand the science, or they are invoking our self-induced stigma to deny state-of-art care because we deserve to die. If you are personally effected by this decision, testify.  If you are a lung cancer survivor, show up on September 27th and fill the room.  Do not let this proposed denial of treatment remain unchallenged.  

Stay the course.


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