Z4griz Posted October 13, 2018 Share Posted October 13, 2018 Hi , my name is Mary and I am 68 yrs young. I was diagnosed with NSCLC ado carcinoma in sitiu in 2015. I had a lobectomy done Right lung. No chemo or radiation was done at the time. When I went for my 6 month check up another nodule had appeared , it was malignant. I had a course of chemo and radiation, and it was in remission for a year. Now I have malignant plural effusion, and the outlook is very grim. Has anyone else ever faced this. Link to comment Share on other sites More sharing options...
BridgetO Posted October 13, 2018 Share Posted October 13, 2018 Hi Mary ans welcome back-- I haven't faced what your facing now, but it seems to me that someone posted very recently about this kind of pleural effusion and I hope they'll chime in here. Hang in there. Bridget O Link to comment Share on other sites More sharing options...
Tom Galli Posted October 13, 2018 Share Posted October 13, 2018 Mary, Unfortunately yes. I had 4 recurrences after “successful” no evidence of disease (NED) treatment. My outlook was also grim. But I’m still here and come February I’ll have survived 15 years after diagnosis. So there is always hope especially with targeted therapy and immunotherapy advances against adenocarcinoma. Stay the course. Tom Link to comment Share on other sites More sharing options...
LaurenH Posted October 26, 2018 Share Posted October 26, 2018 Hi, Mary, We’re thinking of you! Please post an update when you can. With gratitude, Lauren — Digital Community Manager LUNGevity Foundation Link to comment Share on other sites More sharing options...
Z4griz Posted November 29, 2018 Author Share Posted November 29, 2018 Hi, thank you for your responses. I am now doing chemo and Keytruda....when chemo is done I will just be on Keytruda....I have read and heard a lot about this drug buying people more time....I hope it buys me some...I have a lot on my bucket list to give up now Link to comment Share on other sites More sharing options...
BridgetO Posted November 29, 2018 Share Posted November 29, 2018 Hang in there, Mary! Link to comment Share on other sites More sharing options...
Steff Posted November 29, 2018 Share Posted November 29, 2018 Hi Mary, I'm glad to hear that you are a candidate for immunotherapy - my mom was on Keytruda and her cancer has been stable/no evidence of disease for over 6 months. My mom has had a similar journey - originally diagnoses NSCLC adenocarcinoma in November 2015. Had a lobectomy and follow up chemo and radiation. A year after treatment ended, more cancer was found. She began Keytruda + alimta/carbo for 6 sessions (she was originally going to do 8, but everything was looking really good at 6), then continued with Keytruda only for about 1 year. She has recently stopped due to side effects. Feel free to check out my mom's journey: here. Take Care, Steff Link to comment Share on other sites More sharing options...
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