RAY A Posted February 9, 2004 Share Posted February 9, 2004 HELLO my brothers and sisters. Ill keep this short. Last Tuesday I went in for what they call CTPET scan. It’s a brand new machine that takes a CT scan and then a PET scan. They tell me its more accurate because the CT scan part tells them what organ they are looking at with the PET scan. Now as many of you know, two week ago they found a blood clot and that is doing fine. this Friday was my visit to my onoc to talk about the cancer. As many of you guys know waiting is the worst part. The doc took my scans and came back in and said I DONT SEE ANY SIGNS OF CANCER ANYWHERE!!!! My wife asked does this mean he’s cancer free? He said that he couldn’t say that because there can always be cancer cells floating around but he would say I was in full remission because there is NED!!! HE said he is still waiting for the report from the radiology dept that took my scans. I guess that’s why I can’t get excited yet. So The doc and I discussed about how we are going to try to keep things the way they are, so he recommended Iressa as a maintenance drug (god Im scared to death) I know this question has been asked a lot but how are my brother and sisters doing that are on Iressa? Any advice or recommendations? Quote Link to comment Share on other sites More sharing options...
betplace Posted February 9, 2004 Share Posted February 9, 2004 NED!!!! Wow!!! Hugs and a Happy Dance going out to you Ray! Blessings Betty Quote Link to comment Share on other sites More sharing options...
Joe B Posted February 9, 2004 Share Posted February 9, 2004 Great news Ray...... I'll bet you are on top of the world today, thats awesome ! Quote Link to comment Share on other sites More sharing options...
RAY A Posted February 9, 2004 Author Share Posted February 9, 2004 Oh yea and another thing. I lost 6 lbs and my go-tee is starting to grow back. Quote Link to comment Share on other sites More sharing options...
Guest canuckwebgrrl Posted February 9, 2004 Share Posted February 9, 2004 Ray, Don't know much about nsclc or Iressa, but wanted to say congrats on your NED Quote Link to comment Share on other sites More sharing options...
Connie B Posted February 9, 2004 Share Posted February 9, 2004 AWESOME NEWS, my BROTHER!!! DOWN RIGHT AWESOME!!!! As for the Iressa, well............................ why not give it all you have, being that you CAN???? Why not keep this crap at bay being it is?? Why not ZAP this crud for all it's worth??? WHY NOT??? Just my two cents worth. Your headed for the upswing and by GOLLY, I'm HAPPY FOR YOU!! God Bless and Continued prayers.... Quote Link to comment Share on other sites More sharing options...
Margaret Posted February 9, 2004 Share Posted February 9, 2004 HOORAY...that is wonderful news. Margaret Quote Link to comment Share on other sites More sharing options...
Don Wood Posted February 9, 2004 Share Posted February 9, 2004 I love the sound of NED! Congrats! Don Quote Link to comment Share on other sites More sharing options...
cathy Posted February 9, 2004 Share Posted February 9, 2004 Wow Ray, Incredible news. I am so happy for you and your beautiful family, I smile everytime I see your picture you remind me so much of my brother. Quote Link to comment Share on other sites More sharing options...
RAY A Posted February 9, 2004 Author Share Posted February 9, 2004 thats funny because everytime I see the pic of you and your dad it makes me smile because your dad looks so much like my dad. Quote Link to comment Share on other sites More sharing options...
J.C. Posted February 9, 2004 Share Posted February 9, 2004 That is marvelous news, could not be better. Keep it up. J.C. Quote Link to comment Share on other sites More sharing options...
Hebbie Posted February 9, 2004 Share Posted February 9, 2004 NED!!! WHAT WONDERFUL NEWS!!!!! YOU MUST BE ON TOP OF THE WORLD!!!!!!! GO OUT AND CELEBRATE THE WONDERFUL NEWS WITH THAT BEAUTIFUL FAMILY OF YOURS!!!!! HEATHER ps -- I am assuming this means that Penn now has the CT/PET machine in house? Very cool news! Quote Link to comment Share on other sites More sharing options...
Fay A. Posted February 9, 2004 Share Posted February 9, 2004 Oh, Ray....... Your news has absolutely made my day. Quote Link to comment Share on other sites More sharing options...
Guest Karen C Posted February 9, 2004 Share Posted February 9, 2004 Oh, Ray, that is so wonderful! I was so worried about you after you had mets, but you fought and you BEAT the monster! You are our hero! God Bless you and your wonderful family! Karen C. (Dave C's wife) Quote Link to comment Share on other sites More sharing options...
ginnyde Posted February 9, 2004 Share Posted February 9, 2004 HooRay Ray A. The Duke is on Iressa. Sides are DIARHEA, some nausea and just starting a rash on the end of his nose and peeling skin on his index finger. The doctor told us to take 2 Imodium each morning, just in case. Said you will never get constipated when you are taking Iressa. Earl munches crackers when he feels tummy sick, seems to work. He is having a pregnancy test next week, thought crackers only worked with morning sickness. Using Aveeda lotion for rash, he hates it but is doing it. I would go for the Iressa. The sides are handible and as Ry says when it works, it works good. I am so happy for you and your family. I'd check out AC this weekend while you are having this good luck. Ginny Quote Link to comment Share on other sites More sharing options...
RAY A Posted February 9, 2004 Author Share Posted February 9, 2004 HEY HEATHER, No sorry U of Penn does not have the ct/pet scaner I have to go to SJRA in voorhees. They got the new machine. My insurance is not capitated with any other place. P.S. You look so Beautiful in your wedding pic. Good looking hubbie too and son. Quote Link to comment Share on other sites More sharing options...
David A Posted February 9, 2004 Share Posted February 9, 2004 Great News Ray!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Snowflake Posted February 9, 2004 Share Posted February 9, 2004 Wonderful, Ray! My input on Iressa would be to prepare for weight loss - everything seems to go right through, at turbo speed... Sounds good! Becky Quote Link to comment Share on other sites More sharing options...
LindaMRG Posted February 10, 2004 Share Posted February 10, 2004 THIS IS WONDERFUL NEWS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! You have really been through a lot and this WONDERFUL NEWS is an inspiration to all of us!!!!!!!!!!!!!!!!!!!!!!!! Im so happy for you,Ray!!!!! Quote Link to comment Share on other sites More sharing options...
Cindy RN Posted February 10, 2004 Share Posted February 10, 2004 CONGRATS! Quote Link to comment Share on other sites More sharing options...
pritchie Posted February 10, 2004 Share Posted February 10, 2004 Ray, Congratulations. Pamela Quote Link to comment Share on other sites More sharing options...
TheresaKB Posted February 10, 2004 Share Posted February 10, 2004 Hi Ray, Best news of the day!!!! Congratulations to you and your wonderful family! Theresa Quote Link to comment Share on other sites More sharing options...
Marie Posted February 10, 2004 Share Posted February 10, 2004 Hi Ray, Thank you for sharing such wonderful news. It brought a smile to my face. I'm very happy for you. Quote Link to comment Share on other sites More sharing options...
MO_Sugar Posted February 10, 2004 Share Posted February 10, 2004 Great News!! Prayers and good thoughts continue! God Bless, MO Quote Link to comment Share on other sites More sharing options...
Karen Posted February 14, 2004 Share Posted February 14, 2004 Hey Ray! This may be a little late but I am still THRILLED about your good news! It's so encouraging to see someone beat those nasty brain mets. You must be doing cartwheels...with losing those 6 pounds and all. I will keep your "remission stance" in my prayers! Karen M. Quote Link to comment Share on other sites More sharing options...
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