TD1 Posted November 24, 2018 Share Posted November 24, 2018 Hi! I was told to repost as newcomer. I hope it is here. Last year in June 2017 they found a 16 cm mass (yes, cms!) in my right lung. Met exon 14 adenocarcinoma. I am a never smoker! It spread to lymph nodes and showed signs of pleural effusion so stage IV, now stage IIIa. With crizotinib my tumor shrunk to 6cms. They did a pneumonectomy and the reports show complete response. Of course, I realize that I am incredibly lucky and thank the great surgeons, oncologists and research team at UCSF. They are the best!! Are there any long term survivors with MET exon amplification out there? I hope everyone on this site to have good outcomes, hope and on a path that leads to healthy living with our cancers! Link to comment Share on other sites More sharing options...
Tom Galli Posted November 24, 2018 Share Posted November 24, 2018 TD1, Wonderful to hear great news. I'm a long term survivor having also had a very large tumor (not as large as yours) but with a right pneumonectomy. I'm a Squamous cell guy so targeted therapy treatment didn't (I had Tarceva but before it was realized it only worked on adenocarcinoma) and won't work on me. Stay the course. Tom Link to comment Share on other sites More sharing options...
TD1 Posted November 24, 2018 Author Share Posted November 24, 2018 Thanks for your reply. I’m glad to hear you are a long term survivor. How long? Do you have MET exon 14? I hear it is rare. Link to comment Share on other sites More sharing options...
Andree Posted December 30, 2018 Share Posted December 30, 2018 On 11/24/2018 at 2:13 PM, TD1 said: Hi! I was told to repost as newcomer. I hope it is here. Last year in June 2017 they found a 16 cm mass (yes, cms!) in my right lung. Met exon 14 adenocarcinoma. I am a never smoker! It spread to lymph nodes and showed signs of pleural effusion so stage IV, now stage IIIa. With crizotinib my tumor shrunk to 6cms. They did a pneumonectomy and the reports show complete response. Of course, I realize that I am incredibly lucky and thank the great surgeons, oncologists and research team at UCSF. They are the best!! Are there any long term survivors with MET exon amplification out there? I hope everyone on this site to have good outcomes, hope and on a path that leads to healthy living with our cancers! smoking is not the only factor for lung cancer air pollution radon etc //courage and hope Link to comment Share on other sites More sharing options...
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