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Hi I am new- Met exon 14 success story


TD1

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Hi! I was told to repost as newcomer. I hope it is here. Last year in June 2017 they found a 16 cm mass (yes, cms!) in my right lung. Met exon 14 adenocarcinoma. I am a never smoker! It spread to lymph nodes and showed signs of pleural effusion so stage IV, now stage IIIa. With crizotinib my tumor shrunk to 6cms. They did a pneumonectomy and the reports show complete response. Of course, I realize that I am incredibly lucky and thank the great surgeons, oncologists and research team at UCSF. They are the best!! Are there any long term survivors with MET exon amplification out there? I hope everyone on this site to have good outcomes, hope and on a path that leads to healthy living with our cancers! 

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TD1,

Wonderful to hear great news. I'm a long term survivor having also had a very large tumor (not as large as yours) but with a right pneumonectomy.  I'm a Squamous cell guy so targeted therapy treatment didn't (I had Tarceva but before it was realized it only worked on adenocarcinoma) and won't work on me.  

Stay the course.

Tom

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Thanks for your reply. I’m glad to hear you are a long term survivor. How long? Do you have MET exon 14? I hear it is rare. 

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  • 1 month later...
On 11/24/2018 at 2:13 PM, TD1 said:

Hi! I was told to repost as newcomer. I hope it is here. Last year in June 2017 they found a 16 cm mass (yes, cms!) in my right lung. Met exon 14 adenocarcinoma. I am a never smoker! It spread to lymph nodes and showed signs of pleural effusion so stage IV, now stage IIIa. With crizotinib my tumor shrunk to 6cms. They did a pneumonectomy and the reports show complete response. Of course, I realize that I am incredibly lucky and thank the great surgeons, oncologists and research team at UCSF. They are the best!! Are there any long term survivors with MET exon amplification out there? I hope everyone on this site to have good outcomes, hope and on a path that leads to healthy living with our cancers! 

smoking is not the only factor for lung cancer air pollution radon etc //courage and hope

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