Judi McGuire Posted November 30, 2018 Share Posted November 30, 2018 I was diagnosed November 30, 2017, when I found some swelling on the right side of my neck. I went to the ER where a CAT scan of my neck and chest showed stage 4 lung ca with mets to the lymph nodes and bone. I also have a pathological rib fracture. Thankfully I had mutations and biomarkers that enabled me to start targeted therapy with Tagrisso. Within 2 weeks the tumor shrunk to half of its size, lymph nodes had resolved and my neck was back to normal. Unfortunately I was taken off the Tagrisso for three weeks at the end of October because the oncologist thought that it was causing some toxicity and within those three weeks the lung tumor grew. Now I am back on the Tagrisso at half the dose and I am scheduled to have a consult with a radiologist. Just had a repeat MRI of the brain yesterday with see the oncologist on December 4. I joined this community because I need to have people in my life who will understand what is going on and not feel awful for me. I think like a lot of people I know, including family, have already written me off. I realize that they are afraid because of the unknown and I am grateful for the support I have gotten from them but I need a different kind of support. I continue to remain positive and I am doing what I can to live with this. Judi Link to comment Share on other sites More sharing options...
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