Barb1260 Posted December 27, 2018 Share Posted December 27, 2018 PET shows no mets and head CT shows nothing. Staged a 3a-still not sure exactly what the a means but I’m jumping for joy that it’s not spread everywhere. Setting me up for 6 weeks of radiation-Monday they Friday, along with low dose of Carboplatin and Taxol once per week for those 6 weeks. After that-immunotherapy. Right now I feel like I should have asked about surgery after the 6 weeks but I didn’t. I asked if they did bio markers tests, the nurse said they don’t for my type. Now I’m confused about that but I’ll be there in the very near future and will get further insight. Meeting the radiologist on 1/2, waiting for the appointment for the port then should be starting this crazy train mid January. Does all this sound normal? I need 2019 to be a decent year Link to comment Share on other sites More sharing options...
LexieCat Posted December 27, 2018 Share Posted December 27, 2018 Great news! I know how relieved you must be. We have tons of Stage IV people here doing well--IIIa is something you can beat back. Yeah, the timeline sounds pretty normal. I'm not entirely sure what she meant about not doing biomarker testing for your "type" of cancer. You have adenocarcinoma, which I believe is usually able to be tested. It's something you might ask the doctor--not sure I'd want that explanation from a nurse. But there's no huge rush. For right now, be happy that it doesn't look like you have any distant mets--that's something worth celebrating! Link to comment Share on other sites More sharing options...
LexieCat Posted December 27, 2018 Share Posted December 27, 2018 Oh, and IIIa is explained here: https://lungevity.org/for-patients-caregivers/lung-cancer-101/lung-cancer-staging It's better than IIIb or c. Link to comment Share on other sites More sharing options...
Barb1260 Posted December 27, 2018 Author Share Posted December 27, 2018 Thanks Lexie-beat it back I will. I’m sure there will always be a running list of questions so that will be on top. Guess my life will be in 6-8 week increments. A friend asked me today what happens if it doesn’t work-said I’m not even going to that thought process, it’s going to work. Happy New Year to you Link to comment Share on other sites More sharing options...
Tom Galli Posted December 27, 2018 Share Posted December 27, 2018 Barb, This may help you get ready for infusions. Stay the course. Tom Link to comment Share on other sites More sharing options...
Barb1260 Posted December 28, 2018 Author Share Posted December 28, 2018 Thanks Tom. I’m hopeful I’ll be one of the lucky ones that doesn’t get ALL the side effects. But if I do, so be it. Link to comment Share on other sites More sharing options...
Rower Michelle Posted December 28, 2018 Share Posted December 28, 2018 Welome Barb, It's official- you're now part of the SURVIVORS club. You can beat this back-keep telling yourself that every day no matter what. My prayers are with you. Michelle Link to comment Share on other sites More sharing options...
Robert Macaulay Posted December 28, 2018 Share Posted December 28, 2018 Barb1260 I was on the same regime Carboplatin and Taxol and now since August 2018 immunotherapy every two weeks. Bob Link to comment Share on other sites More sharing options...
Barb1260 Posted December 29, 2018 Author Share Posted December 29, 2018 Hi Robert. How was that regime for you and is the immunotherapy doing as expected? Link to comment Share on other sites More sharing options...
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