Tammy L Posted January 8, 2019 Share Posted January 8, 2019 My husband has Pancoast Tumor& Horners Syndrome he has gone through chemo& radiation but now it has spread to left lung,liver, veins, its inoperable, has anyone gone through this? Quote Link to comment Share on other sites More sharing options...
DAVID D Posted January 8, 2019 Share Posted January 8, 2019 Hi Tammy L , I don't know anything about it but there are some pretty knowledgeable people here. I'm quite sure someone will have some help for you. Quote Link to comment Share on other sites More sharing options...
LexieCat Posted January 8, 2019 Share Posted January 8, 2019 Hi, Tammy, and welcome. I'm sorry about your husband's illness. We have at least a few people here who have had Pancoast tumors. I haven't heard anyone mention Horner's syndrome, but I know nerve pain is pretty common with that. What treatment is he receiving right now? Has the tumor been tested for biomarkers? Glad you found us--this is a great place for information and support. BridgetO and Tom Galli 2 Quote Link to comment Share on other sites More sharing options...
Donna G Posted January 8, 2019 Share Posted January 8, 2019 Hello Tammy . I am one of those members here that has had a Pancoast Tumor. My tumor was in the apex of my right upper lobe. It was pressing on a nerve going down my right arm and also pressing on my chest wall. I had chest pain and pain down my right arm. I had no distant mets. I had to have chemo and radiation to shrink it before they would consider surgery. When I was able, because it shrunk, to have surgery the plan from the beginning was that I would have more chemo after surgery. I have survived 21 years now ! What chemo did he have ? I pray that he responds well to it. When is he due for a CT ? Please keep us posted. Donna G Tom Galli, Steff, LexieCat and 1 other 4 Quote Link to comment Share on other sites More sharing options...
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