Barb1260 Posted January 17, 2019 Share Posted January 17, 2019 First day of chemo and now still in ER being monitored because I went into anaphylactic shock from the Taxol. I thought I was dying at one point when my blood pressure plummeted. Never did get Carbo today-maybe tomorrow. Gonna call in the morning. Between the prechemo benedryl, the 2nd benedryl for the allergic reaction, the steroids, Atavan and the EPI pen I think I’ll be awake all night. Link to comment Share on other sites More sharing options...
Tom Galli Posted January 17, 2019 Share Posted January 17, 2019 Barb, Oh no! So sorry to learn of this. I never had a reaction but know those who have. Glad they got you to ER quickly. Hope you recover quickly. Stay the course. Tom Link to comment Share on other sites More sharing options...
Barb1260 Posted January 17, 2019 Author Share Posted January 17, 2019 Thanks Tom. They had me stable in the Cancer Centre-they jumped right in and got me under control. The ER is hospital protocol if you have a reaction in an outpatient building. The ER is within a block of every building. (But of course they had to call an ambulance) Week #1 has been interesting to say the least. Link to comment Share on other sites More sharing options...
LexieCat Posted January 18, 2019 Share Posted January 18, 2019 Glad there was such a speedy response! But very sorry you had to go through this. Hang in there--it's gotta get easier from here! Link to comment Share on other sites More sharing options...
BridgetO Posted January 18, 2019 Share Posted January 18, 2019 Yow! Scary! Sorry you went through this and glad to hear you're OK. Keep us posted. Link to comment Share on other sites More sharing options...
Barb1260 Posted January 18, 2019 Author Share Posted January 18, 2019 Lol-it surely cannot get any more difficult. I’m hanging in, ain’t no turning back now. Link to comment Share on other sites More sharing options...
Barb1260 Posted January 18, 2019 Author Share Posted January 18, 2019 Bridget-I knew what anaphylactic feels like because I had it before. As soon as I felt it I knew what it was-thank God! Link to comment Share on other sites More sharing options...
Rower Michelle Posted January 18, 2019 Share Posted January 18, 2019 Oh no. Rough day for sure. Yes- you will probably be up all night. Not a bad time to organize closets. Thank goodness you knew what was happening. Welcome to the super-utilizer club of healthcare. Hoping & praying for a better day tomorrow. Link to comment Share on other sites More sharing options...
Barb1260 Posted January 18, 2019 Author Share Posted January 18, 2019 Hey I figure I paid all my life for insurance and hardly used it so now I’m spending my money I paid in Link to comment Share on other sites More sharing options...
Lisa L Posted January 18, 2019 Share Posted January 18, 2019 Stay strong Barb.... Link to comment Share on other sites More sharing options...
LexieCat Posted January 18, 2019 Share Posted January 18, 2019 Keep up that attitude--I think a sense of humor is helpful in almost any situation. I know it's MY go-to coping mechanism. Link to comment Share on other sites More sharing options...
Barb1260 Posted January 18, 2019 Author Share Posted January 18, 2019 And sometimes I have a weird sense of humor that people don’t get. Link to comment Share on other sites More sharing options...
LexieCat Posted January 18, 2019 Share Posted January 18, 2019 #metoo Link to comment Share on other sites More sharing options...
PaulaC Posted January 18, 2019 Share Posted January 18, 2019 16 hours ago, Barb1260 said: First day of chemo and now still in ER being monitored because I went into anaphylactic shock from the Taxol. I thought I was dying at one point when my blood pressure plummeted. Never did get Carbo today-maybe tomorrow. Gonna call in the morning. Between the prechemo benedryl, the 2nd benedryl for the allergic reaction, the steroids, Atavan and the EPI pen I think I’ll be awake all night. Wow I’m sorry you had to deal with that. I hope things are better today. Link to comment Share on other sites More sharing options...
Rower Michelle Posted January 18, 2019 Share Posted January 18, 2019 Was thinking about you this morning- hope you are feeling better! Link to comment Share on other sites More sharing options...
Barb1260 Posted January 18, 2019 Author Share Posted January 18, 2019 Better but still shaky from all the steroids and stuff pumped into me yesterday. And now the oncs office wanting to know if I want to try the carbo today. More steroids and benedryl with the way I am now, no way. This on top of my ear infection again and being dizzy from that too. So sitting here waiting for the oncologists partner to check me over-she’s not in today. Might want to pump me up with fluids to force it all through me. What a first week introduction. But I love that my docs are constantly on the phone as soon as something new comes up. Link to comment Share on other sites More sharing options...
Barb1260 Posted January 18, 2019 Author Share Posted January 18, 2019 And I now have to carry an Epi pen which insurance doesn’t cover. That is ridiculous!! Link to comment Share on other sites More sharing options...
LexieCat Posted January 18, 2019 Share Posted January 18, 2019 Barb, I tried to send you a message but not sure it went through. Let me know if you didn't get it and I'll re-send. Link to comment Share on other sites More sharing options...
Barb1260 Posted January 18, 2019 Author Share Posted January 18, 2019 No ma’am did not receive Link to comment Share on other sites More sharing options...
Rower Michelle Posted January 18, 2019 Share Posted January 18, 2019 No coverage for the epi-pen- that’s ridiculous! Can your doctor appeal? You know I’m mulling over an advocacy idea- a Patient’s Bill of Rights. For those of us with Advanced Cancers (Stage 3 & above) what the treatment team says should go forward as long as it’s the safe & within treatment standards. It’s unbelievable the issues we have with insurance. We are fighting for our lives & with the bureaucracy of insurance which we all paid into. It really stinks. Link to comment Share on other sites More sharing options...
Barb1260 Posted January 18, 2019 Author Share Posted January 18, 2019 Hi Michelle. I will check with the doc and the pharmacy usually knows about discounts for certain drugs. I’ve heard them talk to others about them so I will ask when I pick it up. I’m getting Carbo today. Of course I had a slight reaction-itching and burning tongue. So more benedryl then a slower drip. So many pre-drugs just to take at home then more on site. What a week. Oh the doc said I can have a small amount of wine 🍷 occasionally if I felt it would take the edge off. She’s talking restaurant pour, not Barb pour. 😜 Link to comment Share on other sites More sharing options...
PaulaC Posted January 19, 2019 Share Posted January 19, 2019 Barb I hope you find some relief. ❤️ Link to comment Share on other sites More sharing options...
Barb1260 Posted January 19, 2019 Author Share Posted January 19, 2019 Thanks Paula. I’m toughing it out (after a lot of scared tears) with the help of my wonderful onc’s chemo team. Seems there’s a remedy for everything and they know every trick in the book. Link to comment Share on other sites More sharing options...
Rower Michelle Posted January 19, 2019 Share Posted January 19, 2019 I hear you! I turned purple on my face after Carbo. No need to tough this out. We’ve all been there. A big giant hug to you! Saturday will be a better day. Treat yourself to something nice. We’re here for you! Link to comment Share on other sites More sharing options...
PaulaC Posted January 19, 2019 Share Posted January 19, 2019 Hugs girl! Link to comment Share on other sites More sharing options...
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