Jump to content
Sara Armstrong

New to community

Recommended Posts

Hi

i was diagnosed with lung cancer Oct 6 2017. I have never smoked I am 47 years old with two teenage girls. I am wanted to connect with someone I can relate to such as a non smoker with lung cancer. I have the Alk rearrangement. Thanks !

Share this post


Link to post
Share on other sites

Hi Sara 

Greetings from a fellow ALKie.  I am a 51 year old never smoker-competitive althlete.  Diagnosed on 9-21-18.  ALK Positive on 10-23-18.   I’m on Alectinib & doing very well.  

Unfortunately I don’t do Facebook, however there is a vibrant ALK Community.  ALKpostive.org.  There are over 1400 in 40+ countries.  There are some other non FB ALKs here on the forum too. 

Let me know how we can support you.  I went into the deep end of the pool with cement shoes but I learned how to swim real fast.  

Its nice to meet you. This support group is an awesome lifeline! 

Michelle

Share this post


Link to post
Share on other sites

I am fully aware anyone can get lung csncer. Personally, I think I can relate better with non smokers. Sorry for any confusion my post might have caused. 

Share this post


Link to post
Share on other sites

I understand what you are saying Sara.  Life as a lung cancer mutant presents a different set of challenges.   I’ve been with group since October & it’s great source of wisdom & support.   Glad you found us.  

Share this post


Link to post
Share on other sites
2 hours ago, Rower Michelle said:

Hi Sara 

Greetings from a fellow ALKie.  I am a 51 year old never smoker-competitive althlete.  Diagnosed on 9-21-18.  ALK Positive on 10-23-18.   I’m on Alectinib & doing very well.  

Unfortunately I don’t do Facebook, however there is a vibrant ALK Community.  ALKpostive.org.  There are over 1400 in 40+ countries.  There are some other non FB ALKs here on the forum too. 

Let me know how we can support you.  I went into the deep end of the pool with cement shoes but I learned how to swim real fast.  

Its nice to meet you. This support group is an awesome lifeline! 

Michelle

Thanks so much for the information. I have felt so alone for a long time now. I would like to hear other stories that are similar to mine. Sound like alk.org will be a good start. I am on Alectinib also and doing well. Nice to meet you!

Share this post


Link to post
Share on other sites

You might also want to check out the peer support request on Lungevity’s web site too.  I have a peer support mentor, ALKie. She’s awesome.  We meet once a week to talk about life, cancer & how to figure this journey out.  I had to wait a few weeks but it was so worth it.  

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...