Rower Michelle Posted February 1, 2019 Share Posted February 1, 2019 Hi Gang, Well for the first time since I was diagnosed, the Integrative Oncologist (hippie doc) and the Medical Oncologist disagreed over my treatment plan. The medical oncologist cleared me to do some light rowing (YAY!). I started to develop some discomfort in my back and my neck started to crack. Ok so common sense says to stop rowing-no problem there. No more back pain, less neck cracking. Medical oncologist feels the discomfort and cracking are a side effect from the targeted therapy Alectinib. Even though my CPK levels are normal, the Alectinib can cause some muscle and ligament damage. I had some spine mets on the PET scan in October, however, Medical Onc feels confident the Alectinib will knock out the small bone mets. Integrative Onc is very nervous about my spine and wants a MRI. Normally the medical onc is the team captain and we take his lead while the hippie doctor works to optimize the treatment plan. This time the hippie doctor wins. I'm going for a MRI on February 6th. I'm hoping this is precautionary....... Please Pray for me on the 6th. Otherwise, the doc visits went great this week. Perfect labs and I'm feeling good! Michelle Quote Link to comment Share on other sites More sharing options...
PaulaC Posted February 1, 2019 Share Posted February 1, 2019 Praying girl🙏🙏🙏 Quote Link to comment Share on other sites More sharing options...
Roz Posted February 1, 2019 Share Posted February 1, 2019 Michelle, Let's hope the MRI doesn't show anything! It's great that you have two docs working with you! I'll be thinking of you on Feb 6th! Ro Quote Link to comment Share on other sites More sharing options...
Lisa L Posted February 2, 2019 Share Posted February 2, 2019 Thinking of you sweets Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
MBinOregon Posted February 3, 2019 Share Posted February 3, 2019 Happy for your feeling good and perfect labs. Sending you prayers for MRI 🙏 Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
hope16 Posted February 3, 2019 Share Posted February 3, 2019 You are in my prayers.... Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
Barb1260 Posted February 3, 2019 Share Posted February 3, 2019 Sending you best wishes and hugs. Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
Rower Michelle Posted February 6, 2019 Author Share Posted February 6, 2019 One hour until MRI time. Valium has been loaded into the purse. Just want to get this over with. Long test- 1hr 15 min. It’s a toss up between Bruce Springsteen Radio or Study By Starlight on Pandora. They let you pick the music.....Argg. Tom Galli and ColleenRae 2 Quote Link to comment Share on other sites More sharing options...
PaulaC Posted February 6, 2019 Share Posted February 6, 2019 You got this!!! I always choose Adele or Coldplay on Pandora 😁 Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
Rower Michelle Posted February 6, 2019 Author Share Posted February 6, 2019 All done. In lalala land. Glad it s done PaulaC 1 Quote Link to comment Share on other sites More sharing options...
Barb1260 Posted February 7, 2019 Share Posted February 7, 2019 You will get great results-I can feel it Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
Rower Michelle Posted February 7, 2019 Author Share Posted February 7, 2019 The results are in- no cancer on the spine! The Alectinib knocked it out! Thanks to my national support team for the good wishes & prayers! Chest CT is 2-18..... forward march! MBinOregon, Robert Macaulay, Curt and 5 others 8 Quote Link to comment Share on other sites More sharing options...
Barb1260 Posted February 7, 2019 Share Posted February 7, 2019 Yay!!! Great news! Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
LexieCat Posted February 7, 2019 Share Posted February 7, 2019 Congrats--glad to hear it! Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
PaulaC Posted February 7, 2019 Share Posted February 7, 2019 Awesome!! Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
Roz Posted February 7, 2019 Share Posted February 7, 2019 Michelle, Thanks for sharing your great news!! Hope the Chest CT goes well too! Ro Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted February 8, 2019 Share Posted February 8, 2019 Michelle, Absolutely superb news! Expecting full NED from CT next week. Stay the course. Tom Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
Rower Michelle Posted February 8, 2019 Author Share Posted February 8, 2019 Thanks Tom! I’m all used up for the reactions today.... Roz and Tom Galli 2 Quote Link to comment Share on other sites More sharing options...
BridgetO Posted February 8, 2019 Share Posted February 8, 2019 Woo Hoo!On to the next victory! Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
hope16 Posted February 8, 2019 Share Posted February 8, 2019 Fantastic... Congrats Michelle... I am very happy for you Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
Lisa L Posted February 9, 2019 Share Posted February 9, 2019 Such wonderful news Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
ColleenRae Posted February 9, 2019 Share Posted February 9, 2019 Michelle - Unfortunately I haven't been able to be active on this site regularly - just read your posts with bated breath... So glad when I reached the end and read your happy news. Very very happy for you! Fingers crossed for the Feb 18th CT... Colleen Rower Michelle and Tom Galli 1 1 Quote Link to comment Share on other sites More sharing options...
LaurenH Posted February 15, 2019 Share Posted February 15, 2019 That's great news, Michelle! We're very happy for you! Thank you for spreading hope in this community! Have a wonderful weekend, Lauren -- Digital Community Manager LUNGevity Foundation Tom Galli and Rower Michelle 1 1 Quote Link to comment Share on other sites More sharing options...
ColleenRae Posted February 19, 2019 Share Posted February 19, 2019 Hi Michelle, Did you have your CT yesterday? Thinking of you! Quote Link to comment Share on other sites More sharing options...
Rower Michelle Posted February 20, 2019 Author Share Posted February 20, 2019 Hi Colleen Yes- I did have the scan & so far no news. I’m thinking it’s nothing new otherwise I would have gotten a phone call. Hubby & I are heading to FLA tomorrow for our first vacation since I was diagnosed in September. I see the onc next week on 2-26 to review the treatment plan. Forward March! Thanks for thinking about me! I appreciate it Michelle ColleenRae 1 Quote Link to comment Share on other sites More sharing options...
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