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MRI Scheduled 2-6


Rower Michelle

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Hi Gang, 

Well for the first time since I was diagnosed, the Integrative Oncologist (hippie doc)  and the Medical Oncologist disagreed over my treatment plan.  The medical oncologist cleared me to do some light rowing (YAY!).   I started to develop some discomfort in my back and my neck started to crack.   Ok so common sense says to stop rowing-no problem there.  No more back pain, less neck cracking. 

  Medical oncologist feels the discomfort and cracking are a side effect from the targeted therapy Alectinib.  Even though my CPK levels are normal, the Alectinib can cause some muscle and ligament damage.    I had some spine mets on the PET scan in October, however, Medical Onc feels confident the Alectinib will knock out the small bone mets.    Integrative Onc is very nervous about my spine and wants a MRI.    

Normally the medical onc is the team captain and we take his lead while the hippie doctor works to optimize the treatment plan.   This time the hippie doctor wins.   I'm going for a MRI on February 6th.  I'm hoping this is precautionary.......  Please  Pray for me on the 6th. 

Otherwise, the doc visits went great this week.  Perfect labs and I'm feeling good!

Michelle 

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Michelle,

Let's hope the MRI doesn't show anything!

It's great that you have two docs working with you!

I'll be thinking of you on Feb 6th!

 

Ro

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One hour until MRI time. Valium has been loaded into the purse.  Just want to get this over with.  Long test- 1hr 15 min.  It’s a toss up between Bruce Springsteen Radio or Study By Starlight on Pandora.  They let you pick the music.....Argg.  

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Michelle - Unfortunately I haven't been able to be active on this site regularly - just read your posts with bated breath... So glad when I reached the end and read your happy news. Very very happy for you! Fingers crossed for the Feb 18th CT...

Colleen

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That's great news, Michelle! We're very happy for you! Thank you for spreading hope in this community!

Have a wonderful weekend,

Lauren
--
Digital Community Manager
LUNGevity Foundation

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Hi Colleen

Yes- I did have the scan & so far no news. I’m thinking it’s nothing new otherwise I would have gotten a phone call.  Hubby & I are heading to FLA tomorrow for our first vacation since I was diagnosed in September. 

I see the onc next week on 2-26 to review the treatment plan.  Forward March! 

Thanks for thinking about me! I appreciate it

Michelle

 

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