Road bum Posted March 2, 2019 Share Posted March 2, 2019 I had my first round of taxotere on Feb. 22. Had a serious flush on my face and chest Saturday morning. My peripheral neuropathy was really kicking in by Sat. evening and my ankles were starting to ache. I didn’t sleep very much Sat. night. Sunday morning was a whole new experience. I woke up about 4:30 with the bones in my feet and ankles absolutely screaming. It progressed up the long bones in my legs to my knees. It felt like bones and joints were cracking to the beat of my heart. That continued to my knees. The pain was a solid 7 and some times an 8 on the pain scale. I called my after hours number and within an hour my medication was ready at the pharmacy. At this point I may have over medicated just a little but I slept all night. My wife said my legs moved around a lot and I rubbed my feet together almost all night. Monday morning I only had to take 2 pain pills all day and it was very tolerable.Had a lot more trouble with the neuropathy all this past week, but it was doable. I woke up this Thursday morning and by the time I got dressed my energy for the day was gone. Friday morning I had my appointment with my oncologist and as usual they did a full spectrum blood test. This is one of the things I really appreciate at the Montgomery Cancer Center. Every time I have a treatment or a doc’s visit they do the blood work. Took maybe 15 min. for me to get into see my doctor. I have never waited more than 20 minutes on any appointment I have had there. Doc had the blood work completed and in her hand when she walked into the room. I have never been made to feel rushed while I have been there and this center serves almost all of southern Alabama. It is always busy there. Anyway pompoms down. Doc brought in a 2 copy’s of my blood work and and we went over it. My WBC count is down to 1.2. So she is going to work up some other options and if the blood work is the same on the 13th she will tweak my treatment some. I’m really tired and I have a couple of sores in my mouth and a sore throat. I’m using Magic Mouthwash. Why didn’t somebody warn me😳that is the nastiest stuff I have ever had in my mouth. If it didn’t work so well I would burn the stuff so no one else couldn’t use it. So, some side effects but nothing I can’t handle. The journey continues with all occupants safe in the boat. Link to comment Share on other sites More sharing options...
Tom Galli Posted March 2, 2019 Share Posted March 2, 2019 Stay the course.... Tom Link to comment Share on other sites More sharing options...
PaulaC Posted March 3, 2019 Share Posted March 3, 2019 Those feet and leg aches were the worst. Hang in there. Link to comment Share on other sites More sharing options...
Curt Posted March 3, 2019 Share Posted March 3, 2019 Hang in there. Link to comment Share on other sites More sharing options...
Road bum Posted March 3, 2019 Author Share Posted March 3, 2019 Thanks everyone. At this point I am “ in it to win it”. You all have real good Sunday and get some rest. Ron Link to comment Share on other sites More sharing options...
Susan Cornett Posted March 3, 2019 Share Posted March 3, 2019 I had bone aches in my thigh that brought me to tears. It ended right after my last chemo so there is light at the end of that tunnel. Link to comment Share on other sites More sharing options...
Road bum Posted March 3, 2019 Author Share Posted March 3, 2019 Thank you Susan. I just hope it doesn’t get any worse. I’m not sure I can be that tough very often. Ron Link to comment Share on other sites More sharing options...
Laurel Posted March 4, 2019 Share Posted March 4, 2019 For mouth sores, it was suggested I gargle/ rinse my mouth with 1 tsp. baking soda with warm water.... 3 times a day. Also, friends who have gone through treatment suggested I sip on a very cold drink...like a slushy during chemo. Link to comment Share on other sites More sharing options...
Laurel Posted March 4, 2019 Share Posted March 4, 2019 Magic mouthwash didn't help me as radiation burned my esophaghus. However, sucking on menthol sore throat drops helped. Prevention Oncology Mouth Rinse from Amazon.com helped. Get Biotene dry mouth rinse for night time....cancer treatment attacks our teeth health. Link to comment Share on other sites More sharing options...
Road bum Posted March 4, 2019 Author Share Posted March 4, 2019 Thank you Susan. I just hope it doesn’t get any worse. I’m not sure I can be that tough very often. Also thank you Laurel for your suggestions. I am sure they will come in handy. Ron Link to comment Share on other sites More sharing options...
Laurel Posted March 4, 2019 Share Posted March 4, 2019 You are welcome Ron. Bless you. Link to comment Share on other sites More sharing options...
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