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I was dx'd with stagec4 nsclc in Dec 2017.  Received chemotherapy and immunotherapy for a year.  The cancer continued to grow.  I am currently under hospice care and doing well, although I have a lot of pain due to bone metastasis, for which I have had radiation treatments recently, which helped to some degree.  I am right now in hospital for uncontrolled pain but go home today.  We can't seem to get the pain below a 6 on a scale of 1 to 10.

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It is indeed a pain to live with chronic pain.

Mine has been a 4 to 6 level for the last 15 years. I've had all the pain drugs except for nerve blocks. Nothing really works. Opioid medications put me in a haze so I don't care about the pain but it is still there. My solution is to tolerate it during the day and mitigate it at night so I can fall asleep. 

I do hope your medical team finds a solution.

Stay the course.


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  • 3 weeks later...

Hi, Laura,

We just wanted to check in and see how you're doing. Please post an update when you can!

We are here for you,

Digital Community Manager
LUNGevity Foundation

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