Barb1260 Posted April 8, 2019 Share Posted April 8, 2019 Woke up to my PET results in email this morning, before even speaking to the doc. Wasn't expecting NED because of the original size but to me they are good-at least I think so. Tumor original size was 6.9x6.2 cm, now 2.6x3. Original SUV 20, now 5.6. Lymphn node originally 3.5x2.8cm, now 1.2x1.7. SUV was 19.6 now 3.9. No other findings except new regions of airspace in lung apex, right upper lobe and right lower lobe-what does this mean? From the radiation? So what I get from this is it hasn't spread, it has shrunk and SUV is lower. Am I reading this right? So next step is either 2 blasts of chemo and/or Imfinzi. All weekend my neck has been swollen from the port catheter area going around my neck to the back above the collar bone. The PET said no enlarged lymph nodes there so that is a good thing. I noticed the swelling Thursday night, the PET was that morning so I am thinking it would have been seen. Onc's office said to call the surgeon who placed the port. Went to the surgeon's office, did an ultrasound, no blood clot and port looks perfect. So why the heck is my neck swollen. My ear and sinuses feel funny but I've never had swelling that low from that before. No pain, no tenderness, no fever. More radiation lingering side effects maybe? Somebody in my support group said their entire neck swelled after but I'm not so sure. There is always the good with the bad-can't I just celebrate without worrying about something, geez! All in all, a good day. LaurenH and Susan Cornett 2 Quote Link to comment Share on other sites More sharing options...
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