Renee1215 Posted April 22, 2019 Share Posted April 22, 2019 Hi! My name is Renee and I was diagnosed with Stage 4 nsclc in August 2017. I'm glad to have found this site as I've already gained information and read many inspiring stories. I was originally given a very poor prognosis...months to live. It has now been over a year and a half and I've been cancer free for about 8 months now. I feel as if I'm lucky because, as my friend Michelle says, I'm a mutant. I expressed a high level of PDL-1 and was almost immediately put on Keytruda. To me this is a wonder drug. I've thankfully had no side effects, other than some tiredness, and my response has been good. I live in Kansas City and feel that I have doctors I can literally trust with my life. I'm a huge dog fan, and have four of my own. I'm married with no children, but numerous nephews and nieces. I just recently returned from Washington D.C. where I was a "lung force hero" representing Kansas as the American Lung Association advocated with congresspeople to increase funding for NIH, and to ensure that reasonable insurance with protections for pre-existing conditions remain in place. I had a bad experience with the sleazy insurance policy I had when first diagnosed, and I've benefited from all of the research and trials that led to treatment of lung cancer patients with Keytruda. Some of the ALA people said I was a poster child for advocacy day. I came home with some new friends, and lots of good memories. I hope to be an active participant on this forum, and hope to be able to share and learn much from others. Thank you for letting me be a member! Link to comment Share on other sites More sharing options...
Rower Michelle Posted April 22, 2019 Share Posted April 22, 2019 Rock on my fellow mutant! Welcome! Link to comment Share on other sites More sharing options...
BridgetO Posted April 22, 2019 Share Posted April 22, 2019 welcome Renee! Awesome story Please keep adcocating for us and keep posting here. Bridget O Link to comment Share on other sites More sharing options...
Tom Galli Posted April 22, 2019 Share Posted April 22, 2019 Renee, Welcome indeed! Good job advocating for lung cancer research! Most happy to learn Keytruda is winning the battle. Stay the course. Tom Link to comment Share on other sites More sharing options...
Isabelle49 Posted April 23, 2019 Share Posted April 23, 2019 How wonderful. I wish you continued success with good health!!! Link to comment Share on other sites More sharing options...
LouT Posted April 23, 2019 Share Posted April 23, 2019 What a story Renee. Welcome to the group. Great folks here. Link to comment Share on other sites More sharing options...
Steff Posted April 23, 2019 Share Posted April 23, 2019 Hooray Renee! Thanks for advocating with our lawmakers and thanks for being a thriving cancer warrior! Glad to hear Keytruda has kept your lung cancer at bay, it has helped so many people, including my mom. Happy you have found us! Take Care, Steff Link to comment Share on other sites More sharing options...
Renee1215 Posted April 24, 2019 Author Share Posted April 24, 2019 Thank you all for the great welcome. I'm starting to feel very at home here! Link to comment Share on other sites More sharing options...
Karen.athome Posted April 24, 2019 Share Posted April 24, 2019 I've been on this site for...I think 4 days....I think it's a very safe place to fall. I love your attitude.....we need attitude....might as well pick a good one...welcome. Link to comment Share on other sites More sharing options...
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