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Leo

Complete Regression/Response For Local SCLC Recurrence

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As I shared with the group a short time back, after a year of NED (no evidence of disease), I was diagnosed with a local, limited recurrence of Small Cell Lung Cancer (I.e in the same location as original disease with no regional or distant Mets)

I received 4 , 3 day cycles of concurrent Chemo (Carboplatin & Etoposide) and Immune Therapy (Tecentriq - day 1 of each cycle only) with three weeks between each cycle. 

Findings from post treatment PETCT on May 1, found complete regression/response to treatment, no new or old nodules and no remaining areas of suspect FDG uptake. One of the cleanest scans I’ve ever had. 

Will see Medical and Radiation Oncologists next week to review results, any next steps (preventative) and begin maintenance immunotherapy on Tecentriq. 

Will continue to keep you posted. - Looking forward to my “scanxiety” free weekend! 

Happy to provide any further details that may be helpful to anyone. 

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Leo,

This is wonderful news in so many ways. First complete SCLC response to combined conventional and immunotherapy I’ve read about. 

Lung cancer is nasty; SCLC is nasty cubed! Adding immunotherapy to Carboplatin & Etoposide is a very recent treatment modality and I am so pleased to know it works. 

Indeed, enjoy a Scanziety free weekend. 

Stay the course. 

Tom

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Leo,

This is wonderful news! I'm thrilled for you!

How are you finding the side effects with Tecentriq?


Ro

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The Tecentriq side effects have been relatively mild so far. I have had my first Tecentriq only treatment this week. I’ve had some minor fatigue (still walk, jog run 5 miles per day on non treatment days), periodic headaches and bone pain addressed with occasional use of Tylenol. Bowel regulation has been a challenge on occasion but again addressed with OTC medications. Now that I am only on Tecentriq the side effects may be more readily attributable to this immune therapy than when It was combined with Chemo. Are you also on Tecentriq? 

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I'm hoping to start a Phase Ib clinical trial this month where I would get a personal cancer vaccine combined with Tecentriq. I'm glad your side effects have been manageable. That's amazing that you can run 5 miles a day on day you aren't being treated. Please keep me posted on how you are doing. After the 8 weeks where I get the vaccine plus Tecentriq, I will remain on just the Tecentriq for as long as it is working...At this point, nothing has started so hearing from you really helps!!

Hoping you have continued success with this treatment!

 

Ro

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Will keep you posted on my progress and experience with tecentriq. Personal Cancer vaccine is pretty cutting edge stuff. 

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